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Generic Duragesic patch
  1. #121
    busted_hip is offline New Member
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    quote:Originally posted by trixie

    quote:Originally posted by busted_hip

    They feel like they have quit giving a dase and upon inspection they have released from the skin all that holds them is the bioclusive/tegaderm covers. I cleaned the area with alchohol like always but they still only stick 2 days. and the pacthes that come off are covered with dead skin so I think its my body making them not work. the tegaderm covers dont come loose they were stuck to the same area and cleaned with the same alchohol so what gives here?

    sometime I wake up grumpy,
    other times I let her sleep.
    busted_hip
    Do you exfoliate on a regular basis? Just a thought.
    trixie
    yea I do and I thought that may be the problem but I do the same
    things now that I did when I used the sandoz patches also the overlays are sticking good.

    sometime I wake up grumpy,
    other times I let her sleep.

  2. #122
    dstaley is offline Junior Member
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    So, dstaley, you and ronnie "butting in" on a post that I responded to only "place users name here" to say "place statement here". (Typical) If I wanted to "pull out" a nasty remark from you, as you just did with me, I can find plenty to select from. I am watching, and if someone refers to my situation, you can bet I will respond, whether it is a nice post or a "nasty" one. So why don't you just go back to sharing info addressing the problems you all have in common and bug off.
    [/quote]

    Complete offense meant here because as history shows in these pages I started by being nice to you and giving you complete sympathy having lost both my parents myself, but it will be very good to be around just Duragesic users and friends.

    Blessings ....
    dstaley
    Last edited by Anonymous; 07-30-2018 at 04:15 AM.

  3. #123
    Paulie42652 is offline New Member
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    quote:Originally posted by dstaley

    quote:Originally posted by TimRobo

    The hair dryer was my suggestion. I don't use alcohol as that causes a rash. I just use a cotton cloth and water to rub the area. I then make sure it's dry and I heat the area with the hair dryer first. Once I have the patch on, I again apply some heat just to make the plastic more pliable. And it has worked fine for me. I got this idea from my doc who said to make sure I rubbed the patch real good to create heat to activate the adhesive. This got me thinking about heating the area first. I then saw how soft the patch got by applying a bit more warm air and started doing this after it was applied. I then apply pressure for about 30 seconds. I rotate arms and it seems to work even better if I can get it on the tricep where it doesn't tend to twist as much. Good luck to all. And by the way, I weigh around 290 lbs and it took me three years to advance from the 25 mcg to the 100 mcg and I have intense back pain so bad my wife has to help me move around at times. And by golly it works great for me. It has made a tremendous difference. My doctor feels the side effects for the Duragesic are not as bad as they are for Lortabs or Vicodan.
    Then Tim you are the best!! It works like a champ for me, and apparently for others here too. So we owe ya one for this idea buddy. That's what we have to do ... is just use our heads as much as possible and share ideas. Your a living example of what this forum is for. Also, all went well with Jenssen ..... and the Bioclusive is being shipped. So now I owe you two .... Want my girlfriend for trade? She dosen't eat all that much. Boy did *I* get a dirty look. [B)]

    Blessings .....
    dstaley

    -----------------------------
    There are obviously two educations. One should teach us how to make a living and the other how to live.
    -- James Truslow Adams
    -----------------------------

    I got to jump in here, and say, YES!, the alcohol and hairdryer thing have really Helped me get them to stay...much better following that procedure.

    I was on vacation in super hot weather, Washington DC, like 103 and humidity to beat the band..., and nothing works then..it can slip right off without you even knowing, and My Experiece with the Mylan is..that once the adhesive\glue does not work, loses the "stick" that no matter, paper tape, dressing used to keep it on and firm, once the stick is gone..so is the pain relief, I begin to really feel the pain again, and get a little headache, most likely a little jones\withdrawal action, but minor really.

    Still, for the past year I feel better then I have in almost 30 years about 80% of the time. I will TAKE THAT!!!

  4. #124
    souldrops is offline New Member
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    Hello Everyone! This is my first posting. I'ts a comfort to meet people who know what your going through. I am a 41 year old family guy and as long as I can wash clothes,dishes, cook and throw the ball and work - my family never misses a beat. Thanks to the patch.

    The patch is deceptive also. I have been using the patch for almost a year now. I didn't need it until my third spinal steriod injection
    for a disc protrusion. All the doctors have been very tight-lipped about whatever happened. I started with the Duragesic 25 and now I am at 50. I switched to Sanoz and have not had any problems. My Pharmacist ran out of Sanoz and included a box of Mylan so I will try that out.

