Results 1 to 9 of 9
Pain Mgmt Patient, Doctor Issues, Question and Please Advise
  1. #1
    zypone is offline New Member
    Join Date
    Jul 2015
    Posts
    5

    Default Pain Mgmt Patient, Doctor Issues, Question and Please Advise

    Hello, First time poster long time lurker...

    History: (Skippable for important questions, but my hell from this is still causing alot of my problems)

    Im in my mid 30's and have had a hell of a time suffering through my life, my mother remembers me complaining of pain as early as like 5 years old or so, i remember through elementary school i went to the doctor (at Kaiser Perminente) a few times and they did their tests and came back explaining all the problems (Osgood Slaughters/Patello-Femoral Syndrome) showing me a x-ray and what a normal one should look like - it was clearly obvious i was bone on bone and lacking that padding between the bones while the normal x-ray had a clear space between the bones... When it came time for some form of treatment they changed their mind and report stated "X-Ray Unremarkable" (WTF!?!) -- The doctors didnt want to medicate me is all we can assume, probably due to my age -- So they change their diagnosis to "Growing Pains" and tell me to get more exercise, Well with no other option and confusion as to how/why they showed xray and changed mind, We just took the doctors word for it and went on with life, i was in Soccer, Lecross, Track, Cross Country Ect.. all through elementary, middle school and high school, the whole time complaining of pain but i also had some fairly serious ADHD/OCD that i was always 100mph in my head and to much energy ect - my brain just kept me distracted from the pain for a large portion of my youth, so i always complained of pain but my family just assumed take a tylenol and that i should be fine (i dont remember tylenol EVER helping me with anything ever, always made me sick to my stomach ect, i consider myself allergic to APAP)... Well this whole time all i was doing was destroying my knee even more, OsGoodSlaughters is NOT suppose to be exercised like that, atleast every doctor sense has told me that was terrible and only made things worse... at around 14-16 years old the pain kept growing and i went back in not knowing exactly what the problem was, family doctor had me checked out with a pain doctor that did his tests and in the report showed something like 15 of 18 of the trigger points for Fibromyalgia and another doctor suggested Myofacial Pain Syndrome - alot of it was arguing what could be the problem if they werent seeing it directly in their face on xray or such (other than my knee) but i was to young to even know about drug seeking ect, i was simply complaining of pain and asking my mother why and crying in her lap ect, and she took me to doctor and they never helped.

    Well Kaiser continued to treat me this way and i turned 18 and when then FINALLY sent me in for tests and Diagnosed me with ADHD correctly, we had been asking about my crazy energy level and possible ADD problems and they always blew me off and my gosh, you dont even wanna know how much trouble i was always in at school from my ADHD, LOL! -- Well this ADHD started to slow down between the ages of 18-24 and my pain significantly grew more and more, Kaiser said if i wanted help i would have to go through their Pain MGMT Program - of which i did, they made me take all sorts of classes and tests ect, then turned around and again basically told me that im old enough to have the pain but to young to "deserve the medication" (thats actually the words they used!) then basically left me suffering - They had me do all sorts of exercises, stretches, breathing techniques, ect... These were all things i already did for my OWN good, i LOVED swimming, soccer, capture the flag, track, all these things were my favorites and i was losing the ability to do most of them with my knees getting worse and such, but i ALWAYS atleast forced myself to go on hikes or atleast walks if my knees hurt to much that day, I also learned to stretch and went in for massage, learned to meditate/breath/ect to help but none of this did all that much, yes it helped but i was still in pain all day doing all these things and often i hobble just to make my walk for the day, alot of the time people im walking with keep trying to tell me "we can stop, you look like your hurting pretty bad" because of my limp... i would always push on, it was something i always had to live with...

