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Generic Duragesic patch
  1. #211
    natsmom is offline New Member
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    How long have you been on the Actiq? I have been taking it for about 2yrs. It really works great for me. Truely is a great product knocks the pain out in 10 minutes.Plus I have not had to titrate up from the 400mcg.Started on the 200, went right up to the 400 in 2 months time. 400 is lasting me about 22 months now Do you have a problem with your insurance paying for that. It is much more than the duragesic. I do sometimes get an irritaion from the patch, duragesic or sandoz just a red area aound the patch as if i traced it. Gets very tender at the red area but not inside. Especially if I leave it on for 3 days. Mine are prescribed for every 48 hrs. This is not a very talkative board. Anyone know of one with more messages. Its been days since a post. take care all.
    Margie

    margie

  2. #212
    KDz
    KDz is offline New Member
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    quote:Originally posted by natsmom
    How long have you been on the Actiq?
    * est. 6 months (same as fen-patch); i was on morphine before but as time pasted i was taking more anti-nausa med then morphine, and still nausa. * Great med. works fast {i'm at 10min, also}, what i do not get is that 400mcg Actiq, i tolerate fine i'm compadent and all, but on fen-patch Malan, i fill druged and out of it, just do not fill good.
    * i'v all ways used 400mcg.
    quote: Do you have a problem with your insurance paying for that.
    * At first thy paid none, then thy where paying at a less % then other med's, then i exceded my Med Max Yearly, then they payed @ 100%. NOW i have no med insur. {Husband layed off from work after 10 plus yrs} Started Med.Part B Jan 1, but have not chose a Part D (Drug). i'm on Disablity.
    quote: It is much more than the duragesic.
    * the only time i used duragesic patch was my 'Pain Spec' gave me one. did not adhe to me, had to use tape. it is a battle between adhesion & irritaion {red, itching,...} it is all on the placement. Parts of my back work well.
    quote: I do sometimes get an irritaion from the patch, duragesic or sandoz just a red area aound the patch as if i traced it. Gets very tender at the red area but not inside. Especially if I leave it on for 3 days.
    * i change 48hr to 56hr (i'v been a little over heated for several month use the med up in 38 to 50hr, thats why i had to back down to 25/h, due to Absorbtion) Thankful for Actiq.
    ~KD
    quote:Mine are prescribed for every 48 hrs. This is not a very talkative board. Anyone know of one with more messages. Its been days since a post. take care all.
    Margie

    margie

  3. #213
    akak8 is offline Junior Member
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    Sorry Margie:

    I was with a sick cat most of last week until Monday when it was determined he has neoplasm's growing inside him. We had to put him down. It hit me pretty hard, since he was the last living member of my immediate family besides mom he was 20 years old. Pets are like children with fur.
    Mom just retired on Friday, so we had a little party for her
    I have been busy with a couple webpages, probably not suited for this forum, but getting more into global affairs, its something to do until my shoulder starts screaming, then I go back and read a book. But frankly I'd be happy to sleep most of the day away.

    Today was change the patch day, what I live for until I can get to see a spine specialist on the 25th.
    I have just kept the old patch on, for a little longer (not recommended in the instructions) but I think 50 ml is not enough, and I have to wait to see the new doc to discuss futher options.

    I know the other day the site was acting up and posting duplicate posts, and one ignorant person posted something that triggered my mcaffee and blocked a trojan, not everyone who visits the site is here to deal with their pain management/experience with fentanyl issues apparently, but you have provided good feedback, which I very much appreciate- as well as some others.

    I won't know much else regarding my status and meds until after the 25th, I am curious about the actiq. I am afraid to do certain things because I have little physical support. I use a cane, but because I have a torn shoulder that was never treated in my original injuries,(doctors said it was related to one of my many ruptured discs) putting pressure on the cane is painful, even after I just sat and typed this, now I need a break. I am fairly certain as an informed adult I know the difference between NECK pain and my shoulder and scapula screaming at me.

    I should have been a doctor.

    Peace and best wishes to you.



    ~KD
    quote:Mine are prescribed for every 48 hrs. This is not a very talkative board. Anyone know of one with more messages. Its been days since a post. take care all.
    Margie

    margie
    [/quote]

    kmw

  4. #214
    akak8 is offline Junior Member
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    Server object error 'ASP 0177 : 800401f3'

    Server.CreateObject Failed

    /forum/inc_mail.asp, line 97

    800401f3

    Everytime I post I get this message, yet it sems to go through.

    kmw

  5. #215
    natsmom is offline New Member
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    I am so sorry about your cat. Yes, they are just like children only sometimes even better. I have one siamese and 2 mini dauchund. Most times they are the only ones who understand the pain I am in. This is only my opinion, but I really think you should ask the dr. about the Actiq. It really works well for me with the patch. I hope you are feeling a little better. Talk to you soon.
    Margie

    margie

  6. #216
    natsmom is offline New Member
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    KDz, I was wondering if they (ins) paid for your patch and actiq, because I am thinking I will be on these meds forever and I do worry about what happens when my hubby retires. I doubt I can afford this stuff on our own. thanks Margie

    margie

  7. #217
    akak8 is offline Junior Member
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    Thanks Margie; I appreciate that. I don't think I would have survived with out my furry friends. When I moved home, I had to place 4, but back then, the up keep was brutal. Now we have two, and they understand better than mom.