    A few things I have learned about the patches- When I was on Duragesic I had to use medical tape to hold them on and then found out that some adhesives will eat through the patch, so be careful using any tape. Try not to get any tape residue over the area where the membrane of the reservoir is- it could speed the transmission.

    Alcohol is good to use for cleaning the tape residue BUT! wash the area with soap and water after because the alcohol can also dissolve
    the membrane/reservoir as well. When using a hair dryer - be careful
    not to heat the patch too much. The patch is heat sensitive and could also allow premature transmission. Hot showers - limit. Some of you might feel a rush when you step out of a hot shower- That's why. And limit outdoor activities when it is this hot- the patch will release more.

    I had to learn all this the hard way. The last bit of advice is make sure your doctor knows exactly what kind of patch you are taking. Apparently there are different types of generic. My doctor had increased my patch from 50 to 100- anyway it was too strong so I worked my way back down to a 50. I asked my doctor what to do with the extra boxes of 100's - He said, " Just cut them in half and use them that way." I thought he was joking. He wasn't. He did not know that it was a gel. That very likely would have been fatal. So educate yourself as much as possible. If I had not been reading and researching on the net about this medicine I most likely would not be typing this. Do not be embarrassed to ask doctors for more information or inform them about your own experiences. You could save a life.
    Happy Summer All! Stay Cool!
    souldrops

  5. #125
    dstaley is offline Junior Member
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    And another suggestion; when your doctor tells you to do water therapy and follow it with a gentle soak in a hot tub ...... don't expect to be getting out of the tub in the same condition that you got in!

    Then you can explain to your doctor how the delivery system works.

    Blessings .......
    Last edited by Anonymous; 07-30-2018 at 04:15 AM.

  6. #126
    Anonymous Guest

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    My husband uses Fentanyl duragesic patches and applies a "Tegaderm no. 1626W" transparent dressing (4" x 4-3/4")to seal the patch from water and moisture. They work GREAT! They are outrageously priced over the counter at $10.00 per dressing (not available by prescription), but you can get them at a reasonable price on Ebay - $40.00 or so for 50 dressings. Best of luck.

  7. #127
    coreshadow is offline New Member
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    The new fentanyl patches are horrible compared to the others in my opinoin. My doctor said unfortunately (he's a top pain specialists0 that none of the insurance plans are allowing the old Duragesic. These things do not stick on so I have to use tape when I go swimming. My dr. warned me if I was out in the sun for too long it would mess up the usage whether I was covered or not. Also, there was a way that someone else ahd told me to use the old patch when I was in acute pain and this cannot be done anymore. I assure you we weren't acting like junkies, we were just trying to get pain relief and I heard about it from my doctor later.
    has anyone heard of anything to make these work better.
    C.

  8. #128
    TimRobo is offline New Member
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    Here's a trick that seems to work well for all who have tried it. For starters make sure you wash the spot where you are placing your patch well with only water. After you are sure the spot is good and free from all skin oils, use a hair dryer and heat the skin up nice and warm. One of the tricks is to activate the adhesive on the back of the patch. Rub the patch out for about two minutes making sure all air pockets are out. Use the hair dryer again and very briefly warm the patch just enough to make the plastic nice and pliable. Rub it some more and keep working it to match the contour of your body wherever you are placing the patch. Then go ahead and place the Bioclusive dressing over the patch and make sure all the corners and edges are down good and tight to keep water from getting under the edges. Good Luck!

  9. #129
    Paulie42652 is offline New Member
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    quote:Originally posted by TimRobo

    Here's a trick that seems to work well for all who have tried it. For starters make sure you wash the spot where you are placing your patch well with only water. After you are sure the spot is good and free from all skin oils, use a hair dryer and heat the skin up nice and warm. One of the tricks is to activate the adhesive on the back of the patch. Rub the patch out for about two minutes making sure all air pockets are out. Use the hair dryer again and very briefly warm the patch just enough to make the plastic nice and pliable. Rub it some more and keep working it to match the contour of your body wherever you are placing the patch. Then go ahead and place the Bioclusive dressing over the patch and make sure all the corners and edges are down good and tight to keep water from getting under the edges. Good Luck!
    I am going to second this one. That basic procedure has served me quite well. The most trouble I have had with sticking issues was in seriously HOT & HUMID Weather, dripping sweat does not help.

    Once more I am, going to say, since I started this medicine, basically about 70% of the time I feel better then I have in 28 years, that is great, on the other hand, sort of pathetic it took someone that long to seriously discuss it with me.......first doctor that seemed to also take my pain Seriously, and guaranteed me he would do whatever he could, to not only ease the pain, but Prevent It!