    So, years go by and im getting older and my pain is getting so much worse than im starting to toss and turn all night long, waking up in pools of sweat so insane i would take a shower, change cloths and sheets and lay down towel, lay back down and hour later im back in a pool of sweat, change towel and cloths, again in another hour or two, sometimes i would be throwing up all night long too, i had stomach problems like crazy, Gerd/Acid Reflux ect.. I was in HELL - no doctor was helping me (Still had kaiser, hadnt tried to go outside as most Pain Mgmt or doctors that would help with that wont take patients without insurance and kaiser only covers within kaiser) I was at the point of wishing for it to just be over, i had become depressed cause every moment of my life was suffering in one way or another and there was no reason for it (like i wasnt stressed or having any serious life issues that would cause any of this) - by 24 years old the Acid reflix/Gerd had eaten away at my teeth - all my doctors and dentists failed me there too, none of them ever helped with anything or suggestions/advice until i had spent 15k every 2-3 years repairing the damage through the ages 10-24 years old) it just felt like a money grab always, no doctor or specialist ever wanted to help....

    Also keep in mind, ive known many people who have had surgeries on their knees, most failed, one had everything come apart in her knee after surgery and destroyed it for good, others lost the ability to walk completely, I have no faith in surgeries - i would rather be able to walk than get surgery and take a chance that i may never walk again... My mom has already been put through AFIB heart surgery when she DIDNT HAVE AFIB and now two more surgeries sense to FIX what that doctor doing the AFIB Surgery did to her, then the new doctor can try to fix the actual SVT that she really has, I have so much mistrust for doctors at this point, no way your going to get me in for surgery on anything that doesnt HAVE to be done, if medication can reduce and help, that is my choice of care - AS i do everything else thats asked of me (Physical Therapy, Eating Correctly - trying to go vegan even tho im allergic to most veg/fruit just to feel better, Walking/Exercise, Stretching, Massage, Ect)

    I was at the point i was losing my interest in everything, when i cant do anything without suffering, im going on walks and spending my whole day just trying to reduce the pain level which is not really reducing but just keeping it from being that much worse the next day, I really wanted a way out of life - doctors i was seeing just kept trying anti-depressants over the years, none had helped - one did me feel happy but in a very fake way, you knew it wasnt real so it would make you feel >>>>>> in the end and had ups and downs where the down was way worse than normal... Finally a friend of my mother has a GP she suggests that tries to help my pain with medication - first week i was slightly sleepy and foggy, once i adjusted i was AMAZED at how many problems went away, for one i was able to EAT without having stomach cramps within 5-10 mins into the meal and acid reflux right after, i was able to keep the food down and my gas levels went down significantly (use to just constantly cramp from gas while/after eating ect), I then made it through a night of sleep without waking up in a pool of sweat, i was no longer having nights where i threw up ALL night long, My pain level went from a 6-9 average (rare 10 level from knees) down to a tolerable 2-4 (with still some random 7-10's on my knees but only if i did something like held them to tight indian style then released and SCREAMED to straighten them

    So once i had medication, my pain was controlled, all the other things that were destroying my ability to enjoy life stopped happening, my stress and depression was lifted cause i was no longer constantly being attacked by my own body and the pain level remaining was easily tolerated - i was now able to fully do what i wanted to do and sleep and enjoy life ect....

    One problem i had tho, it is seems my body is missing an enzyme or such that helps break down or use the pain meds because meds like Dilaudid and Opana have 0 effect, even when given by IV in hospital the Dilaudid had 0 effect, no reduction in pain atall, no tiredness, no itch, no warmth, no opoid side effect ATALL... also other meds seemed to be effective at like half or less their normal level for others - First time i saw others taking a 40mg OC recreationally - there was 4-5 people all throwing up from sharing the same pill while for me a whole 30mg IR helped the pain but didnt effect me in any negative way or make me sick or anything - I noticed that when i would complain that my pain was still fairly high the doctor was not enjoying raising the dose and being just a GP she finally told me i needed to get into a Pain MGMT Doctor (i was crushed, i was so happy to be taken care of but she was getting close to retirement and was reducing her practice ect, it was just time for me to find a new doctor) -- Also i had moved 150 miles away from home so it made sense anyways i needed a doctor near home..

