Page 17 of 24 FirstFirst ... 71516171819 ... LastLast
Results 481 to 510 of 693
Like Tree17Likes
Want off Suboxone
  1. #481
    farmingmom is offline Junior Member
    Join Date
    Oct 2010
    Posts
    49

    Default

    Yes, he has always been very sensitive to the cold. Dreaded winter. Said it made him feel like an old man. When he was a teen he played on the tennis team, and the nights that they had to play in the cold were murder for him. His legs, joints from hips to ankles are affected. Not so much any other joints.

  2. #482
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    Quote Originally Posted by farmingmom View Post
    Yes, he has always been very sensitive to the cold. Dreaded winter. Said it made him feel like an old man. When he was a teen he played on the tennis team, and the nights that they had to play in the cold were murder for him. His legs, joints from hips to ankles are affected. Not so much any other joints.





    What about pain in his hands, ears, or nose? Or have you ever noticed any change in color when he is feeling cold as if his skin color in the affected area turned to a pale white, then purple-like color, and then red? Does he ever describe the pain as feeling like it's coming from the inside and coming out?

    Has he ever had a doppler ultrasound done to his legs? Has he ever had a high reading on an ESR blood test that checks sed rate? This is a sign of inflammation in the body and an indication of Raynaud's. These are all things that a GOOD rheumatologist should be familiar with. I am just thinking out loud.
    Last edited by Anonymous; 10-19-2010 at 05:20 PM.

  3. #483
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    Quote Originally Posted by Robert_325 View Post
    What about pain in his hands, ears, or nose? Or have you ever noticed any change in color when he is feeling cold as if his skin color in the affected area turned to a pale white, then purple-like color, and then red? Does he ever describe the pain as feeling like it's coming from the inside and coming out?

    Has he ever had a doppler ultrasound done to his legs? Has he ever had a high reading on an ESR blood test that checks sed rate? This is a sign of inflammation in the body and an indication of Raynaud's. These are all things that a GOOD rheumatologist should be familiar with. I am just thinking out loud.
    The coldness and leg pain are also fibromyalgia symptoms too.

  4. #484
    farmingmom is offline Junior Member
    Join Date
    Oct 2010
    Posts
    49

    Default

    Some of his other symptoms are often feeling trembly, even if he hasn't been using any type drugs. And he has always often had times when he felt as if his blood sugar levels had crashed, like a diabetics would, with weakness and trembling that actually seemed to have nothing to do with his blood sugar levels. And his sugar levels have never been unusual when checked.

  5. #485
    farmingmom is offline Junior Member
    Join Date
    Oct 2010
    Posts
    49

    Default

    And the skin color thing you asked about, he has had that happen since he was an infant.

  6. #486
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    farmingmom ..... you may think I am crazy but listen to my logic. The feeling like his blood sugar is down is pure and simple chronic fatigue, a definite symptom of autoimmune problems. You even describe his chronic weakness yourself. Add the color changes to his skin and cold sensitivity and I would bet you $100 against $5 that he has a combination of fibro and raynaud's phenomenon that hasn't progressed yet to the stage where his blood work is indicating it. Oh yes, do his hands or feet sweat for no reason?

    I've dealt with these illnesses my entire life too. There isn't a doubt in my mind that I'm 100 % right. He needs a good rheumatologist that will listen to reason and put his education to work. I can only help you to point out the symptoms. I could recommend some meds but a rheumy should be doing it.

    In my opinion he would benefit from a calcium channel blocker to dilate his blood vessels so the blood will flow more easily to his extremities. That will help with the cold sensitivity and skin color changes. He probably needs a mild muscle relaxer like you mentioned until the fibro progresses to a point where a medication specifically for that illness is called for.

    I really believe that I'm right. Remember I'm not a dr, but I have experienced all this stuff my whole life. I even named off his symptoms without you even having to tell them to me. And the leg pain is common to Raynaud's patients, thus the calcium channel blocker would help that too. You should ask the rheumy about him taking a baby aspirin so the blood will be a little thinner in his legs as that will help elleviate the leg pain. I know these illnesses and the sad thing is at this point there is NO cure.. God bless.
    Last edited by Anonymous; 10-19-2010 at 07:04 PM.