    I am currently on medicaide, and they do pay for my patch. I have applied for disability, but they always deny first time around apparently.
    My disability attorney said I was in far worse condition than some of his clients, who were granted disability. Yet I have two factors working against me, my age (41) and the fact that I carry myself very professionally when sitting and speaking,(of course until I can't get up from my chair) and seem very educated. (I am autodidactic, no formal education further except what I taught myself) I will say, the down side to fentanyl is my spelling and typing but when I was given topamax in an attempt to control nerve pain, it was much worse.

    Mind you, at current the new medicare part D is hitting snags nationally. I suspect when they get it together, I don't see why they wouldn't pay for it. I get Newsletters from the American Pain Foundation

    NBC just did a 4 part series on pain; Below is an excerpt from the newsletter:

    NBC Nightly News Highlights Series on Pain -
    The Mystery of Pain: Treatment & Hope

    We hope that you were able to view NBC Nightly News’ series on pain. Reported by Robert Bazell, NBC’s Chief Science & Health Correspondent, the Nightly News began a four-part series "The Mystery of Pain" on Tuesday, January 3, 2006. The series concludes tonight with a look at whether pain relief is a question of mind over matter. Information about the series, videos and interactive tools are also available on the MSNBC website.

    Please write to NBC to thank them for their continuing attention to this public health crisis.



    It is encouraging that chronic pain and managing it is becoming more an openly discussed issue.

    ~Katie




    quote:Originally posted by natsmom

    I am so sorry about your cat. Yes, they are just like children only sometimes even better. I have one siamese and 2 mini dauchund. Most times they are the only ones who understand the pain I am in. This is only my opinion, but I really think you should ask the dr. about the Actiq. It really works well for me with the patch. I hope you are feeling a little better. Talk to you soon.
    Margie

    margie
    kmw
    Last edited by Anonymous; 01-22-2016 at 12:35 AM.

  8. #218
    Mr George is offline New Member
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    I have a question for anyone. My pain mgmt doctor wants me to stop using the duragesic 50 patch. I have been on it for over a year and started before that with the duragesic 25 patch. This doctor doesn't like the drug and he wants to have me stop using it. I really have not had any relief and am sitting here hurting and wearing the patch.

    Although for the last few months I have not been feeling at all good. I feel like I have the flu constantly and have been either freezing or sweating profusely. Don't know if that has anything to do with the patch or not.

    Anybody have any information on what to expect when I stop using the patch? I am really worried about it and actually making myself sick with the worry now about not using it. I am so afraid of the withdrawal from it. What has anyone else experienced with getting off of it.

    Thanks,

  9. #219
    akak8 is offline Junior Member
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    as they told me...find a new doc. My new primary doesn't like it either, but no other conservative means except narcotic worked for pain, so now I am going to see if I am a surgical candidate.
    What you described Although for the last few months I have not been feeling at all good. I feel like I have the flu constantly and have been either freezing or sweating profusely.
    if exactly what to expect from withdrawal.
    There is "stigma" with certain narcotic drugs, and duragesic/fentanyl had some legal issues because a particular stock of the 75 mg. patch was leaking, and over medicating.
    I really think taking you off is a bad call, not only do doctors fear addiction, they often don't know how the mechanics of the drug work. I got myself off percocet once, and was back in miserable pain, of course we tried everything. I am curious to see what the new doctor I am seeing next week will have to say.
    They obviously need to be informed about proper titration and provide an equivicable alternative solution for the pain.
    I am sorry you have to go through this and perhaps you can find a second opinion. I am a petite woman on 50 ml, and that doesn't always help. I would imagine a man might need a higher dose, based soley or proportion/size, nothing to do with gender.
    Let me know how its going...
    ~k



    quote:Originally posted by Mr George

    I have a question for anyone. My pain mgmt doctor wants me to stop using the duragesic 50 patch. I have been on it for over a year and started before that with the duragesic 25 patch. This doctor doesn't like the drug and he wants to have me stop using it. I really have not had any relief and am sitting here hurting and wearing the patch.

    Although for the last few months I have not been feeling at all good. I feel like I have the flu constantly and have been either freezing or sweating profusely. Don't know if that has anything to do with the patch or not.

    Anybody have any information on what to expect when I stop using the patch? I am really worried about it and actually making myself sick with the worry now about not using it. I am so afraid of the withdrawal from it. What has anyone else experienced with getting off of it.

    Thanks,
    kmw

  10. #220
    natsmom is offline New Member
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    George, I really think you do need to find a new pain doc. I am on the 50mcg patch and my pain spec put me on the Actiq lollipop for breakthru pain. This is probably what you are going thru. If he insist on stopping the patch make sure he titrates you down properly or you will have withdrawals. Also, find out just how he plans on treating your pain. Margie

    margie

  11. #221
    Mr George is offline New Member
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    Guys,

    Since Thursday I have been hurting. I have not been to sleep and I am desperate.