    So i go through HELL for awhile, doctors left and right wont accept me because i had Kaiser Insurance (none near me for 150 miles and they wouldnt help anyways and were just lying to me left and right to avoid helping) and no other insurance company would accept me because i had WAY to many pre-existing conditions (they wouldnt accept me with 1/3 my conditions) and i get to the point where i was left without help for awhile again - i had to aquire some meds by any means just to get by which was putting me back into depression and worry always - i didnt want to live like that - but that led to information of a PM doctor finally! So i find this doctor and i go in with my mother that explains my history because kaiser "Redacted" my history so badly that it was useless for future doctors, this doctor did his checkup on me and read my history that i did have leading back to pre-teens and drug tested me, checked my blood and all the important stuff about that, mentioned that its just wrong that ive been suffering this long and that he will do what he can to help me... i was sooo relieved to know i had a PM Doctor that was highly recommended finally....

    PM Doctor also agreed with the first diagnosis and did tests to help explain where some of the other pain was coming from, Osgood Slaughters, Patello-Femoral Syndrome, Fibromyalgia, Cervical Spylondosis (after an MRI), Carpul Tunnel (im a computer programmer), Tendenitious, Osteo-Arthritus .... and im sure im forgetting something

    ... Continued in next post --- TLDR in next post but if your a reader and willing please consider reading it all....

  2. #2
    zypone is offline New Member
    Join Date
    Jul 2015
    Posts
    5

    Default

    Over the years (From about 24 years old aprox) my medication needs went up fairly quickly at first, as the meds just didnt effect me as much as others, 2-3 40mg OC a day helped but i still had slight issues with waking up in pools of sweat once in awhile and the pain levels still being in the 6-7 range and feeling withdrawls symptoms randomly ect... over the next year my dose got raised to 3x 80mg which to me at the time was a maximum needed for anyone, but ofc another year goes by and a IR medication gets added, 3x 30MG IR.... I always felt like the ER worked better for me so i requested to try only ER and in the end i was at 5x 80mg/day (~3-4 years of seeing the doctor to get to that point) All this time, not a single problem with my meds, my quality of life has grown substantially, everyone i see says i look Great and must be doing something right, my parents were much happier that i was more active with the family and showed up for more activities ect, damn near everything was improved in my life.... Well then the doctor started doing some fairly STUPID >>>> in his personal life (fooling around while married w/ kids ect), got himself in trouble and lost his office and disappeared, i was Screwed - i found out only cause of a phone call from a friend other wise i would have shown up at the office on my refill appt with closed sign and no idea what to do next... Well Kaiser finally comes through for me and my GP at kaiser takes care of me for a few months while i search for a new PM Doc (lucky my GP just figured if i was fine then and my family knew and approved, he just said i had 3 mo and gave me the refills)

    In the meantime i luck out and find out my doctor was still practicing, just had to move his office and because of the size of his office and whatever he went through there had already been major damage done to his practice - he wasnt able to get into his office to aquire the information to inform his patients that he would be out of service and such so people threw complaints to the Board against him, ofc i felt the same way when he disappeared but i knew that would be cutting my own throat - this guy was so helpful and good to me, what benefit would it be to attack him, but others did...

    So a case gets put against the doctor, but for a few years (as they slacked with the case as they always do in court, thank goodness!) i still had a PM doctor, Formulation on OC was changed and then i was sick as a dog again and back in some serious pain, i could take 2x the dose and it didnt help atall, i was pooping out whole pills! i dont understand how thats possible with such an acidic stomach that put me in dentures by 24 but they did nothing for me, then he wanted to try other meds first so he tried me on Opana again then MS Contin, Duragesic, Liquid Oxy, Actiq (worked but only for BT Pain and extremely expensive without insurance) Ect... none of which worked well in past and all gave me serious side effects - mostly left me in a pool of sweat all the time and a wierd uncomfortable feeling like that jittery bone feeling of withdrawls all the time... So the doctor gives in and does what he didnt want to, Full script of 30mg IR as it was the most effective medication left and it took about 4x 30mg IR to equate to the effective pain relief of what an 80mg OC did before they reformulated it, so at this point i was on ALOT of Oxy 30MG IR but i was 100% active, not nodding off or drowsy and i was working, taking care of pets, getting lots of exercise and going to hiking meetups ect, not one sign of over-medication showing in my day to day life, i was doing extremely well - my only fear at this point was the fact that florida caused SO many problems for the country that i was having a VERY hard time finding pharmacies that could fill my script - so many distributers started cutting off the pharmacies, going from 30k+ C2 a month down to 22K Then down to 16K then one pharmacy was dropped by their distributer completely without notice, just didnt show up with their meds one day with no explination (Cardinal Health >>>>ed up so bad in florida that we in CA have to suffer?) - i was pushed through 3 pharmacies simply cause they used Cardinal Health and were reduced so far they couldnt take care of their terminal patients let alone PM patients and some would only keep the Cash patients ect (sense insurance wouldnt accept me that was helpful but i always felt terrible for the insured being cut off, was told that one lady taking over $24,000 worth of meds a month that the insurance only paid something like $340 of that) but then with time i was pushed again to next pharmacy - i had to find a new pharmacy about every 6mo for the last 2-3 years cause of all these stupid law changes due to florida...

