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Undiagnosable leg pain
  1. #31
    LittleMissMelissa is offline New Member
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    Default I have the disease, the disease doesn't have me

    I fit so well into the unfortunate categories most of the members here fall into...a terrible, and debilitating pain in my leg that's gone undiagnosed by 6 doctors hence far. I wish I could tell each person what disease or syndrome they have to put his or her mind at ease.
    I have information that may be even far more precious than a label. That is that we, (including myself for several daunting years) search for an answer. We just want a name for what's causing the pain. What I learned in that search was the anticipation of getting a label caused far more stress than what the ending diagnosis by rule-out concluded to be, fibromyalgia.
    A blanket disease that will stop us relentless, worried patients from creating further and deeper problems for us. The mind can be toxic the body, especially in it's physical healing. Our eager search for answers, drilling in the idea that lupus or rheumatoid arthritis is a possible concluding diagnosis deepens the problems for more than what our already disturbed, discomforted bodies deserve.
    Naturally we do need to be plugged in with our health, but deal with the diagnosis when we have undoubtably tested in for something. Don't let the anticipatory anxiety worsen the bodies state, creating worse & possible tragic problems.
    I did that myself, worsening my condition with chronic worry, convinced I must have lupus or some other tragic disease. After years of test I was given the diagnosis by rule-out of fibromyalgia. Now that I don't think death is a possibility I'm nowhere near as bad as I was before the diagnosis. Now I focus on ways of getting better. There's hope with this disease.
    It doesn't have to be a life sentence. Many patients are against pharmaceuticals, well frankly I would like to live something of a happy life so after years of research I've found what's helped the fibro pain the most is Prozac, & Celexa from what I've tried. The claim is anti-depressants containing "tricyclics" help the most. I've also tried Lyrica, Cymbalta, & Savella. Which really only seem to work really well at first.
    I've dealt with personal Fibromyalgia research for about 9 years. Now I have leg pain in one lower leg so bad I can't walk at times. It wakes me through the night. I'm lead to believe it's the sciatic pain oddly enough. Pain this extreme feels like definite nerve pain. Blood clots have already been ruled out. I'm a healthy weight 26 year old. Best of luck my friends, and don't think it's the worse until they diagnose it that way, or we only make ourselves far worse with worry.

  2. #32
    mkd55 is offline New Member
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    Oh my gosh, I have been beginning to feel like I am the only person in the world with this problem! I have been having problems with my lower legs for years. I am in my late 50's chronologically, but in my mind, I am not! (except for osteo-arthritis)...I live in Phoenix, have seen many dr's, am an RN, h but my legs ALWAYS hurt. I have severe RLS (restless leg syndrome) which was diagnosed a few years ago during a sleep study, have had every blood test, X-ray, mdi, ct scan, injections & nothing works. I eat very healthy and do not use any artificial sweeteners, eat mostly organic, no meat...I also cannot tolerate long car trips. I feel very frustrated.

  3. #33
    benben123 is offline New Member
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    I too suffer. It started when I was s child. I recall the aching and pain crying as a child. My parents didn't have a clue what to do. As I got older I learned that my legs aren't as strong as other people and soaking in a tub or leg massages were all that worked. Today I can not knee or work on or near the ground since the pain is so servere and my legs seem not to want to work. My doctor threats me for restless leg syndrome but it barely helps me sleep. Since the aching I all I think about at night. My only theory is that I should of asked the doctor to try steroids on me while I was young. I would not want to be a parent watching their child go through what I had to and still do. Good luck.

  4. #34
    manjesh23 is offline New Member
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    Hi Team,

    I am 25 years old and from last 3 years I have pain in my legs, some times it stays in my left leg and sometimes it shifts to my right leg. Sometimes it shoots up like hardly I can move my leg. Initially it was once in a month but now from last 2 months its everyday. Taking Nucoxia 120 pain killer to bare this pain.

    Consulted all medical dept doctors and was not able to find out what it is. Did MRI, X-ray, LFT, Lipid profile and many types of blood test but no go.

    I eat much sugar, normal food habits only veg diet.

    Thanks in advance.
    Last edited by Anonymous; 02-20-2014 at 12:48 PM.