    I am nausous and sweating and freezing at the same time. My clothes are literaly drenched with sweat yet I have goose bumps from freezing and this is all at the same time.

    I have tossed and turned and last night I sat up in bed and just was thinking I could go take an overdoes of drugs and get out of this.

    My concern is this the patch doing this. I put a new one on Friday night and then I didn't sleep but itched for 12 hours and did the freezing / sweating stuff. What is happening?????

    I can't take much more of this. Can anyone help me here?????

  12. #222
    akak8 is offline Junior Member
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    Thats no way to live, and that is the horrendous withdrawal of opiates. I would go to a hospital; at least they could perhaps either detox you appropriately, or go to another doctor who might be willing to give your something else. Taking an OD is not an option, okay George, been there thought that myself, NO. Don't go there.
    Seek professional help [u]first</u>

    Opiate withdrawal is NOT FUN. But you don't have to go through it with out proper medical care; but the fact that you are in pain lends me to believe you don't have any business being off the narcs for your pain.

    I hope you can find some resources to get more comfortable.
    There has to be another solution for you than to go through withdrawal.

    Worst case scenario, I'd check into a hospital (if you are going to detox), or find another doc and get another opinion, if you are still having pain.

    Thats just crazy for a doctor to allow you to go through that, and hardly professional if he's not giving you something else to replace the medicine he's taking you off of.

    Hang in there, and please seek further help. There is no reason for you to go through this.

    ~k




    quote:Originally posted by Mr George

    Guys,

    Since Thursday I have been hurting. I have not been to sleep and I am desperate.

    I am nausous and sweating and freezing at the same time. My clothes are literaly drenched with sweat yet I have goose bumps from freezing and this is all at the same time.

    I have tossed and turned and last night I sat up in bed and just was thinking I could go take an overdoes of drugs and get out of this.

    My concern is this the patch doing this. I put a new one on Friday night and then I didn't sleep but itched for 12 hours and did the freezing / sweating stuff. What is happening?????

    I can't take much more of this. Can anyone help me here?????
    kmw

  13. #223
    Paulie42652 is offline New Member
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    George, what part of the contry are you in? maybe one of us knows of a resource near you. I know if you were in new england i could rattle off a few places that would be quite a bit of help, at least in the long term if not short. Tell us approximately your location, see if we can help...

    Paul


    quote:Originally posted by Mr George

    Guys,

    Since Thursday I have been hurting. I have not been to sleep and I am desperate.

    I am nausous and sweating and freezing at the same time. My clothes are literaly drenched with sweat yet I have goose bumps from freezing and this is all at the same time.

    I have tossed and turned and last night I sat up in bed and just was thinking I could go take an overdoes of drugs and get out of this.

    My concern is this the patch doing this. I put a new one on Friday night and then I didn't sleep but itched for 12 hours and did the freezing / sweating stuff. What is happening?????

    I can't take much more of this. Can anyone help me here?????

  14. #224
    Mr George is offline New Member
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    I am in Phoenix AZ. Have you just been to the end of the rope. I am there right now only holding on by a thread.. I just don't know what to do. The dr has not started taking me off yet, I still have a 1 month prescription at home but I am still having all of these side effects. This starts to happen after the 1st day. I put a new patch on this morning at 5:30 AM and it is now 11:14 AM and I am just now starting to feel like I am going to be okay for right now. My back is still hruting but I am not sweating or freezing or nausausious right now. That will probably come back by tomorrow. It is just like a viscious circle with no relief.

    Whatever you can tell me what to expect with withdrawal symptoms. What are they and how long do they last? My mind is going nuts.

    Thanks for your help I really really appreciate your help. I am just so desperate right now. I can't believe I really do think about OD and just getting out of this pain and this drug thing all together. I can't live like this and really the way things are going I don't want to live like this.

    Thanks again. I have no body that I can talk to about any of this.

    Thanks, Thanks, Thanks

  15. #225
    Paulie42652 is offline New Member
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    I would be very very very surprised, if anyone who visits this board because they use this medicine, has not been at the end of or beyond the end of the their rope..at least a few times...Do Not Do IT!

    You need a new doctor, and you need to see someone very very quickly, straighten out your medicines, so you can get yourself grip.

    I am not familiar with the phoenix area, but one of the hospitals must have a pain clinic or a pain specialist, i went through a clinic and it was great, it really was, those guys know these medicines, clinic i went to, Brigham and Womans hospital in Boston was fabulous. They do not write the prescription, they will tell your primary what you need, and you should not pick a doctor that is not willing to go along with the opinion of the pain experts....

    Hang Tough!


    quote:Originally posted by Mr George

    I am in Phoenix AZ. Have you just been to the end of the rope. I am there right now only holding on by a thread.. I just don't know what to do. The dr has not started taking me off yet, I still have a 1 month prescription at home but I am still having all of these side effects. This starts to happen after the 1st day. I put a new patch on this morning at 5:30 AM and it is now 11:14 AM and I am just now starting to feel like I am going to be okay for right now. My back is still hruting but I am not sweating or freezing or nausausious right now. That will probably come back by tomorrow. It is just like a viscious circle with no relief.