    Hope all of you have results similar to mine![8D]

  10. #130
    SUEFROMNH is offline New Member
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    LAST MONTH FOR SOME REASON THE DRUG STORE GAVE ME THE BASIC PATCH, EVEN THOUGH I HAD BEEN RECEIVING THE DURAGESIC PATCH IN THE PAST. THE BASIC PATCH DOES NOT STICK AS WELL AND COMES OFF WHEN WET. SO AT MY VISIT AT THE PAIN CLINIC I TOLD THE DOCTOR AND HE INFORMED ME THAT HE HAD COMPLAINTS FROM OTHER PATIENTS. THIS MONTH I RECEIVED THE REGULAR DURAGESIC PATCH......

  11. #131
    alan1 is offline New Member
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    well..let me share with you wat I know about this fentanyl patch. The main use of the fentanyl patch is to provide a continuous delivery of pain reliever to a patient on an on-going pain. These patches are particularly useful after a surgical procedure but are also helpful in the management of cancer pain, or after injury. In the past, pain relievers were given as shots or pills on an “as needed” basis. Since it is difficult to determine when an animal is in pain, the basic guideline is to consider the pain that human patients report after similar surgeries or injuries.

  12. #132
    dstaley is offline Junior Member
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    quote:Originally posted by alan1

    well..let me share with you wat I know about this fentanyl patch. The main use of the fentanyl patch is to provide a continuous delivery of pain reliever to a patient on an on-going pain. These patches are particularly useful after a surgical procedure but are also helpful in the management of cancer pain, or after injury. In the past, pain relievers were given as shots or pills on an “as needed” basis. Since it is difficult to determine when an animal is in pain, the basic guideline is to consider the pain that human patients report after similar surgeries or injuries.
    Sorry alan1, I have to jump in here for a quick minute with a quote from our sponsor, because I can almost see someone slapping a 50 mcg/hr patch on their pet cat for pulling a muscle from jumping off the fridge. [xx(]

    As someone who has become somewhat very experienced on Fentanol, after being a user for over 3 years of different dosages, please do not use your Fentanol Patch on animals. Dispose of the patches and read the warnings described in the instructions included with your patches.

    Our Fentanol patches, that we use on this forum, is in some cases 100 times stronger than some forms of Morophene, and will quickly turn Fluffy into a door stop. I know that forms of Fentanol are indeed used by Vets post surgury and in extreme individual cases, but it's not the same form we use here. Please consult your local Vet or Animal Hospital before giving any kind of "people" medications to animals as in some cases a simple asprin can kill a pet cat.

    Remember, they have package warnings to not use a hair dryer in the shower and to turn off the engine of your car before replacing your fan belt for a reason.

    Blessings .....
    dstaley

    -----------------------------
    There are obviously two educations. One should teach us how to make a living and the other how to live.
    -- James Truslow Adams
    -----------------------------

  13. #133
    rich h is offline New Member
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    just wanted to chime in on the patches. i have been using duragesic brand for 4 yrs+, starting with 25's. when i was moved up to the 50's, one of my scrips was filled with the sandoz generic. let me tell you, they didn't work! back pain was as bad as ever,(herniated L2-L3,L3-l4,L4-L5,L5-s1).I noticed after 48hrs that the gel inside was starting to harden into small balls, like jello that has been in the fridge for to long.it also semed that the med was not being trans dermed (lol), for when i took the patch off, my skin was dry.(usually there is med. on your skin when you remove the patch. immediately called my doc, and he rewrote a new scrip for me for the REAL duragesic patches (NO SUBSTITUTIONS).i have recently moved up to 100's and am pain free,(knock on wood). i have spoken with 2 surgeons about surgery, and they won't touch me,(to young they said (49)and am still able to work. Multiple disc surgery fusion is a 60/40 chance of success, and i could come out worse than going in they said. I know several people who opted for surgery, and now are miserable as their procedures didn't work.My insurance does pay for the brand name,and my doctor is more than happy to write my script for the brand name. i feel bad for those of you who have jerks for docs who are afraid to write you the brand because of a potential DEA audit, but if it's legit, they'll have no problems. unless something else is going on you don't know about, and insurance companies should pay for the brand if thats the only one that takes care of your pain.(you'll pay a higher co-pay)unless you are on medicare or medicaid that is, in which case your screwed.good luck all,i hope you find relief somehow.