  5. #35
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    I have had leg pain since I was 10 or 11 yrs. old. I would ask my Mom if we could just cut my legs off. Ha! My husband used to rub my legs for me -- the kids would walk on my legs or hit them and sometiems I'd pay them. This lasted until I was roughly 50 yrs. old ... then it stopped. I am now 72 and it has returned with a vengence! Hate it!

  6. #36
    AllenNance is offline New Member
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    Default Yet unverified vascular problems - Leg pain - hitting legs for relief

    You're not crazy if you mean to say people think you are because of those experiences.

    I was diagnosed with multiple sclerosis 2 years ago, and the best guess is it became active at least 5 years ago.

    I have been having problems, however, for which I believe have been blamed on the M.S. too much.

    And that includes all the anomalies that come with circulation problems....and yea it starts in my toes and goes up from there.


    I punch my legs hell even NOW to get relief. I slap my legs while trying to move them and, yes, that includes trying to move them by wheelchairing next to a bicycle machine in a gym, transferring to it, then by hand lifting my feet into the pedals, and then moving best i can while holding and pushing on my knees with my hands.

    Even though I intentionally time taking oxycodone prescribed to me..just before I start trying to exercise, my legs go into IMMEDIATE FIRE ICE HELL SENSATION STARVATION..just like someone putting tiestraps in the crack of the groin flap (where the leg meets the torso).

    and it only eases off when I stop.
    After a few months, I started noticing little random patches of my skin started to have sensation return to them..as iff they been starved all this time...and the dull aches come and go all day and night and i can only sleep by way of medication.
    I'm workin on getting those legs ultrasounded so I can start the Doctors chasing down that road... but until the machine says....it doesn't exist.

    Modern medicine has failed me oh so many times. Oh yea poor circulation means less for the brain co concentreation problems and emotional control problems..... less to the eyes...one eye has visible neural damage so that's definitely MS on that but it still takes blood to get oxygene and oh look my vision gets better every so slightly after an exercise session frikin amazing isn't it...

    You're not nuts. Just live in a world quick to call you a scrip chaser or call you nuts or whatever.
    If you're not bull>>>>ting then good on ya, if ya are...ah well shame on me.. but in far too much pain of my own to worry about getting fooled i just put it out there.

    Best of luck to you, if you ever come here again.
    AL
    Las Vegas, USA.

    "Doctors don't listen to Patients they only listen to machines."














    Quote Originally Posted by chelseaglenn View Post
    Thank god for Google!

    I have been yet another long time sufferer of the chronic leg pain.

    I thought I was going mad and that I was the only one, but thanks to all of you that have taken the time to post your issues I am no longer insane!

    I am 37 years old, live in England and have had these problems since around the age of 21.

    I have had separate issues with my back, including having to have lumbar fusions and therefore ALL the numerous doctors and specialists have always tried to link it to this, but I know it isn't linked.......I just know.

    The pain is constant, like a deep agonising ache that nothing seems to help. I have to constantly jiggle and move my legs around just to try and shake the pain. I even have my 3 and 6 year old kids punch my legs all the time to try and get some relief (which they think is great fun by the way).

    It doesn't seem like we are getting anywhere with solutions or even a name to this problem, but like one of the other contributors to this discussion, I will be printing this off to show them all I'm not crazy!

    I am writing this from my bed which I reside in constantly now, as the pain is so bad.

    Good luck to us all.

    Glenn

  7. #37
    AllenNance is offline New Member
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    And to everyone having chronic pain may you all find relief.
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  8. #38
    aemesa is offline New Member
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    Same symptoms here. Currently age 22, I remember having pains in my arms when I was younger maybe 10, and screaming next to my mom in the car in pain. In my more recent memory, 15 or so, I've experienced the pain in my legs usually one at a time every few months. As stated by others, I could (can) play full court basketball for hours with excessive running and jumping and feel no pain whatsoever afterwards. but it could flare up in the evening after a lazy day. Just doing my part to log as many cases as we can in hopes of discovering its cause.