    Whatever you can tell me what to expect with withdrawal symptoms. What are they and how long do they last? My mind is going nuts.

    Thanks for your help I really really appreciate your help. I am just so desperate right now. I can't believe I really do think about OD and just getting out of this pain and this drug thing all together. I can't live like this and really the way things are going I don't want to live like this.

    Thanks again. I have no body that I can talk to about any of this.

    Thanks, Thanks, Thanks

  16. #226
    akak8 is offline Junior Member
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    I know the end of my rope all too well.
    I had a doc take me off xanax in 1995, and my body quickly educated the medical community why you never do that, when I broke into seizures and started flipping around on my bed like a fish out of water. Benzo withdrawal can kill you, opiate withdrawal makes you feel like its going to kill you.

    Before my neurologist put me on fentanyl I was given minimal pain medicine and was in screaming pain all the time. The fantanyl has helped significantly, but not entirely; but the screaming headaches came cack this week and I am grateful I'll be finally meeting with a surgeon Weds. I have severe c-spine compression (and the rest of my spine is all messed up) but the c-spine seems to have gone back to encroaching on a few nerves, and suspectedly inhibits blood flow to my head, so while I am having screaming pain, I fear I'll also have a stroke.

    Back to you, I've only visited the Pheonix Area a few times, so I know only of places for those recovering from the chemicals that we are now on, and one doc wants to get you off. Depending on your insurance works, can you not get another pain management doc?
    Can your primary or any other specialist verify that you have significant pain and need to NOT be off the meds?

    I am a recovering person, so I got a great deal of flack for being on narcotic medicines, but to me its no different than taking my blood pressure meds. The patch just works on pain, and doesn't give me the buzz I used to get from other opiate meds, so I actually prefer it.

    My experience with getting off percocet was; it lasted about a week and I was sicker than hell, and excuse me, spent alot of time in the bathroom, so I got some immodium. Anxiety is no joke. You won't lose your mind, but you will feel like it. Still, I see no reason you have to go through it like this!
    This titration seems fast, I tink what I heard you say is you were on 50 and now 25, correct? Thats still a bit of a jump for a titration, but I know the patches only come in certain strengths; that being the case you doc should have added something else to slow the process;

    BUT my personal opinion is if you are having a severe amount of pain, there is no reason to come off it and find another doctor.

    Only you know your level of pain, the doctor doesn't and they need to hear, when they are listening to us the exact nature of our pain. (I have read all my doctors reports so I know how well they DON'T listen sometimes)

    If your doc negates your level of pain; then see another. You know your own truth.
    I've even reported ignorant doctors, so I will go to any length to be heard when I have severe pain, and ever since I had an accident 2 years ago next week, my life has never been the same. I am not able to work now, so I had to give up everything and move back home with mom.
    It was a humble jump from taking off to Europe as I pleased before the accident, to being profoundly grateful my mom is here to help me with basic activities of daily living.

    I am sorry I rambled a bit George, but I am concerned about this for you; and medically, I feel there is no reason you have to suffer through this.

    Katie





    quote:Originally posted by Mr George

    I am in Phoenix AZ. Have you just been to the end of the rope. I am there right now only holding on by a thread.. I just don't know what to do. The dr has not started taking me off yet, I still have a 1 month prescription at home but I am still having all of these side effects. This starts to happen after the 1st day. I put a new patch on this morning at 5:30 AM and it is now 11:14 AM and I am just now starting to feel like I am going to be okay for right now. My back is still hruting but I am not sweating or freezing or nausausious right now. That will probably come back by tomorrow. It is just like a viscious circle with no relief.

    Whatever you can tell me what to expect with withdrawal symptoms. What are they and how long do they last? My mind is going nuts.

    Thanks for your help I really really appreciate your help. I am just so desperate right now. I can't believe I really do think about OD and just getting out of this pain and this drug thing all together. I can't live like this and really the way things are going I don't want to live like this.

    Thanks again. I have no body that I can talk to about any of this.

    Thanks, Thanks, Thanks
    kmw

  17. #227
    Mr George is offline New Member
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    thanks for the imput guys. I am really grateful.

    I finally got some sleep last night. I took 2 Lyrica and 2 Tylenol PM's and went to sleep. That and a combination of being exhausted I slept and didn't even move. When the alarm went off this morning the sheets were just like I laid down on them. Now I have a "hang over" headache.

    The next step is they called me from the Pain Management Center and want me to see the Psychologist today at 4. Okay now I am crazy like my husband has kept saying I am. He got a good laugh about that one. He said well now they will tell you "you are depressed and your back hurts." Okay they probably will because at this stage of my life I think I may be getting that way. I don't have a clue what to expect there.

    I put this new patch on Monday AM and now it is Tuesday AM and I am starting to get the sick feeling of nausious and a little of the sweat and freezing going on. That is not so bad but if things are the same as they have been for the last few months that will start by the end of the day today. I just am so tired of being sick like this. I think it may be the patch for me. Either it is not working enough or maybe I am sick with it on. I can't tell for sure. I do know that my back is still hurting even with it on so I don't know what to say to the doctor.