  7. #487
    farmingmom is offline Junior Member
    Join Date
    Oct 2010
    Posts
    49

    Default

    Well,that certainly gives me a lot to think about! I have always known something was wrong, but the rheumetologist we saw the last three times I took him said that sometimes we just never find the answers for people's pain and they just have to live with it. He saw the same specialist once when around age 10, then again at around age 12, and 14. And again just a few months ago. Before that saw a pediatric rheumetologist when he was around 6, and a pediatric orthopedist. Never any answers. My mother has fibromyalgia and has always insisted that he does as well. He is without health insurance at this time. But my husband, his dad, will be able to put him back on his policy soon, under the new health care plan. Won't take effect till after January. I do hate to rack up a lot of bills before then, but will if I have to. I will try another rheumetologist in Birmingham. Thanks.

  8. #488
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    Quote Originally Posted by farmingmom View Post
    Well,that certainly gives me a lot to think about! I have always known something was wrong, but the rheumetologist we saw the last three times I took him said that sometimes we just never find the answers for people's pain and they just have to live with it. He saw the same specialist once when around age 10, then again at around age 12, and 14. And again just a few months ago. Before that saw a pediatric rheumetologist when he was around 6, and a pediatric orthopedist. Never any answers. My mother has fibromyalgia and has always insisted that he does as well. He is without health insurance at this time. But my husband, his dad, will be able to put him back on his policy soon, under the new health care plan. Won't take effect till after January. I do hate to rack up a lot of bills before then, but will if I have to. I will try another rheumetologist in Birmingham. Thanks.




    I'm going to refer you to one of the best pediatric rheumatologists in the country. He wrote a book titled,"It's Not Just Growing Pains". His name is Dr Thomas Lehman. He is on the board of one of the autoimmune disease sites I used to moderate. He even advises local rheumys in helping patients like your son locally from his personal office. He is a great dr and knows more about this stuff than anyone I know. I strongly advise you go to his site and check out his info. He can help you I promise. I pray this helps your son. At least go to his site and check out the info. Dr Lehman is a genius. God bless.
    Last edited by Anonymous; 10-20-2010 at 01:33 AM.

  9. #489
    farmingmom is offline Junior Member
    Join Date
    Oct 2010
    Posts
    49

    Default

    Robert,
    The muscle relaxer did make my son feel better. He did take the subutex a little later in the day yesterday, but said he ended up taking it shortly after he got up again this morning because he felt so bad. Says it takes him an hour after getting up and taking the sub to feel like going to work. He took another muscle relaxer at the same time and felt great all morning, and didn't know which to attribute it to. Doesn't feel as well this afternoon, but don't we all feel worse in the afternoon? Over all he feels better today than yesterday, and hopes he is just getting used to it. Our subutex supply is down to broken crumbs and powder and I don't really know how many mgs. it all adds up to. I'm not a great pill splitter.

  10. #490
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    Quote Originally Posted by farmingmom View Post
    Robert,
    The muscle relaxer did make my son feel better. He did take the subutex a little later in the day yesterday, but said he ended up taking it shortly after he got up again this morning because he felt so bad. Says it takes him an hour after getting up and taking the sub to feel like going to work. He took another muscle relaxer at the same time and felt great all morning, and didn't know which to attribute it to. Doesn't feel as well this afternoon, but don't we all feel worse in the afternoon? Over all he feels better today than yesterday, and hopes he is just getting used to it. Our subutex supply is down to broken crumbs and powder and I don't really know how many mgs. it all adds up to. I'm not a great pill splitter.





    I don't think it's common at all for ALL 21 year olds to run out of energy or feel worse in the afternoon. He's a young man and should feel fine in the afternoon. I believe that is the chronic fatigue we talked about last night that he is suffering from due to autoimmune problems that I can almost "sense" him suffering with. I would like to see Dr Lehman who I just mentioned in the last post last night hear his story and I'll bet you he agrees with what I've said about the autoimmune problems.

    Your son should be able to switch his subutex dose over to the suboxone now without any problems. We could add .5mg to each dose as he is still in the induction period and he would still only be at 3.5mg. I'm just concerned with him still having problems not related to the subs, but autoimmune problems. I know that I'm not a dr and have no business diagnosing anything, but he just has all the symptoms, it's hereditary and you mention others in your family with similar problems. I think that needs to be addressed by someone who is really good like Dr Lehman.