  9. #39
    guy654321 is offline New Member
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    Im happy im not alone I have had the same similar pains since birth every test in the book, everyone listed hear and more lots of different meds the only combo that I found that works and I really hope this helps some people is

    rub a535 extra strength or similar over the cream tiger balm, absobine JR, heat from either a heating pad, hot water bottle or a rice bag "google", and some extra strength Tylenol or Advil your choice of med with in a 1/2 to hour normally gone unless its a really bad day I hope this helps

    I find trying to ice it nearly kills me with more pain
    and for the love of god if some one finds out what this is please tell me user name at msn
    Last edited by Anonymous; 08-30-2014 at 11:42 PM.

  10. #40
    guy654321 is offline New Member
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    also for years I was told it was because I had flat feet and then couple years ago different doctor tells me I have extreme high arch so what does that tell ya

  11. #41
    Alan Shore is offline New Member
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    If you are using any diet items or sugar subtitutes that include "Aspertane", quit using them totally. Read product labels for any food that may contain it, (sweet & Low, equal, no sugar syurp).

  12. #42
    Steve Basuras is offline New Member
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    Hello, everyone. About three years ago, when I was almost 29 years old, out of the blue, I began getting shin splints. It was bad. If felt as though my legs were going to break. I rested for a month, and then i tried walking again. After only about a hundred yards, the pain was back. Before that I had been walking on my toes, and that seemed to help. I'd like to add that immediately before the shin splints, I had been working out a lot. I used to box and run endlessly, so it wasn't like I was new to exercise. I had never had any sort of trouble with my legs. My knees were fine. My bones were fine. It felt as though something had stopped doing it's job. Maybe a tendon or something. I went to several doctors and they could find nothing wrong with me. They've done x-rays and ultrasounds, and nothing. They checked my blood and my nerves, and everything is fine apparently. Obviously, I beg to differ. I'm in pain! I've tried four orthotic insoles and they don't help much. Recently, I tried walking barefoot and I felt no pain whatsoever. I've since bought some minimalist shoes and they're wonderful. I can walk for hours in them and not only do they not hurt my feet, i can actually feel my legs getting stronger. They really help. If it were socially acceptable to walk around barefoot, I'd do it! Anyway, I've developed a theory: most shoes have a raised heel. Most of the time, there's a pretty big difference in height between the front part of the shoe and the back of it. Well, I've noticed that when I wear my minimalist shoes, my upper leg extends more than with regular sneakers, restoring my natural gait. I think this might be helpful to some. Recently, I've been researching zero drop shoes and i'm going to buy some soon. I really think this might solve my leg problems, and it might solve yours. In short, here's my advice to you: lose the heel! Try zero drop shoes. I dont work for a shoe company, I'm just trying to help because I myself am in pain and I ll be >>>>>>>>> if i let it get the best of me. Try walking barefoot on some grass. It might take a while for your legs to get used to it, but trust me they will. I ll write more once I've bought and used some zero drop sneakers. God bless us all! We shall overcome!
    Last edited by Anonymous; 10-16-2014 at 06:33 PM.

  13. #43
    kendallr2552 is offline New Member
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    Hi everyone,
    I'm not sure how often, if ever, people come back to this page but I wanted to share my story. I've had "growing pains" ever since I was a kid. It's a deep leg ache that also makes them weak. I usually got them a week before my period and then they would go away. As I get older the flares have gotten worse, stay longer, and don't seem to coincide with my period anymore. The flares are exacerbated by birth control pills and anti-depressants. I've been to see my PCP, Neurologist, Rheumatologist, and pain clinic and none of the doctors were able to help although hydrocodone and oxycodone at least help me to get some sleep. I've always thought that it could be hormonal but since I don't have PCOS the doctors pretty much dismissed the idea even though I do have to pluck some chin hairs and have some melasma. The anti-depressants were always the thing that made me question if the leg pain was a hormonal symptom until recently I researched and found that menopausal symptoms are being treated with anti-depressants. At that point I was just desperate and my legs had been flaring for almost 2 months so I bought some progesterone cream thinking that I was either very sensitive to estrogen or possibly estrogen dominant and within a few hours my deep leg aches were gone. I also found that my jitteriness that I've been having in the morning was gone too. Maybe progesterone wouldn't help the men on the thread but men can have an excess of estrogen too. I've always tried to stay away from soy since that seemed to make my symptoms worse but in this day and age, it's in so many things and xenoestrogens are found everywhere which could potentially make men dominant as well. I hope this post helps someone. Good luck!