    I am so afraid of coming off the patch from what I have read you are very very sick and this is just the tip of the ice berg so to speak. I hate the thought of being sicker than what I am now. I am afraid to talk to the dr about this because I don't know what to expect and I don't think he does either.

    This is just rambling because I am so afraid right now I don't know what to do and the easy way out always looks the best right now. I know that you all know what pain is and there are no buts about it "but" I don't know what to feel the pain or the sick.....

    Thanks again for your response and I am looking for all of the help I can get. Thanks,

  18. #228
    akak8 is offline Junior Member
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    First, let me apologize for assuming you were a man, by your name. I generally don't look at profiles, unless someone is annoying. []

    I have depression too, but I know the difference between pain and depression. I think we're all a little crazy in some respect, so don't worry about that. I always say "I am here because I am not all there" but then I lived through years of tragedy, trauma and abuse.
    After 26 years of therapy, I know the difference between my pain and my depression.

    The fact that I can't have the freedom and independence I used to because my life is riddled by pain is depressing, so its a catch 22.

    What I hear you saying is that your pain doc is negating your pain, and thinks you should have a psych eval. I little therapy never hurt anyone, but there are antidepressants that have off lable uses for chronic pain. They tried them all on me, it didn't work for pain.
    Perhaps that is the course of action they want to try for you, I don't know your entire history, so its just a "by experience guess"

    I am glad you got some rest, because that will make me nutty in a heartbeat. What happened to cause you this pain, that led you to be put on fentanyl?

    ~k



    quote:Originally posted by Mr George

    thanks for the imput guys. I am really grateful.

    I finally got some sleep last night. I took 2 Lyrica and 2 Tylenol PM's and went to sleep. That and a combination of being exhausted I slept and didn't even move. When the alarm went off this morning the sheets were just like I laid down on them. Now I have a "hang over" headache.

    The next step is they called me from the Pain Management Center and want me to see the Psychologist today at 4. Okay now I am crazy like my husband has kept saying I am. He got a good laugh about that one. He said well now they will tell you "you are depressed and your back hurts." Okay they probably will because at this stage of my life I think I may be getting that way. I don't have a clue what to expect there.

    I put this new patch on Monday AM and now it is Tuesday AM and I am starting to get the sick feeling of nausious and a little of the sweat and freezing going on. That is not so bad but if things are the same as they have been for the last few months that will start by the end of the day today. I just am so tired of being sick like this. I think it may be the patch for me. Either it is not working enough or maybe I am sick with it on. I can't tell for sure. I do know that my back is still hurting even with it on so I don't know what to say to the doctor.

    I am so afraid of coming off the patch from what I have read you are very very sick and this is just the tip of the ice berg so to speak. I hate the thought of being sicker than what I am now. I am afraid to talk to the dr about this because I don't know what to expect and I don't think he does either.

    This is just rambling because I am so afraid right now I don't know what to do and the easy way out always looks the best right now. I know that you all know what pain is and there are no buts about it "but" I don't know what to feel the pain or the sick.....

    Thanks again for your response and I am looking for all of the help I can get. Thanks,
    kmw

  19. #229
    Mr George is offline New Member
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    k

    thanks so much and you were right to assume I was a man with the name. Actually that is my cats name but also they board wouldn't let me use my real name, which is Beth. They said it was in use.

    You know that is the crazy thing I don't know what I did to actually make my back hurt when it started over 2 years ago. I was in a terrible auto accident in 1975 and then later I fell really hard and hurt it when I was skating. Nothing that I can pin point that made this start the way it did.

    I have been thru all kinds of stuff PT and drugs and it still hurts. I just had those lumbar injections 2 weeks ago and I thought that it would help but it is still hurting. Now what I don't want the dr to think is I am in this for drugs and that makes me afraid to tell him that it still hurts. When I went back in last week for a check up he gave me 2 more injections in my back and hip and they seemed okay for a few days but now any more. It was just temporary.

    This patch has been a good thing in one way but I don't know what is causing this reaction that is getting worse every 2 days. This dr doesn't like the patch but I don't know what else we are going to do if he takes it away and yet I don't want to keep feeling like this every second day. Does that make sense. I get really 1 good day and the 2nd day is okay in the beginning and then gets bad as it goes along. I like to put a new patch on in the morning because that gets the majority of the itching out of the way before I have to go to bed.

    I don't know about the Lyrica that he has me on now. I have a hard time taking it and going to work. I am too tired in the morning to take the second dose and yet he seems to think I will be okay if I just get it in my system for a few weeks. Now the bad thing about that is what do I do for those few weeks when I have to go to work. Will that be able to take over where the patch would be if he takes that away. I just don't know and I don't want him to think I just want the drug. In fact when he asked me the other time if I wanted something else for the breakthru pain I said no. I don't want to keep taking stuff and end up a zombie.