    For now switch over to the suboxone and let's make sure that works okay for him and he can continue to use the muscle relaxer as he has used them. Let me know how he does with the suboxone and don't increase any dose yet. Just use it exactly as he's used the subutex. I don't expect any trouble with using the suboxone, just want to be sure it works well for him just like the subutex. Let's do one day with the suboxone instead of subutex and then we will proceed forward.

    Let me know tomorrow afternoon how the suboxone and the muscle relaxer work together after his workday. I'll watch for your post this time tomorrow. I'm commited to making this work for him. We will just have to see as we lower the suboxone dose when we do the taper if he has reoccuring chronic pain issues. If he does we will have to address them at that time. I'm doing my best to help you guys figure out this problem. God bless.
    Last edited by Anonymous; 10-20-2010 at 03:50 PM.

  11. #491
    cantstanditnomore is offline New Member
    Join Date
    Oct 2010
    Posts
    12

    Default New here...on subz & want off...robert...helllppp

    Hi! I hope this is working right...I've posted twice & no reply from anyone! I posted last thursday night...I decided to quit my suboxone on my own, tapered too fast & ended up LITERALLY feeling like I was dying.... I posted here (or SOMEWHERE on this complicated site...never DID see my posts & to this day can't find em'!)...no replies, so at about 3 AM Thurs. PM/Fri. AM ended up going to the ER..... Dr. there was NO help...he gave me a script for Subs & told me not to quit again, I went to the pharm. 2 get them & they wouldn't give me any because the ER doc wasn't "suboxone certified", so I just went home &cried & cried.... really thought long & hard about suicide! I layed on the couch & rolled back & forth so my legs wouldn't throw me off it till 8 AM the next morning (last Friday) when I called my Sub Doc & as usual, I wasn't allowed to talk to him, but told the nurse to give him a message that I tried to quit my subs & felt like I was dying & unless he wanted me dead or buying some relief off the streets, could he PLEASE help me! less than 10 minutes later, I got a call back from his nurse who said he called in a script for me & it was ready @ the pharmacy for more Subz. I went & picked it up & ate 2 to try & get it back into my system. It knocked me out & I slept the whole rest of the day. Got up Sat. AM & started back on my regular dose of taking one 2mg 4 times daily. Gave me a big speed buzz & I installed all the cieling tiles in my basement & cleaned the whole house! Mon & tues. I felt stable again & went to work. Today is Wed. & I had my regular scheduled appointment w/my Sub Dr. He upped my dose now to 5) 2mg tabs daily & said he'd taper me back to 4 a day next month, but due to my instability, he felt like I needed more. I am SICK to DEATH of these things & have been taking them now for 6 months....I am OVER wanting to take ANY opiates & just want to be pill free! The other facet to this whole thing is that my other 1/2 was addicted to opiates just as bad as I was & couldn't afford the pills or the 150.00 per mo. Dr. charge, so I have been giving him 1&1/2 to 2 a day so HE could quit the vikes, too, so I used to cut myself short & always ended up running out of my Subz early & we would both just suffer thru for 3 or 4 days till I got it refilled, so now, with the upped dose, hopefully THAT shouldn't happen anymore. We are both Cristian guys & our Faith in God has helped us get thru a LOT together! (We lost our business due to our addiction as well as countless friends, our dignity, etc.) We've been together now for 15 years & both agree that trying to quit Subz is HARDER than just going thru the 3 day w/d from the vikes we were hooked to! Robert, could you please help us get off the Subz? From all I have read, YOU are the guy who can help! Thanks in advance! God Bless!