    So now im on a very large dose, my life is working perfectly well with no REAL issues, only thing i really hate about it is that i do have to worry EVERY month if the pharmacy is going to drop me or take care of me then worrying about if they do drop me its another week of searching and praying i can even find another capable of taking me as all of them were being cut by distributer and had to drop patients - so yes i had ONE stress in my life, was i going to get my meds or was i going to fear withdrawls.... the rest was gravy i could handle it all compared to what i had gone through in my past... I was a fairly happy person and felt set!

    Then i started worrying because doctor had a Temporary License for Family Support (That playing around years ago finally caught up to him) this turned into my only other stress in life, worrying if im going to lose my doctor AND worrying if i wont be able to fill... I kept him on his toes and always reminded him if that notice showed up on Breeze license lookup.... Also kinda worried about the case against him from the closed office, but most of that was just pissed off people cause they couldnt access their doctor and meds so i figured that was the least of my worries, most doctors end up keeping their license even after they have had OD deaths in their practice ect... so i didnt worry to much, Right around the time i start worrying that the Family Support was going to be a problem....i go check breeze and find, BAM - Disciplinary Action from Case - Decision - License Revoked!! (no probation no suspension nothing, just revoked, seemed the court expected him to have "rehabilitated" himself by taking all the classes that he expected they might make him take, book keeping/record keeping ect cause they couldnt read his writing, before he ever came to court, then decided instead of making him do them they would just revoke i guess...)

    So now im sitting, records were screwed from kaiser, doctor in fresno retired and really didnt have records as much as used them from the other doctors so nothing new from her, doctors i saw before i found help all denied me to lack of insurance so nothing added to record there even tho they would charge me $450 for a 5min visit where they told me they couldnt help and kicked out (SO RUDE and a Ripoff! Why no refund if no help! why see me without asking about insurance first!) and then when that doctor was kicked out of office, lost all the gathered records i had there too -- When i found him again he just knew my past so it was just continuation visits and again, really no added records ect... ive been on this medication for about 10 years now with excellent results (as far as everyone in my life is seeing and the way i feel) and now i believe ive lost my doctor for good (even if not, how long would it take for them to re-aquire a license?) When i lost this PM doctor a few years ago i went around and NONE of the other PM docs I or another patient i knew tried to see treated either of us with any respect, they immediately start yelling at us before even looking at our file or records or the paper we filled out in the waiting room - telling me how they have patients on 3-5x the medication that were on ect but then yelling at us like we shouldnt be on the medication, then the NEXT visit Now telling me that they dont have a single patient on even a third that much medication!!!!! (while i found these doctors cause of other patients i found that took the medication, some of which had upwards of like 6x 80mg, 4-6x boxes of Actiq, methadone, 480 30mg IR, sometimes with a pump inside them, Duragesic all at same time, ECT ECT too!!) so its not like these doctors dont prescribe the medication to patients ect but suddenly we were bad people that were doing something wrong because we were trying to start with a new PM doc and already were on the meds - its like the only way you can be on that much medication is if they raised you to that level otherwise its not possible you need that much cause their god complex wasnt the one to decide for you -- in the mean time im sitting there crying and begging saying - i understand my quantity is considered high for some doctors, i would be more than happy to try to reduce if they could help me i just didnt want to be cut off completely.... the doctor that said he had patients on 3-5x my qty then said not even on a third the amount next visit turned around and wrote a script for only 25% of the meds for ONE WEEK for the other patient i knew (67 years old, way more problems than me, post polio, hashimoto's, heart problems ect, absolutely no reason to thing this person didnt have problem) --- for me i was just straight up denied, as i have so little proof/records from my terrible past life that im just in about the worst possible position to get help now....

