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suboxone pain
  1. #1
    stacem30 is offline Junior Member
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    Default suboxone pain

    Hi all,

    Hey I was wondering, for those of you on suboxone, have you noticed any aching in your joints or your muscles? I'm kinda movin around like an old person, kinda like I did on methadone. You have to understand that I was off of everything for about four months and most of you probably went straight from your DOC to sub, but I noticed off of everything I felt great except for the extreme cravings. On this I'm moving sloowwww. If someone has noticed this will you please let me know. I'm really concerned.
    Thanks a bunch and I hope you all are doing really well and having a great weekend!
    Stace

  2. #2
    exapno-mapcase is offline New Member
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    Stacie I had similar experience when I was underdosed on sub, current dose adequate no lethargy. I had even continued to have night sweats 4 weeks off all. Still had joint pain and sweats first two weeks of sub maintenance because of insufficient dose. Doc took me up to guidline suggested dose for maintenance all withdrawal symptoms gone. My SO claims I am acting normal for the first time in years. What's your daily scheduled dose?

    "Outside of a dog, a book is a man's best friend; inside of a dog it's too dark to read."

    -Groucho Marx

  3. #3
    stacem30 is offline Junior Member
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    Hi,
    Ummm, my dose is 16 mg.'s per day. But I was off of everything for four months and felt No pain whatsoever. Got on sub and started with the hurting joints and muscles like it was on methadone almost. Feel like an old woman! And I'm NOT! hehehe. Did you go straight from your DOC to sub or had you been off of all meds for a while before trying sub?
    Thanks,
    Stace

  4. #4
    Penelope is offline Junior Member
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    Hey Stace, (hope I am not rambling too much)

    It seems like 16 mg should be plenty, if not TOO much, for you. I am just thinking though that IF you were on NOTHING for four months, then I would feel this would be a VERY high dose to start and would probably shock your body somewhat! With you having nothing in your system, I couldn't imagine going on a dose that high with you being free of all opiates when you started the sub, but that's my opinion from what I have read and experienced. I would think that you would feel physically bad in your situation on that dose. For example, I know of someone who took an 8 mg sub and this person wasn't on opiates on a regular basis, similar to you. She got so sick...very sick because the dose was so high.

    In my case, I know that in the beginning I DID have muscle spasms a few times in my sleep. One night I woke up screaming because a muscle had knotted in my back. It was the most pain I've ever had in my back. By the way, in the beginning I THINK I WAS on WAY too high of a dose then myself, so I lowered mine after I did some research! I started on more mg than you did, btw. The same thing happened in my calves a couple of times, too. I might would think that IF you are having muscle pain so much then your dose may be too high, as mine was; however, I don't understand the lack of energy IF you are just starting it except for the fact that you were clean and jumped right into this sub at 16 mg! In the beginning sub made me extremely nervous (for the first couple of weeks), but I remember having more energy than I did before. However, I was in a different situation from you, as are most people. You are taking it AFTER being off everything, unlike me since I was taking hydrocodones and used the sub to get off them. So I definitely should have more energy since I was really dragging on the pain pills! But in your case, the opposite may be true with your dose.

    How long have you been on it, Stace? I was wondering because maybe you've not been on it quite long enough to stop the cravings because it really helped me with mine, but I DID have cravings in the beginning if that makes you feel better. They eventually did go away. Have you tried or thought about lowering your dose? Normally, I know it "sounds" like you need more sub with the lack of energy, but since you were clean for so long, 16 mg. might have had the reverse effect on you than it would someone who was actually using at that time when he/she started the sub.


    ...hope this helps you some. Let me know more and we can compare and discuss. Have a great weekend!!!

  5. #5
    mcfarbo is offline New Member
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    Hi-
    I was glad to see this post! I too have been experiencing pain on joint pain on Suboxone at night. I feel like my joints lock up and when I move them it is excrutiating! I am also a young person (38) but when I get out of bed I shuffle around like an old lady..it does wear off though. I'm currently on 16mg right now and it's been about a month. I'm going to see my doc this week, so I am going to see about going down and hopefully this will help my the aches..
    Thanks!
    Mary

  6. #6
    Stella Blue is offline New Member
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    Oh man, while I appreciate your post, it's also scaring the hell outta me. I'm having second thoughts on even going on the stuff. I don't wanna do the slow shuffle and I sure as heck don't wanna get hooked.