  12. #492
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    Quote Originally Posted by cantstanditnomore View Post
    Hi! I hope this is working right...I've posted twice & no reply from anyone! I posted last thursday night...I decided to quit my suboxone on my own, tapered too fast & ended up LITERALLY feeling like I was dying.... I posted here (or SOMEWHERE on this complicated site...never DID see my posts & to this day can't find em'!)...no replies, so at about 3 AM Thurs. PM/Fri. AM ended up going to the ER..... Dr. there was NO help...he gave me a script for Subs & told me not to quit again, I went to the pharm. 2 get them & they wouldn't give me any because the ER doc wasn't "suboxone certified", so I just went home &cried & cried.... really thought long & hard about suicide! I layed on the couch & rolled back & forth so my legs wouldn't throw me off it till 8 AM the next morning (last Friday) when I called my Sub Doc & as usual, I wasn't allowed to talk to him, but told the nurse to give him a message that I tried to quit my subs & felt like I was dying & unless he wanted me dead or buying some relief off the streets, could he PLEASE help me! less than 10 minutes later, I got a call back from his nurse who said he called in a script for me & it was ready @ the pharmacy for more Subz. I went & picked it up & ate 2 to try & get it back into my system. It knocked me out & I slept the whole rest of the day. Got up Sat. AM & started back on my regular dose of taking one 2mg 4 times daily. Gave me a big speed buzz & I installed all the cieling tiles in my basement & cleaned the whole house! Mon & tues. I felt stable again & went to work. Today is Wed. & I had my regular scheduled appointment w/my Sub Dr. He upped my dose now to 5) 2mg tabs daily & said he'd taper me back to 4 a day next month, but due to my instability, he felt like I needed more. I am SICK to DEATH of these things & have been taking them now for 6 months....I am OVER wanting to take ANY opiates & just want to be pill free! The other facet to this whole thing is that my other 1/2 was addicted to opiates just as bad as I was & couldn't afford the pills or the 150.00 per mo. Dr. charge, so I have been giving him 1&1/2 to 2 a day so HE could quit the vikes, too, so I used to cut myself short & always ended up running out of my Subz early & we would both just suffer thru for 3 or 4 days till I got it refilled, so now, with the upped dose, hopefully THAT shouldn't happen anymore. We are both Cristian guys & our Faith in God has helped us get thru a LOT together! (We lost our business due to our addiction as well as countless friends, our dignity, etc.) We've been together now for 15 years & both agree that trying to quit Subz is HARDER than just going thru the 3 day w/d from the vikes we were hooked to! Robert, could you please help us get off the Subz? From all I have read, YOU are the guy who can help! Thanks in advance! God Bless!




    I will be happy to help you. We have company tonight but tomorrow I'll get with you and we'll make a solid plan together. I promise that I won't leave you hanging. Read my link below for how I work with subs for the last several years. Talk with you tomorrow and we'll make you a success story. Have faith and I'll help you I promise. God bless.

    https://www.drugs.com/forum/featured...apy-50887.html

  13. #493
    farmingmom is offline Junior Member
    Join Date
    Oct 2010
    Posts
    49

    Default

    Robert, you asked for an update on my son this afternoon. He says he feels much the same as he did yesterday, maybe a tiny bit better. His main complaint is just complete lack of energy. It is all he can do to make it through the work day, and then feels like doing nothing when he gets home. He is taking the muscle relaxer in the morning and in the evening. Will he gradually feel better on the suboxone? He says that they told him when he went to a group rehab for a while last year that some people aren't helped by suboxone. Is that true? If he can stick with the suboxone and do a fairly quick taper, will he feel better then? My husband found out when he tried to re-enroll our son on his health insurance (under the new health care plan for young adults) that he was never actually removed when he quit going to college. So I can go ahead and schedule him with a rheumatologist for a visit soon.

  14. #494
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    Quote Originally Posted by farmingmom View Post
    Robert, you asked for an update on my son this afternoon. He says he feels much the same as he did yesterday, maybe a tiny bit better. His main complaint is just complete lack of energy. It is all he can do to make it through the work day, and then feels like doing nothing when he gets home. He is taking the muscle relaxer in the morning and in the evening. Will he gradually feel better on the suboxone? He says that they told him when he went to a group rehab for a while last year that some people aren't helped by suboxone. Is that true? If he can stick with the suboxone and do a fairly quick taper, will he feel better then? My husband found out when he tried to re-enroll our son on his health insurance (under the new health care plan for young adults) that he was never actually removed when he quit going to college. So I can go ahead and schedule him with a rheumatologist for a visit soon.





    I'm glad he felt the same with the suboxone as the subutex. I still think that the fatigue in the afternoon is from autoimmune problems that haven't been diagnosed yet. I can get you info for contacting Dr Lehman that I told you about if you want to do that. He's one of the best around in this area. He even works with your local rheumy giving advice about autoimmune problems if you want to do it.