    If you read all that, i appreciate your time and anything you can help with, any input you have would be appreciated - i dont want to go back to the hell and suffering i use to deal with and im deathly afraid of the withdrawls


    Bah, Character limit -- TLDR in next post for real this time, heh...

  3. #3
    zypone is offline New Member
    Join Date
    Jul 2015
    Posts
    5

    Default

    TDLR;;
    When my doctor was revoked, i had seen him prior to the courts decision so his license was still valid and i got my 3 months worth of prescriptions for my pain meds - I had just filled the last one from previous visit so i still have all 3 but im wondering, those scripts were written when his license was still valid - ive found some things on the subject stating that they are still legitimate scripts because they were written when the license was valid and when you had a doctor-patient relationship and was no problems in the past ect... (my CURES report is solid too, i was good and never did anything wrong or early fills or "lost meds" refills or anything like that in 10 years) and then i found other things stating that are not valid because you need a doctor-patient relationship. I Was hoping someone could direct me to the information about if the prescriptions written by a doctor when their license was valid are legatimate even after revocation...

    Here was the proof i found, tho from west virginia so not sure if california would be the same, about the script just needing to be valid at time of writing http://www.wvbop.com/index.php?option=com_content&view=article&>>=67&It emid=96

    Then past this, What the heck should i do now? Does anyone know of any PM Doctors in Central California (Between San Francisco to Santa Barbara to Fresno or atleast fairly close within that triangle) as im willing to drive some distance if needed or take train up to SF, but i need to find another doctor without a GOD complex that is caring and willing to help not just attack and deny at every turn, i would hope my 10 years of no problems outstanding would help but it seems the doctors are just so unwilling to work with new patients that are already dependant or needing of meds and most of them want to push surgery or those nasty shots on you that hurt and never help anything... OH YEA! Another problem and the reason i get treated so badly by these doctors, i STILL get carded for buying things like a lighter - 34 years old and ive been asked atleast 10 times in the last couple of months "Are you atleast 18? or Are you atleast 21?" -- got asked by UPS a few times, got asked by a pharmacist i was picking up meds for someone who was unable, its just unbelievable that i was discriminated against in the past because I was "to young" for the medication and now im STILL being discriminated against simply because I LOOK healthy and young! Its bringing me down again and depressed to the point where im just wanting to give up, im so tired of fighting this >>>> constantly - why does the medication have to be so demonized, i was given a good life for about 10 years and no im looking into a deep black hole of hell... i havent completely run out of my meds yet but im trying to reduce so quickly that im already back in the pools of sweat ect but atleast now i can blame it on withdrawls not just my body being worthless to me...


    EVEN MORE TDLR; Can you fill a prescription in California from a doctor with a revoked license as long as the script was written while the license was current and valid?

    If I can fill them, i can work at reducing my dose by a significant amount over 3 months worth of scripts but if I cant fill them, what do i need to do to save my own butt from basically dying from withdrawls going from such a large dose to cut off?

    Thank you again for your time, i apologize for the long message as there was MUCH more i wish i could have included but just felt like i had already typed up a bit to much and forgot several things in the middle but ill be happy to continue explination ect if anyone was curious through private message

    I know alot of others are going through hell with their meds and the government criminalizing us for no reason so
    I wish everyone the best and hope good days and tolerable to no pain for everyone!!

    Thank you much, have a wonderful day!
    ...Zypone
    Last edited by Anonymous; 07-06-2015 at 11:18 PM.

  4. #4
    Thisweekforsure is offline Advanced Member
    Join Date
    Jul 2014
    Posts
    1,128

    Default

    Wow. I can't help you with the questions about prescriptions and licenses, it varies by State and I do understand it is becoming very difficult for pain patients. Between the legal situation, the insurance situation, the shortages of doctors, the stigma. People in pain are not getting the treatment they need.