    Now that I'm down to 1/2 vic so far today from a 10+ a day habit, I'm thinking of jumping off without the Sub. The Sub is honestly starting to scare me.

    Also, just wondering if you went on the Sub for cravings ? You said you were clean for a few months and then went on it ? Jeezus, I didn't know the cravings would last that long.

    Every one of us is unique and must battle this our way, regardless of what we are dependent on. I'm hoping to taper off vic's and go to N.A. for the mental part. I figure I'm gonna have to taper off of Sub anyways. Just not really seeing much of a difference at this point.

    As for feeling sluggish on the Sub, maybe you could try to cut back a little each day. Just a little. Prolly not a good idea to throw your body into hardcore withdrawals/shock like I did but just taper.

    However, I will say that I personally think w/d's are great for soul-searching. Standing in a hot shower crying your eyes out and so sick/sore your bones hurt really makes a mental impact.


    I dunno, just a thought. Hopefully some more experienced members will come along and advise.

    Good luck and be strong. Whatever you decide, you DO have the strength.

  7. #7
    JolieMara6 is offline Junior Member
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    Default Yes

    Thank you for this post! I am 31 years old and very active with a 2 year old son...anyway I thought maybe I had arthritis or something because I have had the worst joint pain ever! I was thinking back to when it started and it was when I started the suboxone! I am down to 3mgs a day trying to get down....very hard especially with these pains! Now I realize from this post that I am not the only one!

  8. #8
    sisterwin2 is offline Senior Member
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    Quote Originally Posted by JolieMara6 View Post
    Thank you for this post! I am 31 years old and very active with a 2 year old son...anyway I thought maybe I had arthritis or something because I have had the worst joint pain ever! I was thinking back to when it started and it was when I started the suboxone! I am down to 3mgs a day trying to get down....very hard especially with these pains! Now I realize from this post that I am not the only one!

    Hi jolie........ Well I am 51 and do have many pains but there were there before the sub. I did notice that when on daily sub I sweat more then just menopause and did get cramps in my lower legs at night. What I did to get rid of them was eat a banana a day for the potassium. This may help you some.

    How long have you been on the sub if I may ask?

    Sister

  9. #9
    tootienkyle is offline New Member
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    Cool I have horrible joint pain

    I am looking for an answer... I was addicted to pain pills after being on them for several different issues. I didn't want to be on them forever and a friend at work was on suboxone and had told me about the medication. I researched it and did a "look up" of what doctor in my area prescribed it (because for those wanting to get on it, not many physicians can prescribe it). I found a fantastic physician who I even switched over to him for my PCP. He spent well over an hour with me, and has at every visit if needed. You have to detox off the pain pills you are on for at least 24 hours, or you will become very ill. I was miserable going in there and within 20-30 minutes of taking the medication, felt actually normal again right then. I was amazed. After the first 2 weeks of being on it (and maybe even sooner) I have had extreme joint pain. I have it in my legs, my knees are the worst, along with my ankles and hands. In the morning when I wake up, I can barely walk. My whole body is a stiff board. It will get better as I move around, but if I sit down (which I sit at a desk for my job) and then go to walk around, I am stiff again. It gets worse as the day goes on. By evening, my knees and ankles swell and I can hardly walk and if I do, it's painful. Then in the middle of the night, my hands-I can't bend them, they get stiff and hurt, my legs are in pain the whole night and if I move them they hurt. My shoulders-I can't lay on one side for very long because they start hurting from laying on them. I have been on suboxone for almost 2 months now. I take 8mg when I wake in the morning and then around 2-3 I take another one. (that is my dosage because I was on pain meds for 2 years every day). My doctor is terrific, but he hasn't seen this with any of his other suboxone patients. This is why I am here. I want to find an answer. I know that I cannot go off of the suboxone, but is it worth all of this other pain??? (and I know I cannot go off of it because I still think of taking the pain pills because I am in so much pain!)