  14. #44
    sandy1959 is offline New Member
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    Hello Frankie, I am very interested to know if you ever found out what your problem was..I have been suffering from this exact problem since the age of 5..The pain has grown over the last 10 yrs, Its now from the groin down..im getting to the stage where i am worried i will end up in a wheel chair by the age of 65..
    The medicine the dr has me on is Endone as every thing else ever tried hasnt worked...and the endone make me sleep...i sleep around 15 18 hours out of 24...i feel so useless and frustrated...
    Sandy

  15. #45
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    Default hi

    Quote Originally Posted by chelseaglenn View Post
    Thank god for Google!

    I have been yet another long time sufferer of the chronic leg pain.

    I thought I was going mad and that I was the only one, but thanks to all of you that have taken the time to post your issues I am no longer insane!

    I am 37 years old, live in England and have had these problems since around the age of 21.

    I have had separate issues with my back, including having to have lumbar fusions and therefore ALL the numerous doctors and specialists have always tried to link it to this, but I know it isn't linked.......I just know.

    The pain is constant, like a deep agonising ache that nothing seems to help. I have to constantly jiggle and move my legs around just to try and shake the pain. I even have my 3 and 6 year old kids punch my legs all the time to try and get some relief (which they think is great fun by the way).

    It doesn't seem like we are getting anywhere with solutions or even a name to this problem, but like one of the other contributors to this discussion, I will be printing this off to show them all I'm not crazy!

    I am writing this from my bed which I reside in constantly now, as the pain is so bad.

    Good luck to us all.

    Glenn
    I know this post is old. But i have the same symptoms as you. I have restless leg syndrome. But mine is in my arms as well. I constantly shake or move my legs to get comfort or to shake the pain away. Ive had it for 16 years.

  16. #46
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    Default i know this is a old post. but your symptoms are just like mine. I have restless leg.

    Quote Originally Posted by chelseaglenn View Post
    Thank god for Google!

    I have been yet another long time sufferer of the chronic leg pain.

    I thought I was going mad and that I was the only one, but thanks to all of you that have taken the time to post your issues I am no longer insane!

    I am 37 years old, live in England and have had these problems since around the age of 21.

    I have had separate issues with my back, including having to have lumbar fusions and therefore ALL the numerous doctors and specialists have always tried to link it to this, but I know it isn't linked.......I just know.

    The pain is constant, like a deep agonising ache that nothing seems to help. I have to constantly jiggle and move my legs around just to try and shake the pain. I even have my 3 and 6 year old kids punch my legs all the time to try and get some relief (which they think is great fun by the way).

    It doesn't seem like we are getting anywhere with solutions or even a name to this problem, but like one of the other contributors to this discussion, I will be printing this off to show them all I'm not crazy!

    I am writing this from my bed which I reside in constantly now, as the pain is so bad.

    Good luck to us all.

    Glenn
    Have you looked into restless leg syndrome

  17. #47
    Anonymous Guest

    Default Can't stand on my feet! Ever.

    Frankie,
    I am in the same situation! Any weight bearing activity (standing, walking) causes pain in my feet, ankles, calves almost immediately. It's almost a constant ache or throbbing sensation, sometimes even a numb feeling. Once I'm in pain I can't even get comfortable while sitting...any pressure on my heels, calves or knees causes pain. I'm in agony! I feel like a 31 year-old in a 80 year-old's body.
    Have you had a diagnosis since you posted this? #pleasehelp
    -Jackie

  18. #48
    sandy1959 is offline New Member
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    Is so very frustrating, I have had all the tests like you Jessica. And nothing can be found. Im 56 and started with the pain at the age of 5. Over the years it has got worse. Im really worried to the extent that i will end up in a wheel chair..Walking becomes unbearable at times. the pain has grown over the years, started off below the knees, know its from my hips, and my lower back..I really wish there was something to releive this pain. Ive tried every pain killer available but to no avail, Even the chronic pain management clinic cannot help me. Ive tried every avenue i can thing of to try and get a diagnosis. But to no avail..Its that bad now i am on a disability pension...Surely there is somebody out there who has the answers to this problem we all have...