    Rich

  14. #134
    hdpan is offline New Member
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    My friend just got 10 of these patches 50's....
    I put one on 24 hours later nothing then 2 then 3 it's been 4 days now I ate one and stuck on 4...I didn't feel anything...If your used to taking Narcotics...like oxy 80's 4 or 5 a day or even Methodone 50 mg a day or higher...you won't even feel these things...Sure they are 80 times stronger than Morphine but they don't match the dose like if they give you 10 MG morhphine they don't give you 10 MG of Fentantl it's just a tiny tiny spec of fentanyl you probably couldn't even see it with the naked eye.....

    If your used to Narcotics these things bite...

  15. #135
    malsk1986 is offline New Member
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    the exact same thing happened to me when i woke up after applying those damned things..
    NO GOOD!!

  16. #136
    DeanDAllen is offline New Member
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    I have been using the Duragesic patch for about a year, 5 MG dose every 72 hours, and, especially after reading the posts, I am scared. I never wanted to be addicted to anything, and my doctor at that time was not all that forthcoming about with the withdrawal details. I have tried three times to take myself off these things, but within 12 hours or so get all the withdrawal symptoms, and it's not possible not to put the patch back on. Then it's several hours before I feel "normal" (I haven't actually felt normal since I started using these things.) And-- I have started to notice that I have the pain even when wearing the patch. I'm scared, because I want off it, and I think they may just increase the dose. I followed a link to a place that does a detox thing. Oh NO! It's that hard to get off these things?!? and then what comes after? Are there any effective pain meds that aren't addictive? Has anyone successfully gotten themselves off these patches? To stay on topic, mine fall off. I had some tape left over from dressing my "wound" after surgery that worked well. Hypofix. I'm out, and I guess I will need to look for it. Thanks for the warning about the generics. I am Medi-Medi and things change drastically this January, and I may not be able to afford any of it, then. I am desperate to get past this drug. I would very greatly appreciate hearing from anyone in a like situation, or who knows how to address my issues best. Thank you in advance.
    Dean

  17. #137
    rebmafaith is offline New Member
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    Someone awhile back asked about what to do about breakthrough pain while on the Duragesic patch.

    I've been on and off the Duragesic patch for nearly year. I had to go off of it the first time because I was throwing up and sick to my stomach every day. My body just couldn't adjust to it. So then I switched to the Actiq suckers. The suckers contain the same med as the patch, Fentanyl. For whatever reason, I tolerated the suckers fine even though the dosage of Fentanyl is higher. I used the suckers for about 10 months and then I decided to try the patch again. Right now I'm tolerating the 50mcg every 72 hours just fine. But it's not controlling the pain very well. I suspect that once I get to a dosage that actually handles my pain, I'll start throwing up again. It's frustrating.

    Anyway, right now my doctor is allowing me 6 800mcg Actiq suckers per day to handle the breakthrough pain the patch doesn't help. Between the two, I do OK.

    Is anyone else using the sucker in addition to the patch?

    One big warning about the sucker, though. Each sucker contains 1 1/2 teaspoons of sugar! My teeth are rotting out of my head. I'v had a root canal and two large cavities so far. My pharmacist and my NP never mentioned that this might be a problem. I'm pissed! So now I use a special prescription toothpaste and brush right after taking one of the suckers. I haven't had any other cavities since (cross your fingers). So if you do start using the sucker, be sure to ocnsult with your dentist. I read on their Web site that they are developing a sugar-free version. I can't wait! One other bad side effect has been a large weight gain. Like 45 pounds since I started the suckers 10 months ago. I think getting that much sugar several times a day has messed up my insulin levels. I crave sugar like mad. And anything healthy tastes like **** to me. Not good.

    I've tried so many other drugs. It's so frustrating that nothing works. I once found a drug cocktail that worked well for me, but nobody will prescribe it for me. I talked with my pharmacist about it, and he said there was no reason health-wise I shouldn't be able to take the cocktail. So my guess is that the doctor just doesn't want to do it for liability reasons. Anyway, the cocktail was Vicodin during the day (works great at handling my pain and gives me an energy boost), Methodone at night (also works great at handling my pain but knocks me on my butt, perfect for sleeping) and Actiq suckers for breakthrough pain. I used this cocktail for a month and felt better than I had in years. Oh well.

    I hope that each and every one of you who is suffering in pain can one day live pain-free. Unlike what that other woman said, you DON'T deserve this pain. Anyone who would say otherwise is just plain evil.

    FIBROMYALGIA SUCKS
    Last edited by Anonymous; 07-30-2018 at 04:15 AM.

