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Fibromyalgia pain meds. building tolerance to them
  1. #1
    bikerisland is offline New Member
    Join Date
    Dec 2014

    Default Fibromyalgia pain meds. building tolerance to them

    I've been trying to live my life with Fibromyalgia for more than 30 years. I'm trying to stay active, think positive, be happy and take more control for my own health and learning about the medications I have taken or are currently on, and the long term issues that may be caused by them.
    Currently I am on :
    Hydromorphone Contin slow release 24mgs 3x per day
    Hydromorphone 2mg, 2-3 pills two or the times daily
    I am still having pain issues and I believe it is due to building up a tolerance to these medications.
    My Pain Management Specialist is thinking is time to change to another medication at a lower dosage to break the tolerance issue, Hoeven I'm worried about withdrawal symptoms of coming off these and switching to something else. I've run out of my medicating twice due to pharmacy mistakes, and both times I was in such pain, vomiting, diarrhea, headache, jaw pain, ect. I never want to go through that again.
    All Medications are prescribed by a great doctor, bought legally, and taken properly,.
    I don't drink, I don't take anything not prescribed by my doctor, and no recreation drugs at all.
    I just always worry about withdrawal, but also if I'm becoming tolerant now, what happens in the next 5, 10, 15 or 20 years?
    I'm a motorcycle rider, dog groomer, and I have to take enough medication to control most of the pain but also keep a clear head, andgood reflexes...I can't feel out of it, drowsy, or I can't ride or groom. I know I'll never be 100% pain free and I can live with that as long as I can ride my bike, keep working and find some joy in life, it's worth a bit of pain. As the years go by though and I age ( I'm a 50 year old female) I'm worrying more about the future consequences of these medications. I'm on other meds as well, Valium, anti depressants, sleeping pills, hormones. I'm only 50. What's going to happen when I'm 60 or 70?

  2. #2
    sharonlacouture is offline New Member
    Join Date
    Oct 2009
    Cape Cod, Massachusetts


    hi bikerisland
    my name is sharon. I am 55. I have been sick since 1993 I got lyme disease and I have been sick ever since.
    It has taken the past 15 years for me to get a definitive diagnosis of fibromyalgia.
    You are on some heavy duty stuff my friend.
    I take 2400 mg gabapentin, which takes the edge off the nerve pain just a smidge.
    I take between 10-20 mg of vicodin every four hours, again, just to try to stay ahead of the pain.
    I take lorazepam because I find that treating the depression and anxiety helps with my overall pain levels.
    I suffer 24-7. no time off for good deeds done.
    I should up the dosages on all my meds but I am resistant to do so because I know where that will lead me.
    I will be on pain medication for life, but my options are limited. I am allergic to morphine.
    My current avenue of exploration is medical marijuana. [it is legal in Massachusetts]
    Have you considered that path?
    I also wonder what my future holds. I am in my mid 50's and could feasibly still be around 30 years from now. What am I supposed to do for the next 30 years?
    Become a pot head and a pill head??
    Wish I had the answers....

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