    Let's keep your son on the same dose for a little longer before starting a taper. He needs to have a good week under his belt at the induction dose before tapering. So we will just basically monitor him for a few more days, then begin the taper and see how he reacts, whether the chronic fatigue in the afternoon worsens or not. God bless.

  15. #495
    farmingmom is offline Junior Member
    Join Date
    Oct 2010
    Posts
    49

    Default

    Robert, I know you are busy and I am sorry for continually begging you to hold our hands. But will he gradually have an increase in his energy level? Or is this normal for some people on suboxone? Isn't Dr. Lehman in New York? I went to the website. Seemed to know his stuff, but we are many miles from there. Am working on getting a referral for him to rheumatologist at UAB in birmingham.

  16. #496
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    Quote Originally Posted by farmingmom View Post
    Robert, I know you are busy and I am sorry for continually begging you to hold our hands. But will he gradually have an increase in his energy level? Or is this normal for some people on suboxone? Isn't Dr. Lehman in New York? I went to the website. Seemed to know his stuff, but we are many miles from there. Am working on getting a referral for him to rheumatologist at UAB in birmingham.




    We will have to see how your son does concerning his energy level. If it's autoimmune problems the energy won't improve. Suboxone is just for opiate detox periiod. That's why I think you need to speak with Dr Lehman. And yes, he is a good ways from you, but he will work with your local rheumy if your dr is willing to work with him. If your son has autoimmune illnesses he isn't going to improve until he's properly diagnosed and treated accordingly. Not what you wanted to hear, but as I've said he has all the symptoms. Let's wait for the taper and see if he does any better. We still need a few more days before starting the taper. God bless.

  17. #497
    farmingmom is offline Junior Member
    Join Date
    Oct 2010
    Posts
    49

    Default

    Oh, he is not interested in the taper yet. He still says he feels like he is having withdrawal as it is. I just asked because I am hoping that he will feel better after he gets off. Him staying off everything is what scares me. I really feel lke enough time has gone by that old patterns have been broken for him. Praying so.

  18. #498
    cantstanditnomore is offline New Member
    Join Date
    Oct 2010
    Posts
    12

    Default Want off Subz

    Quote Originally Posted by Robert_325 View Post






    I will be happy to help you. We have company tonight but tomorrow I'll get with you and we'll make a solid plan together. I promise that I won't leave you hanging. Read my link below for how I work with subs for the last several years. Talk with you tomorrow and we'll make you a success story. Have faith and I'll help you I promise. God bless.

    https://www.drugs.com/forum/featured...apy-50887.html
    Hey, Robert! That would be great! Do we just talk to each other on this forum, or will you be e-mailing me? If it's not too much trouble, could we respond back & forth thru e-mail? You can e-mail me at: VINTAGETVDOCTOR at aol dot com. If not, just let me know how to correspond & what info you will need from me 1st. There are 2 of us getting off this stuff. Me & my other 1/2. I can let you know both our doses, or whatever you need to know. Thanks in advance & I can't wait!
    Last edited by Anonymous; 10-27-2010 at 01:52 PM.

  19. #499
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    We do all these tapers right here on the forum. I don't send out my personal email on the internet. I talk with people all over the world and do this on a volunteer basis. .

    Let me know both of your doses, history, and then I can use the posts here as notes for myself to make suggestions. I can't remember everyone doing it by email and there would be no need for a forum. Plus no one would ever find us if this were done through email.

    Just give me all current info and I can make suggestions to you all based on the info from the aforementioned link. I'll be waiting to hear from you. God bless.
    Last edited by Anonymous; 10-22-2010 at 02:57 PM.

  20. #500
    farmingmom is offline Junior Member
    Join Date
    Oct 2010
    Posts
    49

    Default

    Robert, son is feeling better, in small increments. Not so much that he came to tell me that he is, but I just noticed he is just a little more active and cheerful. When I asked him if he wasn't feeling better now, he thought about it, and agreed that he was. Actually went camping last night! We have an appointment with a new rheumatologist at UAB next friday.