  19. #49
    Asianseniors is offline New Member
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    I am new this forum so I have to tell you a bit about myself to explain my pain. I am 60 year old woman on hemodialysis with peripheral neuropathy in my toes & feet. Just recently since a month ago I have started getting this horrible dull ache in my calves, shin and groin only on my right side. I have problems with arthritic knees and age related degeneration in my back. I used to be able to take pain killer, paracetamol only and get some relief but nothing seems to cure this horrible ache. I take gabapentin for mr neuropathy and mostly vitamins that are usually prescribed to patients with end stage kidney failure. I would love to hear from anyone in the same state of health as me

  20. #50
    diannef1 is offline New Member
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    Hello, I know this is years after your post but I just found this forum and I am wondering where things stand with your husbands leg pain. I do have intermittent unexplained odd placed swelling as well. Have you learned anything new over the years? Has his pain and swelling subsided, stayed the same, gotten worse? I'd appreciate an update if you could please.
    Thank you,
    Dianne

  21. #51
    sandy1959 is offline New Member
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    Unhappy Hi

    Hi, Its been a few years since i read your post, i also suffer the same as you but its from my ankles to groin hip area..Now on a disability pension..Was wondering if you came up with any solutions? As i cannot keep going on with this pain, its that bad now i feel like i soon will be in a wheelchair in the next few years...
    Sandy

  22. #52
    Mzfibrowarrior is offline New Member
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    My seven-year-old son has had this for 3 years and every time he takes medication to help them sleep at night Benadryl it doesn't matter what it is his legs start hurting or arms and all he could do is cry and hitting his arms against the wall or banging against the the bed to stop them from hurting I feel so bad for him I have given him melatonin and also another vitamin for nerves and muscles to help maybe in his legs I have no idea what this is the doctor says It's Growing Pains it is not going there because if it was it wouldn't happen only when I give him medication if somebody can like respond to this I appreciate it if you found out what it was my poor baby is suffering and I would really like to hear some type of answer thank you so much God bless
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  23. #53
    Mzfibrowarrior is offline New Member
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    Maybe it's fibromyalgia as I have it in my cousin has it

  24. #54
    Gailiana is offline New Member
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    i've been having the same problem since i was old enough to remember anything. This inexplicable pain has caused my nights unbearable not just to me but also to my parents. it usually happens during a humid or cold weather. i woke up at night and the pain hurts so much that i cant go back to sleep without massaging both my legs. during my high school, this pain will come if i had ice cream during the day(it sounds ridiculous but it's the truth). i'm still suffering this problem (i'm 21) though it doesn't happen as often as during my childhood.

  25. #55
    laurakeck is offline New Member
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    Look into hyperparathyroidism. My sister had it and was diagnosed in her mid 20s and describes the pain like many here do. I am having excrcuiating pain and am getting tested in a couple weeks.
    Last edited by Anonymous; 09-18-2016 at 01:57 AM.

  26. #56
    xcorp is offline New Member
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    i have suffered from sever leg pain since i was a child i am now 37. I have been to close to 100 drs and specialists with no one able to figure out what is wrong. It was originally though to have to do with the fact i suffer from restless leg syndrome. after trying medications that made me puke to all the narco drugs. Drs gave me Vicodin and morphine... nothing helped... Then one day i was prescribed Tramadol for some teeth pain i had. And i dont know why but upon taking the Tramadol i found leg pain relief. Even hard core pain killers never helped the leg pain not even a little.

    I am still searching for a cause,
    my parents are hard core diabetic so it was originally though to play role while i have been tested for diabetes i am currently negative.

    I did find that more my legs hurt the colder they would be, heat and massage helped a little but only while doing so, when i would stop the pain was in full force. Also the use of antihistamines or over the counter sleep aids made the pain much more sever and would even drive me to the point of feeling crazy.

    Not sure if this will help you but figured i would share!
    Last edited by Anonymous; 09-27-2016 at 05:41 PM.

  27. #57
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    I know this is a bit older thread but I thought this might be relevant. I am reading old threads here and finding lots of useful info. And i have a greater respect for everyone who suffers anything mental or physical.

    Anyway, so my best friend for 10-15 years had terrible pain in his leg. It got so bad he was on Lyrica, several pain killers and nerve calming medications. He saw doctor after doctor for years. I remember there was a time when he was so heavily "stoned" (not sure what else to call it) on assorted painkillers etc that one half - one beer (hanging with friends on weekends) he'd be out by 8-9pm.