    PLEASE HELP ME!!!!

  10. #10
    musicman48 is offline Senior Member
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    Quote Originally Posted by tootienkyle View Post
    I am looking for an answer... I was addicted to pain pills after being on them for several different issues. I didn't want to be on them forever and a friend at work was on suboxone and had told me about the medication. I researched it and did a "look up" of what doctor in my area prescribed it (because for those wanting to get on it, not many physicians can prescribe it). I found a fantastic physician who I even switched over to him for my PCP. He spent well over an hour with me, and has at every visit if needed. You have to detox off the pain pills you are on for at least 24 hours, or you will become very ill. I was miserable going in there and within 20-30 minutes of taking the medication, felt actually normal again right then. I was amazed. After the first 2 weeks of being on it (and maybe even sooner) I have had extreme joint pain. I have it in my legs, my knees are the worst, along with my ankles and hands. In the morning when I wake up, I can barely walk. My whole body is a stiff board. It will get better as I move around, but if I sit down (which I sit at a desk for my job) and then go to walk around, I am stiff again. It gets worse as the day goes on. By evening, my knees and ankles swell and I can hardly walk and if I do, it's painful. Then in the middle of the night, my hands-I can't bend them, they get stiff and hurt, my legs are in pain the whole night and if I move them they hurt. My shoulders-I can't lay on one side for very long because they start hurting from laying on them. I have been on suboxone for almost 2 months now. I take 8mg when I wake in the morning and then around 2-3 I take another one. (that is my dosage because I was on pain meds for 2 years every day). My doctor is terrific, but he hasn't seen this with any of his other suboxone patients. This is why I am here. I want to find an answer. I know that I cannot go off of the suboxone, but is it worth all of this other pain??? (and I know I cannot go off of it because I still think of taking the pain pills because I am in so much pain!)

    PLEASE HELP ME!!!!
    I have never heard of suboxone causing pain.However, suboxone does not help with pain for most people.Could the pain you are having be surfacing because you are coming off of pain pills.In other words the pain was there before but you could not feel it because you were numb from the pain pills ?
    When I stated suboxone all of my nerve/back pain came back.Good luck.MM

  11. #11
    erin01 is offline New Member
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    Default suboxone pain a sympton of withdrawl


    I am currently on suboxone-doing a rapid taper. As far as bone pain goes-its totally part of coming off. A friend i met in rehab still has joint pain and her legs constintly hurt where they did not prior to using and coming off suboxone. About 4 years ago, i was on Subutex-32mg and I did a 2 month taper-the only real withdrawl i went through was pretty bad joint-muscle pain. It was like I had arthritis in my whole body. Fortunaately for me, it didnt last very long.

  12. #12
    Anonymous Guest

    Default I wouldnt

    Quote Originally Posted by Stella Blue View Post
    Oh man, while I appreciate your post, it's also scaring the hell outta me. I'm having second thoughts on even going on the stuff. I don't wanna do the slow shuffle and I sure as heck don't wanna get hooked.

    Now that I'm down to 1/2 vic so far today from a 10+ a day habit, I'm thinking of jumping off without the Sub. The Sub is honestly starting to scare me.

    Also, just wondering if you went on the Sub for cravings ? You said you were clean for a few months and then went on it ? Jeezus, I didn't know the cravings would last that long.

    Every one of us is unique and must battle this our way, regardless of what we are dependent on. I'm hoping to taper off vic's and go to N.A. for the mental part. I figure I'm gonna have to taper off of Sub anyways. Just not really seeing much of a difference at this point.

    As for feeling sluggish on the Sub, maybe you could try to cut back a little each day. Just a little. Prolly not a good idea to throw your body into hardcore withdrawals/shock like I did but just taper.

    However, I will say that I personally think w/d's are great for soul-searching. Standing in a hot shower crying your eyes out and so sick/sore your bones hurt really makes a mental impact.


    I dunno, just a thought. Hopefully some more experienced members will come along and advise.