  21. #501
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    Quote Originally Posted by farmingmom View Post
    Robert, son is feeling better, in small increments. Not so much that he came to tell me that he is, but I just noticed he is just a little more active and cheerful. When I asked him if he wasn't feeling better now, he thought about it, and agreed that he was. Actually went camping last night! We have an appointment with a new rheumatologist at UAB next friday.



    I'm glad to hear about the rheumy appt on Friday and I'm happy your son seems to be feeling better.

    Some drs with ego problems take it as an insult bringing in another dr like Dr Lehman as they might think you don't trust them, but if he shows any doubt whatsoever what to do for your son WHO CARES!!! I would mention speaking with Dr Lehman as an advisor as he really is one of the best rheumys for young people in the country. I know that is a fact!

    Why not take advantage of him? He has credentials out the bazooh! He is a dr that really could help your son (which I know is all that you really want) and he cares sincerely about helping young people get diagnosed early as possible as time is of the essence with these types of illnesses..I've seen him do what appeared to be miracles. It's not a matter of insulting your local dr, it's a matter of putting a team together that could literally take years off your son being properly diagnosed and helped ultimately. That is what matters in the long run the way I see it. Dr Lehman has such impressive credentials and a great history in this field. I think he is the best around

    Please keep me posted on this. I'm really interested and want the same as you, for your son to get better as soon as he possiblly can. If Dr Lehman isn't the right choice he has enough class that he would take the time to refer you to the best doctor he knows locally close to you. I would take a recommendation from him as a really quality referral.

    He hasn't worked with me in some time so he probably won't remember me by a screen name. That is of no importance here, your son is who is important here. But he can help your son I promise you if any dr anywhere could. Let me know and you guys are in my prayers. I know that you would be so thrilled to see your son have a great life free of pain. This is a way to hopefully achieve that goal. I can't wait to hear what happens this week. I'm excited for you guys! God blessl
    Last edited by Anonymous; 10-23-2010 at 11:49 PM.

  22. #502
    farmingmom is offline Junior Member
    Join Date
    Oct 2010
    Posts
    49

    Default

    Robert,
    So much for the rheumatologist visit. I had asked the local doctor who has seen my son for a few things over the past couple years, like shingles and the flu, to refer him to the rhem. He did so, and I guess faxed my sons records. None of which included anything about his joint and leg pain. What it did include was the doctors notes about refering him to the suboxone doctor for pill addiction. The rheumatologist nurse acted angry, and said the doctor saw nothing in his records to show he should see him, and made a comment about the drug problem, as if we were coming to see if he could get a prescription. I told her that I now understood that I should have asked his other rheum. to refer him and send records, but by then, I who never cries, was in tears and just about had to hang up. She gave me a fax number for the rheum. to send records to, so the doctor in birmingham review them. But I won't now. I had wondered if we should tell the new doctor about his drug issues. Now I know the answer to that. I feel as if I just hit another wall, and there is never any way to get any help. I looked up Dr. Lehman again. He doesn't take health insurance. And I can't see anyway to contact him without making an appointment. But after I had my little crying spell, I searched on the net for another birmingham doctor specializing in fibro, one not in the office with the one that canceled on us today. I'll try again tomorrow.

  23. #503
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    Quote Originally Posted by farmingmom View Post
    Robert,
    So much for the rheumatologist visit. I had asked the local doctor who has seen my son for a few things over the past couple years, like shingles and the flu, to refer him to the rhem. He did so, and I guess faxed my sons records. None of which included anything about his joint and leg pain. What it did include was the doctors notes about refering him to the suboxone doctor for pill addiction. The rheumatologist nurse acted angry, and said the doctor saw nothing in his records to show he should see him, and made a comment about the drug problem, as if we were coming to see if he could get a prescription. I told her that I now understood that I should have asked his other rheum. to refer him and send records, but by then, I who never cries, was in tears and just about had to hang up. She gave me a fax number for the rheum. to send records to, so the doctor in birmingham review them. But I won't now. I had wondered if we should tell the new doctor about his drug issues. Now I know the answer to that. I feel as if I just hit another wall, and there is never any way to get any help. I looked up Dr. Lehman again. He doesn't take health insurance. And I can't see anyway to contact him without making an appointment. But after I had my little crying spell, I searched on the net for another birmingham doctor specializing in fibro, one not in the office with the one that canceled on us today. I'll try again tomorrow.