  18. #138
    moodstar53 is offline Junior Member
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    Hello,
    I'm the so-called "evil person" you refer to. Call me what ever you like, obviously you did not read all the posts which led to this exchange between me and the others who post here. If you had, then you understand how my statement came about. I am no more evil in my statement as the people who verbally attacked me and they did it for one reason only, because I stated that the patch caused my father's death and I, with well intentions tried to tell them to be careful with it. The patch not only sometimes becomes deadly to the elderly, but also to younger people too-- everyone just can;t tolerate it and sometimes they overdose on it. This is why the FDA is investigating the deaths reported, not from abusers, but from people who used it as prescribed. I fault the doctor, not the drug and I have taken actions to hold him accountable. If you want to join the ranks of others who insulted me with their statements, that's your choice. But as I stated earlier, anyone who makes references toward me will get a reply back. I saw what it did to my father, and I will no longer tell anyone on this board about what I saw, so go ahead and use whatever drug you like, that's your choice if you are in pain.

    Good Luck,

    The "Evil" Person
    Last edited by Anonymous; 07-30-2018 at 04:15 AM.

  19. #139
    RONNIE LECKOW is offline Junior Member
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    You know what...you're not evil...just plain stupid! You obviously have no life. You do not use the patch...and have nothing better to do than hover around just waiting for your chance to attack someone who does. We've established a happy family like group at Yahoo, where no one attacks anyone else and people like you are promply asked to leave. Now I realize you might well be hiding in our group under another name...but be assured the first time you open your foul mouth ...you will find yourself out on your ass. So anyone who wants to join us for real friendship, and useful information, please do come and join up. We're duragesicpatchers on yahoo groups.

  20. #140
    moodstar53 is offline Junior Member
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    quote:Originally posted by RONNIE LECKOW


    You know what...you're not evil...just plain stupid! You obviously have no life. You do not use the patch...and have nothing better to do than hover around just waiting for your chance to attack someone who does. We've established a happy family like group at Yahoo, where no one attacks anyone else and people like you are promply asked to leave. Now I realize you might well be hiding in our group under another name...but be assured the first time you open your foul mouth ...you will find yourself out on your ass. So anyone who wants to join us for real friendship, and useful information, please do come and join up. We're duragesicpatchers on yahoo groups.
    And here you are (again)being "nosey" as usual and butting in on my reply to the previous poster. Yes I do have a life, it looks like you don't have one by sticking your nose in on anything I have to say. And I only reply when someone makes reference TO ME, I made that clear a while back and in case you haven't noticed, I haven't posted here until that other person made refernce to me. FOR YOUR INFORMATION, I COULD GIVE A RAT'S ASS ABOUT TAKING THE TIME TO POST UNDER ANOTHER NAME, HOWEVER, I WOULDN'T BE SURPRISED IF IT'S NOT YOU WHO IS USING ANOTHER NAME. I'm beginning to believe that the problem you have with me is that I do not suffer from pain and don't use the patch. However, I guess what I said in my initial post just won't sink in to you and some others. I don't even come to this site until I get the automatic e-mail. You are obviopusly a little dense, or you would know that an e-mail comes when someone posts here, and I have come here and scanned over them and have not replied until the "previous new person" made a reference to me. Talk all the **** you want about me on your other site, I could care less, I'll say it again and maybe it will finally stick, make a statement about me, and you will hear from me on this site. Now move on to your little private site that I haven't lost any sleep over even thinking about, and YOU GET A LIFE!!!!!

  21. #141
    RONNIE LECKOW is offline Junior Member
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    <I do not suffer from pain and don't use the patch.>

    I rest my case!

  22. #142
    moodstar53 is offline Junior Member
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    quote:Originally posted by RONNIE LECKOW

    <I do not suffer from pain and don't use the patch.>

    I rest my case!
    Wonderful!! I hope you continue to "rest your case" and stop butting in with your comments.

  23. #143
    dstaley is offline Junior Member
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    quote:Originally posted by moodstar53

    quote:Originally posted by RONNIE LECKOW

    <I do not suffer from pain and don't use the patch.>

    I rest my case!
    Wonderful!! I hope you continue to "rest your case" and stop butting in with your comments.
    Ok everyone, we all know that there is someone here that doesn't use the medication nor can she give first hand knowledge in areas of keeping it stuck on, etc. She comes back and reads all our posts and checks to see if she's being mentioned. Oh well, I guess it must be better than reading the newspaper. I told you on our list Ronnie that I knew that rebmafaith's post would bring her out of the woodwork so you shouldn't have been surprised. BTW, welcome to the forum rebmafaith! You'll be seeing moodstar53 in action now it seems. Since it was your first post in the forums please don't let her scare you away. She'll get tired pretty soon and move on to monitoring us, as is her self imposed job.

    rebmafaith, we were talking about it on the group and we've not heard of the suckers. For break-through pain huh? Man, they sure have alot of meds that they use for that ..... now if I can only get my so called doctor to prescribe one. But how can you control how many suckers you use per day? Seeing as how these patches that are supposed to last 72 hours but usually last only about 52 or so, I'd be making up for it with alot of suckers which would rot my teeth also!