    Good luck and be strong. Whatever you decide, you DO have the strength.
    If you are down to 1/2 a vicodin a day I would say NO to the suboxone . It is very strong and you will be on it for awhile to even get to to a comprable level of 1/2 of a vicodin. I think your plan to go to NA is good as the suboxone does help with cravings but you eventually have to get off those too

  13. #13
    tootienkyle is offline New Member
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    Default thanks

    Quote Originally Posted by musicman48 View Post
    I have never heard of suboxone causing pain.However, suboxone does not help with pain for most people.Could the pain you are having be surfacing because you are coming off of pain pills.In other words the pain was there before but you could not feel it because you were numb from the pain pills ?
    When I stated suboxone all of my nerve/back pain came back.Good luck.MM

    He checked me for arthritis, lupus, checked my ana (blood work)...everything is ok. I had these symptoms when I went on an antidepressant also (remeron)..thats what makes me think that all this pain is being caused by the med. I think my body just responds to things differently. Thanks for your help though! I appreciate that someone answered me.

  14. #14
    Tralalalala is offline New Member
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    Default Maybe its other neurotransmitters?

    Just wanted to weigh in on this even though it is an old thread. I believe that years of opiate abuse changes one's brain chemistry and not just having to do with opiate receptors and their natural neurotransmitters but possibly many other receptors. When one part of the system goes out of whack, the all do, to some degree, in order to compensate. This is my theory.
    My personal experience is that when I started taking my subs, I too experienced joint pain. Not so much muscle pain but definitely noticed joint pain which wasn't present or noticable when I was dependent on painkillers or before I started taking them. While on subs, I started taking SAME for the anti-depressant effects, of which I felt none, but it did have the surprising benefit of making my joint pain lessen dramatically and finally disappear completely with regular dosing of SAME. I stopped the SAME for a period and voila, the pain came back so now I take a small dose of it regularly along with my suboxone. My Pdoc, who prescribes my subs, knows I take SAME and says it is entirely safe to take at the doseage I am on.
    Why would SAME work this way? Joint pain is indicated for taking SAME, along with depression. I believe that it works to supply more seratonin and possibly help correct my damaged balance of neuro transmitters. Many non-opiate addicts are treated with anti-depressants, which have a similar action to SAME, for all kinds of pain leading one to believe that pain can be caused by an imbalance of neurotransmitters in the brain. Not all pain can be treated that way but some can. So, in my case, I don't necessarily believe it is the suboxone causing the joint pain but more like the damage done to the brain and body by opiate abuse/addiction/dependance. I don't know how much of that damage will be corrected or healed over time, providing I stay off full agonist opiates, but my opinion is that many of us will never completely return, physically and mentally, to what we were before beginning our opiate use. The amount of healing in the brain probably varies by individual because all the variables. I believe my painkiller use both caused and masked my joint pain while I was still abusing them. Once on suboxone, it became noticable. If your dr approves, try a SAME test and see if it works for you.
    Last edited by Anonymous; 06-18-2009 at 08:26 AM.

  15. #15
    gingerhaven is offline New Member
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    Talking Re: Suboxone Pain

    Yes, oh my god yes, I have aching and sore to touch joints from suboxone. I have been on suboxone for a little over a year and I have had pain for just about the whole duration, also I get constant night sweats from suboxone. its been a blessing to get off my drug of choice but now I am afraid of what will happen when I actually try to get off suboxone. Athough I am not ready to proceed with getting off suboxone I know I need to at some point. Wat to many side effects and Im afraid they do not know enough drug for me to use it long term. there are major side effects that have not subsided with my use of suboxone.

  16. #16
    RubyDean is offline Member
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    I don't know for sure, but in my experience having been on subs for 6 months, the only time i feel like that, or run over by a truck is when i think i need more, and i took too much. suboxone is strong stuff, and i mean powerful. so if your body is used to a certian dosage and you happen to take more then you may feel bad, especially in the morning. i would say to the original poster, being off your DOC for 4 months and then starting suboxone is counter productive to me, and especially being at that high a dosage, 16mg is insane at that stage. i realize most likely it is your doctor who is to blame, but please by all means start to taper. i strongly urge anyone to follow the taper plan, and try to not stay on subs for more than a few months, and stay making progress on a taper plan.