    The one thing I can maybe answer for you is this:

    i could take 2x the dose and it didnt help atall, i was pooping out whole pills! i dont understand how thats possible with such an acidic stomach that put me in dentures by 24
    When you have an "acidic" stomach that backs up into your esophagus, you don't actually have too much acid in your stomach. In fact, you might have too LITTLE acid in your stomach. The problem is the gate between your esophagus and the stomach is not staying shut and it is allowing what acid is there to back up into your throat where it does not belong. But lower in the bottom part of your stomach where you need the acid to be strong, in order to digest your food, you might have not enough acid or the acid might not be strong enough.

  5. #5
    zypone is offline New Member
    Join Date
    Jul 2015
    Posts
    5

    Default

    I greatly appreciate your time reading my post and helping with what you can. I had never heard this possibility before, wonder if that had anything to do with Hydro/Oxy Morphone, as neither had any effect on me atall. I had Opana IR so they should have broken down? I recently read about a saliva test that can determine what meds are effective for you, I would like to know if i even have the enzyme needed to break down the morphones -- Dilaudid and Opana are SO much easier to get from doctor than OC IR - would be nice to have proof to be able to possibly get an exception.

    Any suggestions on finding another Pain Management doctor? I "thought" i was lucky to re-find this one when i lost him last but those who didnt and put complaints against him seem to have ruined it for me, when i lost him last time the Pain Mgmt doctors in the area were refusing to help anyone who previously went to my doctor - no matter what the problem/reason/cause... Seems like we the patients have been branded as bad patients simply cause we had this particular Pain Mgmt Doctor. What do you do when every doctor denies you based on prior doctor or dose?

    So far ive already gone down to 1/2 my dose... only two days so far but im trying really hard and hurt like HELL right now...hot/cold chills and cramps already at this low a dose so quick, so worried that ill run out completely while on to high of a dose that if i dont do this ill suffer way worse.
    Last edited by Anonymous; 07-07-2015 at 11:43 PM.

  6. #6
    zypone is offline New Member
    Join Date
    Jul 2015
    Posts
    5

    Default

    Guess im not going to get any luck on others reading the story, was a bit long and i even tried to avoid doing that, just to much to explain... tho the main question (at the end, with a TLDR) may have to be re-posted on its own as its quite short in the end, just was hoping to get help more than just my one main question...

  7. #7
    Thisweekforsure is offline Advanced Member
    Join Date
    Jul 2014
    Posts
    1,128

    Default

    Quote Originally Posted by zypone View Post
    Guess im not going to get any luck on others reading the story, was a bit long and i even tried to avoid doing that, just to much to explain... tho the main question (at the end, with a TLDR) may have to be re-posted on its own as its quite short in the end, just was hoping to get help more than just my one main question...
    Repost your story (maybe a little shorter, ha ha) in the Need to Talk forum. That one gets all the traffic.

    I don't know what to tell you about getting another PM doctor. This seems to be happening all over the country. I don't know what they expect people to do. Pain patients cannot get treated but anybody can buy anything off the street. The criminals are getting richer and the doctors are being forced out of business, the pain patients don't get treated but if you're willing to buy illegally it is apparently easy to be supplied. Something is very wrong with the policies, they are not working.

  8. #8
    LevyLev is offline New Member
    Join Date
    Oct 2016
    Posts
    2

    Default

    You could not be more accurate.
    Amen

  9. #9
    LevyLev is offline New Member
    Join Date
    Oct 2016
    Posts
    2

    Default

    So what are we to do? Any suggestions?

Similar Threads

  1. concerns with pain management doctor. oxy question
    By billybb in forum Drug Information
    Replies: 37
    Last Post: 04-13-2011, 06:12 AM
  2. Pain mgmt Dr's not prescribing pain meds??
    By izzybella in forum Patient Assistance Programs
    Replies: 1
    Last Post: 03-30-2010, 05:55 AM
  3. Pain Mgmt Doctor-Parafon Forte?
    By jenidarlin in forum Need to Talk?
    Replies: 8
    Last Post: 11-18-2007, 06:11 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22