    I already don't have a life other than work. I never want to do anything anymore. We went out to dinner last Sunday and just riding for any length of time is awful and sitting down in one spot for long is awful too. I don't have the desire to do anything anymore. The only thing that I still do is read. I can hardly make myself do the housework anymore and I am a fanatic about the house and any dust. I just don't care about anything anymroe. If I could stay in bed all day and night I would. I can't believe I went from someone that did it all to this. My daughter and granddaughter were going to come out to visit and I told them I didn't think it would work out I just can't seem to have the energy to visit. I have even not been going to church much because I just can't get myself to get up and go.

    I am 53 in a couple of months and I feel like I should be over 90. Oh well may this person today will tell me something I don't know but I doubt that. I guess that is a bad attitude to start with. Just am so discouraged.

    Thanks so much again for your reply.

  20. #230
    mpvt is offline Advanced Member
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    It would seem that your doctor is running out of treatments for you so the next step is to send you to the pain clinic.They will get to the cause of your pain and treat it.As for now, I would tell your doctor the truth and that is the injections work for a couple of days and your back to square one.I would also give the patches a chance to work,they come in 4 different strengths 25,50,75 and 100mcgs.The patches have fentynal(sp) in them,they use fentynal in surgeries all the time,it's a very powerful pain killer.Maybe you can suggest the pain clinic to your doctor kind of break the ice or plant the seed so to speak.Good luck and let us know how you make out......Dave

  21. #231
    akak8 is offline Junior Member
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    If you have sustained injuries, I can see the legitimate result of long term pain; I am 41 (just turned 41 in November), and with my injuries was discovered degenerative osteo artrhritis, normal for my age, but also too advanced for my age, with the doctors surmising that the disc herniations (there are 6 or 7 at least to date) and the blunt force trauma my body endured brough on an otherwise asymptomatic condition.

    I had ESI (injections) in my neck and low back. They made me look like the pillsbury dough girl, then to find out the drug injected was not to be used for epidural steroidal injections; so now I have further exacerbated nerve pain to content with.

    The Lyrica is to work on nerve pain; they tried me with neurontin, pamalor and topamax to no avail and funky side effects.

    Tomorrow I go to a new doctor and I am very curious his course of action. If it were up to me, based on my experience with some doctors, I'd get treated in Europe, but I happened upon a German doctor at University of Penn.

    I am about to change primary doc's as well since my primary doesn't think I should be on anything "addictive"
    I hate ignorant mentality, and this doc certainly has it. I don't abuse a little plastic patch, although its efficacy wears off in 48 hours, and I experience similar beginnings of WD.

    I still have a screaming shoulder injury that is beckoning me to get off the computer, but was never treated...because they said it was related to my neck.

    I really have come to full conviction, that when it comes to my medical tx, I have to be my own best advocate, and informed.

    I have met some really dumb doctors in my day, the worst put me on 50 mg of vioxx knowing I had early stages of heart disease, high blood pressure and peptic ulcer disease.I only ever took 1/4 of the pill for a short time and started going into heart failure, and of course had internal bleeding.

    This has been a humble process. I had a house full of furry children (cats)I had to find homes for and move back home with mom. I got to keep two, and we had a 20 year old, who just passed this month on the 9th.

    Pain is no joke and as I have written in other posts, I have appreciated the newsletters I get from American Pain Foundation.
    At least they have a clear perspective of pain, and work towards approving legislation, and informing doctors about appropriate pain management.

    I think it should be mandatory protocol for all doctors to attend. I don't tolerate over the counter meds. I told my neurologist one day I took Ibuprofen...he yelled at me- Don't you know you'll bleed out?
    yes, I certainly did. So, I found one good doc, but he doesn't take my insurance. I can't afford to pay cash anymore so I have to start using docs that take my ins, and so far...the first impression has been not so hot.
    I am keeping an open mind for tomorrow.
    Hang in there, you've certainly sustained enough trauma to need long term management, but I think your pain management doc is making a bad "alternative choice call"...just my opinion.
    Katie


    quote:Originally posted by Mr George

    k

    thanks so much and you were right to assume I was a man with the name. Actually that is my cats name but also they board wouldn't let me use my real name, which is Beth. They said it was in use.

    You know that is the crazy thing I don't know what I did to actually make my back hurt when it started over 2 years ago. I was in a terrible auto accident in 1975 and then later I fell really hard and hurt it when I was skating. Nothing that I can pin point that made this start the way it did.

    I have been thru all kinds of stuff PT and drugs and it still hurts. I just had those lumbar injections 2 weeks ago and I thought that it would help but it is still hurting. Now what I don't want the dr to think is I am in this for drugs and that makes me afraid to tell him that it still hurts. When I went back in last week for a check up he gave me 2 more injections in my back and hip and they seemed okay for a few days but now any more. It was just temporary.

    This patch has been a good thing in one way but I don't know what is causing this reaction that is getting worse every 2 days. This dr doesn't like the patch but I don't know what else we are going to do if he takes it away and yet I don't want to keep feeling like this every second day. Does that make sense. I get really 1 good day and the 2nd day is okay in the beginning and then gets bad as it goes along. I like to put a new patch on in the morning because that gets the majority of the itching out of the way before I have to go to bed.