    Anyway, welcome to the forum and feel free to jump in anytime, and pay no attention to non-users that are such experts in what we go through so they feel they need to monitor us. Her bark is quite entertaining. Ask her anything on topic ..... she's read all the web sites and knows all about our lives with the patches. It doesn't take a rocket scientist to form your own opionion of her.

    Blessings ......
    Dennis

    -----------------------------
    There are obviously two educations. One should teach us how to make a living and the other how to live.
    -- James Truslow Adams
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  24. #144
    Paulie42652 is offline New Member
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    quote:Originally posted by dstaley

    quote:Originally posted by moodstar53

    quote:Originally posted by RONNIE LECKOW

    <I do not suffer from pain and don't use the patch.>

    I rest my case!
    Wonderful!! I hope you continue to "rest your case" and stop butting in with your comments.
    As always, Thank you Dennis for your rational thought. I tend to fly off the handle, dam, I apologize...i think i might have been the one that took a run at you know who in the first place. I feel like I have caused a lot of misery..I APOLOGIZE

    meanwhile, I am feeling good at 50 patches with two percoset at a time for breakthrough,,,and those work better then they have in years I assume from just having my system primed with the fentynal. Anyone else experience that?

    Ok everyone, we all know that there is someone here that doesn't use the medication nor can she give first hand knowledge in areas of keeping it stuck on, etc. She comes back and reads all our posts and checks to see if she's being mentioned. Oh well, I guess it must be better than reading the newspaper. I told you on our list Ronnie that I knew that rebmafaith's post would bring her out of the woodwork so you shouldn't have been surprised. BTW, welcome to the forum rebmafaith! You'll be seeing moodstar53 in action now it seems. Since it was your first post in the forums please don't let her scare you away. She'll get tired pretty soon and move on to monitoring us, as is her self imposed job.

    rebmafaith, we were talking about it on the group and we've not heard of the suckers. For break-through pain huh? Man, they sure have alot of meds that they use for that ..... now if I can only get my so called doctor to prescribe one. But how can you control how many suckers you use per day? Seeing as how these patches that are supposed to last 72 hours but usually last only about 52 or so, I'd be making up for it with alot of suckers which would rot my teeth also!

    Anyway, welcome to the forum and feel free to jump in anytime, and pay no attention to non-users that are such experts in what we go through so they feel they need to monitor us. Her bark is quite entertaining. Ask her anything on topic ..... she's read all the web sites and knows all about our lives with the patches. It doesn't take a rocket scientist to form your own opionion of her.

    Blessings ......
    Dennis

    -----------------------------
    There are obviously two educations. One should teach us how to make a living and the other how to live.
    -- James Truslow Adams
    -----------------------------

  25. #145
    dstaley is offline Junior Member
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    Originally posted by Paulie42652

    As always, Thank you Dennis for your rational thought. I tend to fly off the handle, dam, I apologize...i think i might have been the one that took a run at you know who in the first place. I feel like I have caused a lot of misery..I APOLOGIZE

    Oh no, don't apologize! As I said, she's really quite entertaining! Never used the patch, never had to live with the pain that caused this board to be created .... but never fails to step in right on cue at the mere mention of her name! It's like we can be having a wonderful conversation going on and out of the blue someone says "Moodstar53 bites the Big One" and we get to spend a few days worth of her opinion!

    Think about it, I've even been tempted to just blurt it out at times just to get a rise out of her. So don't apologize, be thankful for people like her. What would life be like without people that can't keep out of conversations whether or not their wanted or have the experiences people are talking about.

    meanwhile, I am feeling good at 50 patches with two percoset at a time for breakthrough,,,and those work better then they have in years I assume from just having my system primed with the fentynal. Anyone else experience that?

    That's wonderful!! I see my doctor next month back in NYC and have to do battle with him. He wants to dump me as a patient because I don't live in the area anymore and he has enough paperwork, so he's pushing the Pain Pump. Bad part is trying to find a surgeon/pain management concern that is willing to take over a failed surgery from another doctor. Especially in my area where everyone is really conservative in their medications. Tell me Moodstar53, how have you handled that? Have you ran into it? [}] (See how fun it is? Even make it big so she can't miss it.) Anyway, I hope to get some break through meds from him before winter starts. According to the Farmers Almanac they're saying it's going to be a very hard winter up in the North East.