    It makes me angry what so many drs put us through. We have legitimate problems that they have no answers for so rather than admitting their lack of answers, they choose to make us out to be drug seekers or something similar.

    You have all of my compassion as I know you were seriously trying to help your son and ended up having drs treating you like you were nothing more than an enabling mother It makes it easier to understand the dilemma for a young guy who is trying to find medical help on his own and the reaction he often gets from some of these drs..

    I will pray that tomorrow goes better with the fibro specialist. Some of them understand how difficult it is to diagnose this illness properly and treat fibro effectively without using serious rx opiates in the process. Ask about Sevalla, Lyrica or Gabapentin .... alll are used at times for fibro and are non-narcotic. Please let me know how it goes tomorrow. God bless.
    Last edited by Anonymous; 10-26-2010 at 05:37 PM.

  24. #504
    subhelp is offline New Member
    Join Date
    Oct 2010
    Posts
    14

    Default Day 20 NO SUBS!!!!!!

    Robert:
    Hey, it is Day 20!!! I can hardly believe that this has happened! I thank my Lord everyday for giving me mercy and helping me get through this process. I tapered down and am no longer taking the clonidine, I feel ready to taper the klonopin and again (sorry) need your advice and assistance. I take .5mg daily, I break it in half and take half during the day and half before bed. My anxiety is slowly going away, of course there are moments here and there, but it is truly life situations that I am dealing with and will always have to deal with. Can you give me a safe taper on the klonopin?? Again, I thank you and admire you for giving so much of your time to people for help. God will continue to bless you throughout your life. Thanks again for your support and advice......I'M READY!!!!!!!!

  25. #505
    pattycakes is offline Member
    Join Date
    Jul 2009
    Location
    Florida & Pennsylvania
    Posts
    67

    Default

    Quote Originally Posted by subhelp View Post
    Robert:
    Hey, it is Day 20!!! I can hardly believe that this has happened! I thank my Lord everyday for giving me mercy and helping me get through this process. I tapered down and am no longer taking the clonidine, I feel ready to taper the klonopin and again (sorry) need your advice and assistance. I take .5mg daily, I break it in half and take half during the day and half before bed. My anxiety is slowly going away, of course there are moments here and there, but it is truly life situations that I am dealing with and will always have to deal with. Can you give me a safe taper on the klonopin?? Again, I thank you and admire you for giving so much of your time to people for help. God will continue to bless you throughout your life. Thanks again for your support and advice......I'M READY!!!!!!!!
    Dear Subhelp,
    Congrats! I can't believe it has been so long. You go girl! So proud. I've been away for a couple of weeks, but doing okay. Today is my birthday & most important 30 days clean!!! Will be heading home Friday & am really missing my family.
    Are you feeling all better? No anxiety? I'm still struggling with getting started in the am. Still low energy. A little frustrated on that issue. But very happy with no subs!!
    Sorry to have been gone so long. The computer up here in PA is not always available. So glad to see so many others clean & doing well. God Bless.

    Winged? So proud of you girl. You are still so much support for me. You are awesome.
    Robert? Hope you are feeling better & wanted you to know how thankful I am to have found you. Hi Melinda! I owe my subfree life to you & all the support & encouragement from all you wonderful people on this site. Love you all!!

    Patty

  26. #506
    subhelp is offline New Member
    Join Date
    Oct 2010
    Posts
    14

    Default Patty..

    Hey Patty!!! I've been thinking about you and wondering if you were still out of town. Way to go with your 30 days!!!! I'm glad to hear you are feeling good. My anxiety comes and goes, i've learned that I can only have about 2 cups of coffee in the morning and other than that I only drink water. Too much caffeine gets me very, very anxious. I get going pretty decent in the morning, I actually get out of bed easier off the sub than when I was on it. I hope you enjoy the rest of your trip and please let me know how you are doing.