    I don't know about the Lyrica that he has me on now. I have a hard time taking it and going to work. I am too tired in the morning to take the second dose and yet he seems to think I will be okay if I just get it in my system for a few weeks. Now the bad thing about that is what do I do for those few weeks when I have to go to work. Will that be able to take over where the patch would be if he takes that away. I just don't know and I don't want him to think I just want the drug. In fact when he asked me the other time if I wanted something else for the breakthru pain I said no. I don't want to keep taking stuff and end up a zombie.

    I already don't have a life other than work. I never want to do anything anymore. We went out to dinner last Sunday and just riding for any length of time is awful and sitting down in one spot for long is awful too. I don't have the desire to do anything anymore. The only thing that I still do is read. I can hardly make myself do the housework anymore and I am a fanatic about the house and any dust. I just don't care about anything anymroe. If I could stay in bed all day and night I would. I can't believe I went from someone that did it all to this. My daughter and granddaughter were going to come out to visit and I told them I didn't think it would work out I just can't seem to have the energy to visit. I have even not been going to church much because I just can't get myself to get up and go.

    I am 53 in a couple of months and I feel like I should be over 90. Oh well may this person today will tell me something I don't know but I doubt that. I guess that is a bad attitude to start with. Just am so discouraged.

    Thanks so much again for your reply.
    kmw

  22. #232
    Mr George is offline New Member
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    Hello,

    Well, last night I went to see the psychologist. What a waste of time. She talked to me abuot 15 min and then said she had to go and handed me 1 month supply of pills. Right now I can't remember the name of them and said I was depressed. The most of out her mouth was "cronic pain causes depression and you are depressed." "here take these for a month and call me back." Well needless to say I didn't take any and I don't know if I am going to call her back. I don't need more pills I don't think. I was reading the back of the package and they said they may cause suicidal thoughts and does increase sweating. Well heck I do that all by myself why take a drug to induce it.

    I did the same thing last night as the night before and took the 100 mg of Lyrica and 2 Tylenol PM and went to bed and slept the entire night. I must have gotten up to get a drink and maybe go to the bathroom but I don't remember if I did. That is the scarey part. I woke up about 10 min before I was supposed to get up. I am sitting here yawning all morning but I am up and made it into work. So far no headache like yesterday. That is good news.

    I have another appt with the pain management dr in 2 weeks and I am going to tell him like you said that the shots worked for a couple of days and then it is back to square one. I don't think I want any more of them. What does anyone think of just keep getting them.
    If I am going to do that I need something that will last a lot longer than a few days. Does anyone know if the lumbar injections into the nerves is a temp or perm thing? Somebody said they are temporary and can last up to 6 months but not permanently. If that is the case why do that too. It was extremely painful for that injection.

    Talk to you all later and thanks for all of your help.

    Beth

  23. #233
    mpvt is offline Advanced Member
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    The doctor can only give you so many shots in your back.When I was having my injections they said they couldn't do any more than 3 a year because it increases the chances of cancer.So what you need is pain management and hopefully your doctor will agree and put you on a pain medication schedule.Good luck and let us know how your doing.......Dave

  24. #234
    akak8 is offline Junior Member
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    The injections also can cause futher degeneration, weakening of the joints, and for me, I blew up like a friggin balloon.
    Everyone thought I was pregnant because I packed on weight real fast.
    So todays doctors visit was basically this; They could do surgery, which would not be a simple procedure, it would be major surgery and he could not guarantee it would help the pain, which is the second time I have heard this....so basically the bottom line is stay the way things are, and live with it, go see another pain specialist, and just learn to live with it.
    Am I miserable about this? Yep.


    quote:Originally posted by Mr George

    Hello,

    Well, last night I went to see the psychologist. What a waste of time. She talked to me abuot 15 min and then said she had to go and handed me 1 month supply of pills. Right now I can't remember the name of them and said I was depressed. The most of out her mouth was "cronic pain causes depression and you are depressed." "here take these for a month and call me back." Well needless to say I didn't take any and I don't know if I am going to call her back. I don't need more pills I don't think. I was reading the back of the package and they said they may cause suicidal thoughts and does increase sweating. Well heck I do that all by myself why take a drug to induce it.

    I did the same thing last night as the night before and took the 100 mg of Lyrica and 2 Tylenol PM and went to bed and slept the entire night. I must have gotten up to get a drink and maybe go to the bathroom but I don't remember if I did. That is the scarey part. I woke up about 10 min before I was supposed to get up. I am sitting here yawning all morning but I am up and made it into work. So far no headache like yesterday. That is good news.

    I have another appt with the pain management dr in 2 weeks and I am going to tell him like you said that the shots worked for a couple of days and then it is back to square one. I don't think I want any more of them. What does anyone think of just keep getting them.
    If I am going to do that I need something that will last a lot longer than a few days. Does anyone know if the lumbar injections into the nerves is a temp or perm thing? Somebody said they are temporary and can last up to 6 months but not permanently. If that is the case why do that too. It was extremely painful for that injection.

    Talk to you all later and thanks for all of your help.