    -----------------------------
    There are obviously two educations. One should teach us how to make a living and the other how to live.
    -- James Truslow Adams
    -----------------------------

  26. #146
    moodstar53 is offline Junior Member
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    quote:Originally posted by Paulie42652

    quote:Originally posted by dstaley

    quote:Originally posted by moodstar53

    quote:Originally posted by RONNIE LECKOW

    <I do not suffer from pain and don't use the patch.>

    I rest my case!
    Wonderful!! I hope you continue to "rest your case" and stop butting in with your comments.
    As always, Thank you Dennis for your rational thought. I tend to fly off the handle, dam, I apologize...i think i might have been the one that took a run at you know who in the first place. I feel like I have caused a lot of misery..I APOLOGIZE

    meanwhile, I am feeling good at 50 patches with two percoset at a time for breakthrough,,,and those work better then they have in years I assume from just having my system primed with the fentynal. Anyone else experience that?

    Ok everyone, we all know that there is someone here that doesn't use the medication nor can she give first hand knowledge in areas of keeping it stuck on, etc. She comes back and reads all our posts and checks to see if she's being mentioned. Oh well, I guess it must be better than reading the newspaper. I told you on our list Ronnie that I knew that rebmafaith's post would bring her out of the woodwork so you shouldn't have been surprised. BTW, welcome to the forum rebmafaith! You'll be seeing moodstar53 in action now it seems. Since it was your first post in the forums please don't let her scare you away. She'll get tired pretty soon and move on to monitoring us, as is her self imposed job.

    rebmafaith, we were talking about it on the group and we've not heard of the suckers. For break-through pain huh? Man, they sure have alot of meds that they use for that ..... now if I can only get my so called doctor to prescribe one. But how can you control how many suckers you use per day? Seeing as how these patches that are supposed to last 72 hours but usually last only about 52 or so, I'd be making up for it with alot of suckers which would rot my teeth also!

    Anyway, welcome to the forum and feel free to jump in anytime, and pay no attention to non-users that are such experts in what we go through so they feel they need to monitor us. Her bark is quite entertaining. Ask her anything on topic ..... she's read all the web sites and knows all about our lives with the patches. It doesn't take a rocket scientist to form your own opionion of her.

    Blessings ......
    Dennis

    -----------------------------
    There are obviously two educations. One should teach us how to make a living and the other how to live.
    -- James Truslow Adams
    -----------------------------

    Self imposed jobs?? That's funny, I guess we all have them. Ronnie's, dstaley's and Paulie's self imposed job obviously is to monitor this site and stick your opinions and un-asked for comments when someone new comes on. I haven't even thought about this site or any of you until I get the e-mail, and I do read my e-mail messages, don't you?? Everything was fine until you started again with your little statements. After all, you had your own little private site but I guess you got bored without me being there, so here you are again. I do know FROM EXPERIENCING the agitation from my father before he died that the fentanyl causes all these things, its too bad that those of you who do use it are experiencing it too. Who knows, maybe rebmafaith would not have even mentioned me again, but you three just had to butt in. Boy, I really feel important that you were even discussing me on your other site--so who's doing the monitoring?? Looks like you are. The funny thing is that you say you want to share info about your pain and the patch, but you're really spending as much time with these exchanges with me. You said it best, must be better than reading the newspaper.



  27. #147
    dstaley is offline Junior Member
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    quote:Originally posted by moodstar53

    Self imposed jobs?? That's funny, I guess we all have them. Ronnie's, dstaley's and Paulie's self imposed job obviously is to monitor this site and stick your opinions and un-asked for comments when someone new comes on.
    No ..... we respond to fellow users and will continue to, but you wouldn't understand that. Anyway, let's allow Moodstar53 get the last word in. Let her/him tell us again how if we don't mention her/his name or refer to her/him so that she/he won't step into our conversation but will just set back and monitor everything we say. This Person doesn't use the product but just set's back and waits for someone to mention her/him and jumps in and comments.

    Moodstar53 .... I'll let you get the last word in, gladly, before you tell is more of "we deserve our pain" or that we're not supposed to mention you ever again for the rest of our lives. I think all of us fully understand by now but as a parent I'll gladly let you get the last word in.