  17. #17
    Amber85 is offline New Member
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    Quote Originally Posted by stacem30 View Post
    Hi all,

    Hey I was wondering, for those of you on suboxone, have you noticed any aching in your joints or your muscles? I'm kinda movin around like an old person, kinda like I did on methadone. You have to understand that I was off of everything for about four months and most of you probably went straight from your DOC to sub, but I noticed off of everything I felt great except for the extreme cravings. On this I'm moving sloowwww. If someone has noticed this will you please let me know. I'm really concerned.
    Thanks a bunch and I hope you all are doing really well and having a great weekend!
    Stace

    I was originally on Bunavail and had problems with it, itching and rash and mouth ulcers. I found a doctor closer to home and they put me on Suboxone Tablets 16MG once daily. I had been on opiates for a couple years and never had much of a withdrawal period brtween myself. They switched me to Subutex because I was also allergic to the Suboxone tablets. I never had any problems with the Subutex. Yesterday they switched my doctor on me who threw me on Suboxone films knowing my allergic state to it. I took a dose of that stuff and on top of the hives and my horribly sore mouth, I feel like I have been beat. Every muscle and joint in my body hurts. It hurts when something touches me. I know this is caused by the Suboxone because I never had this problem on Subutex. You are not the only one experiencing this type of pain Suboxone. Maybe talk to your doctor about Subutex instead of the Suboxone. I have a week script of the films and I refuse to touch another one after this, they can have that >>>> back.

  18. #18
    Gg2k is offline New Member
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    Default Don't do it!

    Quote Originally Posted by Anonymous View Post
    If you are down to 1/2 a vicodin a day I would say NO to the suboxone . It is very strong and you will be on it for awhile to even get to to a comprable level of 1/2 of a vicodin. I think your plan to go to NA is good as the suboxone does help with cravings but you eventually have to get off those too
    If you are down to 1/2 a vic just jump off. The subs are a whole other animal. Vic's aren't even on the planet as subs in my opinion. Congrats on getting down to half! Now it's just your brain you need to fix! Good luck!

  19. #19
    Ricky71 is offline Advanced Member
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    Quote Originally Posted by Gg2k View Post
    If you are down to 1/2 a vic just jump off. The subs are a whole other animal. Vic's aren't even on the planet as subs in my opinion. Congrats on getting down to half! Now it's just your brain you need to fix! Good luck!
    Just a heads up, you are responding to a post from 2009!

  20. #20
    1232 is online now Member
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    For anyone reading, Subutex "caused" significant joint and muscle pain for me, and I too feel like an old lady especially in the morning. It is not from withdrawal. In fact, only one day after I stopped it, I feel an improvement. I thought I was developing arthritis until I found this thread. It's definitely a side effect of this drug!

  21. #21
    IwishIwasakidagain is offline New Member
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    Default Questions regarding your results

    Quote Originally Posted by stacem30 View Post
    Hi all,

    Hey I was wondering, for those of you on suboxone, have you noticed any aching in your joints or your muscles? I'm kinda movin around like an old person, kinda like I did on methadone. You have to understand that I was off of everything for about four months and most of you probably went straight from your DOC to sub, but I noticed off of everything I felt great except for the extreme cravings. On this I'm moving sloowwww. If someone has noticed this will you please let me know. I'm really concerned.
    Thanks a bunch and I hope you all are doing really well and having a great weekend!
    Stace
    Hi Stace-