  27. #507
    Robert_325 is offline Diamond Elite
    Join Date
    Jul 2007
    Location
    Texas
    Posts
    12,748

    Default

    Quote Originally Posted by subhelp View Post
    Robert:
    Hey, it is Day 20!!! I can hardly believe that this has happened! I thank my Lord everyday for giving me mercy and helping me get through this process. I tapered down and am no longer taking the clonidine, I feel ready to taper the klonopin and again (sorry) need your advice and assistance. I take .5mg daily, I break it in half and take half during the day and half before bed. My anxiety is slowly going away, of course there are moments here and there, but it is truly life situations that I am dealing with and will always have to deal with. Can you give me a safe taper on the klonopin?? Again, I thank you and admire you for giving so much of your time to people for help. God will continue to bless you throughout your life. Thanks again for your support and advice......I'M READY!!!!!!!!



    subhelp ....... 20 days is awesome. Should be proud of yourself. .5mg of klonopin is not a bad dose. cut it into quarters and knock off a quarter every week. In 30 days you'll be clean and it won't be that bad. Keep me posted. God bless.

  28. #508
    cantstanditnomore is offline New Member
    Join Date
    Oct 2010
    Posts
    12

    Default Ready 2 taper

    Quote Originally Posted by Robert_325 View Post
    We do all these tapers right here on the forum. I don't send out my personal email on the internet. I talk with people all over the world and do this on a volunteer basis. .

    Let me know both of your doses, history, and then I can use the posts here as notes for myself to make suggestions. I can't remember everyone doing it by email and there would be no need for a forum. Plus no one would ever find us if this were done through email.

    Just give me all current info and I can make suggestions to you all based on the info from the aforementioned link. I'll be waiting to hear from you. God bless.
    Hey, Robert! Sorry about not posting sooner....I didn't see this post & was waiting to hear from you via email, but you're right...this not only makes more sense, but gives other readers a chance to be supportive of our goal, too
    OK...I'll call myself Ron & my partner John for the sake of some anonymity. My (Ron's) current dose is: four 2mg tablets per day...I usually take one evry 5 hours and take an extra one if I'm stressed or need an energy boost. John's current dose is two to three 2mg tablets daily, taking 1 every 6 hours. I, Ron, have been prescribed 4 a day for the last 6 mo. & John has been doing 1-2 a day & increased his to 2-3 a day over the last 3 weeks. As a result, we always seem to use up all my prescription in 3 weeks & end up suffering horrible withdrawals the last week before I go to my sub doc & refill every month. This last month, I told my sub doc that the 4 a day weren't working anymore, so he'd up my dose so we wouldn't run out, but, it has backfired as we just started taking more.....It really sux, cuz I hadn't done any research on Subs before getting on them & didn't know they have a worse withdrawal when stopped than the vikes we used to take! Please help us taper so we can be pill free! Thanks in advance soooo much, Robert!

  29. #509
    cantstanditnomore is offline New Member
    Join Date
    Oct 2010
    Posts
    12

    Default

    Quote Originally Posted by cantstanditnomore View Post
    Hey, Robert! Sorry about not posting sooner....I didn't see this post & was waiting to hear from you via email, but you're right...this not only makes more sense, but gives other readers a chance to be supportive of our goal, too
    OK...I'll call myself Ron & my partner John for the sake of some anonymity. My (Ron's) current dose is: four 2mg tablets per day...I usually take one evry 5 hours and take an extra one if I'm stressed or need an energy boost. John's current dose is two to three 2mg tablets daily, taking 1 every 6 hours. I, Ron, have been prescribed 4 a day for the last 6 mo. & John has been doing 1-2 a day & increased his to 2-3 a day over the last 3 weeks. As a result, we always seem to use up all my prescription in 3 weeks & end up suffering horrible withdrawals the last week before I go to my sub doc & refill every month. This last month, I told my sub doc that the 4 a day weren't working anymore, so he'd up my dose so we wouldn't run out, but, it has backfired as we just started taking more.....It really sux, cuz I hadn't done any research on Subs before getting on them & didn't know they have a worse withdrawal when stopped than the vikes we used to take! Please help us taper so we can be pill free! Thanks in advance soooo much, Robert!
    P.S. as of right now, I have 67 pills left & they need to last us for 20 days....is there a taper method that we can do to make this workable? Thanks again & God Bless You, Too!

  30. #510
    Anonymous Guest

    Default

    HI Ron & John
    Robert has gone to a function at church.. we will be home later this evening...
    talk to you soon, Melinda

Page 17 of 24 FirstFirst ... 71516171819 ... LastLast

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22