    But .... isn't your parent's calling you from upstairs that dinner is ready?? Or is there other forums that you also have to monitor? [}]

    Your turn Moodstar53 .... get in the last word, then go have dinner with the adults of the house. We'll get back to talking about our experiences with Duragesic Patches, you monitor every word we say and maybe you'll learn something you can quote on one of the other forums you bother.

    I think this is some 16 year old kid just out to cause as much trouble as they can myself .... but that's just my opinion.


    -----------------------------
    There are obviously two educations. One should teach us how to make a living and the other how to live.
    -- James Truslow Adams
    -----------------------------

  28. #148
    rebmafaith is offline New Member
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    Moonstar reminds me of Warren Beatty in the song, "You're so vain. You probably think this song is about you." If you'll refer back to my initial post, I never even mentioned Moonstar's name. I think she's getting even more paranoid as time wears on.

    Anywho, back to the topic at hand. I've been on a wide variety of narcotic pain meds for 5 years now because of Fibromyalgia and osteoorthritis. I had a "high tibial osteotomy" on my right knee because of advanced arthritis, but at 34 I was too young for a knee replacement. If any of you are ever offered the chance to get an osteotomy, run the other way!!!! What they did was cut the tibia bone in half right below the knee, then cut a 13-degree chip out of it and clamped it back together. The premise being that they've now shifted your weight from the bad part of the knee to the good part. One of the major problems I had was that the doctor told me and my employer I would be recovered in 6-8 weeks, which was ridiculous. My new knee surgeon tells his patients recovery will be 6-12 MONTHS! I couldn't even drive for 5 months after the surgery. And I've never been in so much pain. Not to mention my leg is deformed now. Plus, the surgeon left the clamp still attached to the bone and it was huge and caused a bunch of other problems. Which necessitated yet another surgery to have it removed by another surgeon. The knee did better for about 6 months after the 3rd surgery, but now the pain is back.

    As for getting my doctor to prescribe the Actiq suckers for break-through pain, I didn't do anything but complain that the patches weren't handling the pain, especially at night. So she offered the suckers. This pain clinic enjoys throwing meds my way, which is why I'm checking out a new pain clinic next month. My goal is and always has been to get off of the drugs. They cause their own host of problems.

    Anyway, I was never a clock watcher until this summer. Due to a number of reasons, I've been having a really bad Fibro flare-up since May. I'm allowed six suckers a day, and I ration them out like bits of gold. Now that I'm back on the patch and increasing the dosage, my doctor is threatening to cut me down to 4 suckers/day. Therefore, I've been avoiding her like the plague. [}] I'll dodge her until she says, "No more meds until you come in for a visit."

    I'm wondering how you got your doctor to prescribe Percocet along with the patch? I would love it if I could use Vicodin in conjunction with the patch. Vicodin is my best friend, and I miss her. I have the best naps on Vicodin. Sleep like a baby! [|)] I'd be interested in hearing from anyone on what, if anything, they take in conjunction with the patch for breakthrough pain.

    Oh, and I've asked my doctor to prescribe me the Duragesic patch again so I can get some more Bioclusives. I've tried a wide variety of medical tapes to keep this patch on, and none work. Since they're so expensive, I think it'll be best if I go back to Duragesic for a month, get the patches, then switch back to generic. Oh, why oh why do we have to play these games?

    FIBROMYALGIA SUCKS
    Last edited by Anonymous; 07-30-2018 at 04:16 AM.

  29. #149
    TimRobo is offline New Member
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    Rebmafaith, check your email. I am emailing you some information I think you will find helpful.

    Tim

  30. #150
    moodstar53 is offline Junior Member
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    No dear, I'm not paranoid, my mind is very clear. Remember, I'm not on the patch and never has been. But, all of you are on a mind-altering drug,so who do you think might be a little paranoid? No, you didn't mention "moodstar", but you did make a reference to the person who said "all of you deserve to be in pain" (the evil lady - that would be me. It amazes me that you never mentioned anything about what my initial post stated. The way that I found this site was by accident when I was looking for info on Duragesic - THE DRUG THAT CAUSED THE DEATH OF MY FATHER. I think you're vain, because unlike a few others early on, you never said anything like "I'm sorry for your loss". You only scanned through and picked one sentence ("You all deserve to be . . .") and you ran with that. I stated ealier that it's all about you, the people who are suffering pain, you really don't think about the many, many people who have been hurt by this drug. Just think back for a minute how you felt when you said it mad you very sick--that's what I'm talking about. Who's vain??? I think we know the answer to that question.
    Last edited by Anonymous; 07-30-2018 at 04:16 AM.

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