    I am going through the same thing and was curious what you ended up deciding to do and if it helped at all. The first time I went on subs was the first time I tried to get clean. I was taking about 30 30mg roxies per day. I attributed the "arthritus/old grandma" feeling to the withdrawal from the opiates. But this time...I like you...was only taking vicodin and was about a month clean before I decided to start taking Subs ( I couldn't seem to stay 100% clean & continued to slip up every couple of weeks) although it was only with vicodin, which I was considering a win, based off of what I had been previously doing...aside from the fact that the harm to my liver with all of the tylenol in vics is most likely worse, coupled with the fact that I didn't trust myself to stay clean for longer than a few weeks I decided to go onto subs after being about a month off of opiates. Strangly enough I also have that same old grandma morning feeling when I wake up. I kind of chuckled when I read your "old person comment" because I cried for 7 months asking everyone who was in my sober living house when and if I would ever feel 'normal' again. (I wasn't having any pains this time it before taking the subs) and since I had been off of vics for about a month prior to getting on the subs I ruled out opiate withdrawal as being the reason for my pain. Which leads me to beleive it could be one of the following things:

    My doctor also prescribed me 2 * 8mgs a day. But I knew I wouldn't need that much (as that is what they gave me when I came off the roxies a while back). I am currently cutting my 8mgs into 1/4 and take them spread out during the day. I was thinking that maybe I was not taking a high enough dose at night, and that it was wearing off over night putting me into withdrawal by morning hence causing the aches & pains. I noticed someone below mentioned they upped their dose and the aches went away so maybe this is the same case as myself?

    I also just tappered down off both Zoloft & Wellbutrin, so I am wondering (I noticed someone also mentioned this below) if my nuerotransmitters are just going absolutely nuts with all these changes, and that is what is causing my body the aches & pains.

    I will say that getting off the subs the last time (when I was presrcribed the 16 mgs a day) was one of the worst experiences of my life & I swore I wouldn't put myself through that torture again. But of COURSE...I coudn't commit to staying off the opiates, so I thought Id justify it by meeting myself in the middle with a smaller dose of subs until I get a solid 6 months to a year of opiate sobriety under my belt...then taper off the subs slowly (in rehab they took me from 16 to 0 in 1 month, maybe that was too fast and the reason I had such a hard time).

    I know this is an older post and I am not even sure you (or anyone else will even see it, but if you (or anyone else does) I was wondering if you could share your experience, and what you ended up doing with your sub/joint/pain issue?

    I hope all is well, and that you recieve this message and are able to respond.

    Thank You Stace!

    K

  22. #22
    1232 is online now Member
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    Hi iwishiwasakidagain,

    Stacie is probably long gone as she posted in '05, but I'm here. I didn't elaborate much in my first post, but yes, I felt like an old woman EXACTLY. I also had a whole host of other side effects, but that one really stood out because I've never had pain issues except headaches.

    As soon as I stopped this drug, the pain stopped. I feel like I was essentially poisoning myself. I did have withdrawal symptoms from sub but prefer that to making myself toxic.

    The acute joint pain ceased within a few days of STOPPING sub.

    It may be some sort of histamine response in that it caused inflammation in my body. Histamine will attack weak spots. So while I never had issues before, maybe when I'm elderly, I'll already know where I'm gonna hurt. But, it wasn't just joint pain. It was general malaise, constipation, blurry vision, no libido, nausea, and a Groundhog Day feeling each day. This seemed to "build" the year I was on it.

    The headaches from Suboxone were unbearable. I switched to Subutex for one month, headaches got so much better without Naloxone but joint pain progressed and got worse, and I quit at <2 mg. Anyone who says Naloxone isn't absorbed is full of $hit. They were the worst headaches in all my 50 years and I've had enough hormone headaches to be an expert in that department.

    Btw, there are a few of us having joint pain out there, but you have to hunt for the stories. It pisses me off that some disregard this very real issue. I feel like Sub doctors and Sub users want to protect it at all costs. It's okay to do that as it has saved many lives and I support its use, but not okay to just dismiss this side effect as in your head, or withdrawal, or take more, or this or that. For someone who is opiate free, or on a very low dose, I would never in a million years recommend this powerful drug. JMO

    I can talk about Wellbutrin too. Why did you taper off? But no, I didn't have joint pain when I stopped it. It was 100% the Sub that caused my pain.

    Can I ask why you turned to opiates in the first place and how old you are?
    Last edited by Anonymous; 03-02-2018 at 07:33 AM.

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