    Beth
    kmw

  25. #235
    akak8 is offline Junior Member
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    Tonight on 60 Minutes, Sunday, Jan. 29, 7PM ET/PT on CBS. they will be airing “PRISONER OF PAIN” to recap the highlights of the show:
    "Everyone deals with pain differently: one person’s minor ache is another’s agony. So it’s not surprising that treatment for chronic pain remains a medical mystery. The main relief comes from a variety of drugs, drugs that are often abused by addicts and have their own international black market. As a result, doctors tend to under-prescribe pain killers, and patients are also often under suspicion when they try to alleviate unrelenting pain. But are the authorities overzealous in going after doctors and patients who are abusing the pain medication? Morley Safer looks at this complicated issue through the case of one man now serving 25 years in prison as a result of his attempt to deal with his chronic pain on this week’s 60 Minutes, Sunday, Jan. 29, 7PM ET/PT on CBS."

    Tuesday January 31st at 8:00 pm EST, Candace Coggins, M.S., M.A., CARN, NP, will dialogue online, focusing on the topic: Preventing or Managing Side Effects for People with Pain.

    Candace Coggins is a Nurse Practitioner with certification in Pain Management Nursing (RN, C) and also Addictions Nursing (CARN). She is currently serving as President of the American Society for Pain Management Nursing, and sits on the Board of Directors for the New York State Pain Initiative. Ms. Coggins has more than thirteen years of experience in pain management and palliative care including inpatient, ambulatory and home-based care. She has more than ten years of VA service, and is currently the Coordinator of Pain Management at the Veteran Affairs New York Harbor Healthcare System in New York City. Her commitment to the VA is deeply rooted, having grown up in a military family. She went into Nursing as a result of experiences serving in Vietnam (1968-69), and her sister served as a flight nurse in Desert Storm.

    Candace says, “Achieving the best quality of life despite pain involves appropriate and timely care. Too often patients and their families suffer enormously as they seek to be believed , understood and helped. Gaining access to care means not only treating the problem of pain but also anticipating, pre-empting and managing side-effects related to medications, activities, disease progression or interventional treatments. Learning a few management strategies and sharing pointers for negotiating the healthcare system can make the difference between adequate versus optimal care.”



    [8D]
    Katie





    kmw
    Last edited by Anonymous; 01-22-2016 at 12:35 AM.

  26. #236
    kytana is offline New Member
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    Hi I just wanted to throw my couple of cents in here.lol..

    Mr George or Beth, I was reading your posts and you had mentioned that you hadn't had any recent accidents or anything to cause your back pain. I was wondering if the doctor checked you for any kind of disc damage or pinched nerves? I have a *spur* on my spinal column that repeatedly hits/pinches my sciatic nerve and the pain runs from my lower back down my left leg. Now it's starting to hurt on my right side too. I had a scan or xray (I can't remember which one now) and they found it after I kept complaining of back pain. They had me on vicodin and percocet and darvocet before finally putting me on the patch. I am on 50's and sometimes I will itch all night after having it on for a few hours. I also get nauseated and have headaches, but, I can walk most of the time without being in excrutiating pain so for me, the side effects are worth it. Hang in there, and don't give up until you can find a doctor who will listen to you. Good luck and take care.

  27. #237
    Mr George is offline New Member
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    Hello Again,

    I have another question. Today I had to change the patch, I got up and changed it while I was getting ready for work.

    BUT during the night last night I started again with the sweats/freezing nightmare. Nightmare is what I can describe it. It is terrible to feel like this and then I am queesy in the stomach all morning.

    This is just nuts I didn't have it for the last 5 days and with that time frame I have had to change the patch already so what in the world could cause this to just come on like this?

    I am going to talk to my dr this next visit on 2/7 and I am going to show him the research that I found on Fibro. I am everything it mentioned and have been for years. Even as far back as being a teenager (I am 52 now) that I can remember some of this stuff going on just not as bad.

    Do you think that this sweating/freezing nightmare (daymare now that it is the morning and I am at work and it is still happening)has anything to do with that or something else.

    Very curious to see what anyone has to say.

    Hugs,
    Beth

  28. #238
    russery is offline New Member
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    Hello all,

    I too suffer from chronic pain and up to recently was taking 180 mg oxycodone (45mg 4x daily) my doc switched me to the fentynal patch. I had tried it a couple of years ago but was on a different insurance and could not afford to pay the 25% copay.Now I pay only 10-20 dollarsdepending on namebrand or generic.

    I went with the generic this time and noticed that it does not seem to be as strong as Duragesic was. Anone else see this effect?



    regards
    robert
    Last edited by Anonymous; 01-22-2016 at 12:36 AM.

  29. #239
    Sportfisherman is offline New Member
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    Can someone please answer this question for me? The Dr. has prescribed Duragesic 25, but didn't really give me any info. Should I wait to put the patch on until maybe the next day after I have taken a few lortab? Or put it on right away? Not sure how quick it begins to work and don't want to risk an overdose. But I don't want to risk going into withdrawals either. Does anyone know how quick the patch begins to work? Thanks

  30. #240
    pharmd06 is offline Member
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    fisherman-
    place the patch as soon as possible. i can take up to 24hr to get benefit. the sooner you place it the less likely you will need to take the lortab

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