    There's a point to this story. I promise. SO, several years ago, someone somewhere finally had enough bullpoopery from the Doctors and said "we're going to send you to a specialist" and they did. He scanned, X-ray' d, MRI'd, you name it. And guess what he found? A grapefruit sized tumor pressing on my friends leg nerve. How did -everyone- else miss that? Because they were not looking at the whole picture. It was removed, he was soon off his meds, and within a year he was the guy I knew so long ago.

    If you have leg pain and cant find a cure or why, dont stop ever, always seek answers, always ask questions and keep your head up high. You are doing something many people wont and don't - you are taking care of your issue by learning and being more intelligent as a patient. And you may one day find that "tumor" or something as simple that can fix your problems.

    Much love to each of you with leg pain, RLS, nerve pain, etc. I hope those of you who posted years back found your answers and to anyone who reads this, I hope it motivates you like the wonderful people here do and you find your answers!

  28. #58
    Thisweekforsure is offline Advanced Member
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    Good example of why we need to be able to take ourselves to a specialist and not have to wait for gatekeeper doctor referrals. Thanks alienmeatsack, good story.

  29. #59
    SerenityFL is offline New Member
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    How many times have I looked up leg pain on the internet and never found this site until today. I don't know about the rest of you, but I want to dispel some of the answers that some are giving.

    This is not a cramp in the leg like one gets when they don't get enough potassium. I know what those are, this is not it.

    This is not shin splints. I used to run track, I know what those are, this is not it.

    This is not restless leg syndrome.

    This is not arthritis.

    This is not fibromyalgia.

    This is not always from childhood....mine did not start in childhood.

    This is a pain that doctors can not figure out.

    In 1999 I was in a car accident that messed up my spine pretty badly. Luckily, and I really mean that, I can actually still walk. I went to a chiropractor after the accident to get adjusted and the shooting pains down my arms went away, the "permanent bruise" in the middle of my spine (so bad that I could not sit back in a chair) took about 2-3 years to finally go away, and I overall felt a little better, although the pain never, ever goes away.

    So, about one year later, I'm at work and notice that my lower legs are hurting really badly. It's an aching pain...and a little bit throbbing. But it feels very deep in the leg. Also, sometimes, it feels like electrical impulses are shooting out every so often...that's the only way I know how to describe it. Something is going on with the nerve endings for sure.

    My first thought was, "This has to be due to the accident". Told the doc about it. Nope. It wasn't. But doc did not know what it was. He was stumped.

    I suggested, since I had been in track, that maybe it was shin splints from the hard concrete floor just under the very thin carpet at work that I walked on all day long...maybe that was the culprit. Nope, not shin splints. And again, I know what those feel like, they are not fun at all, but this is a different pain. Still, I suggested it because I didn't know what else to do but start throwing out guesses in case the doc didn't think of it. (Right.) Not shin splints.

    In 2004, I broke my ankle. I got an xray, of course, and I remember looking forward to seeing it because if there was something else going on with my leg, it was going to show. Nothing. There's no fracture, there's no anything...I stated that it feels deeper, if there's anything to show, it will also be deeper because bones and muscles wise...not a thing shows up.

    But I still have this pain. It does not change with the weather. It does not change with different types of food. It has not gotten worse or better over time.

    It is always an underlying pain, all day long, never stopping, but you learn to live with it and block it out. However, every so often, it flares up and the pain is too much mainly because of those little electrical currents (it feels like...no, not pins and needles, I know what those feel like, this is not what I'm talking about), that feel like they are going through the leg.

    I get it in both legs, but my left leg seems to get it more harshly than my right leg. Right this second, as I'm writing this, I've been dealing with a flare up in my left leg tonight while my right leg feels "fine" (as fine as it's going to get because there's always pain, but the right leg is "normal" as in my new normal since this started in about 2000 or so.

    When this started, I was obviously 17 years younger, thin, youthful, did not have a bad diet, not high cholesterol, or anything else that people have been throwing out there as "what it is". It's not caused by diet, it's not caused by over exercising...again, we've all been to the docs...it's none of those things.

    I came looking for something again tonight and found this forum for the first time despite how many times I've looked up leg pain over the years.

    We still don't know what it is, 5 years after this thread was started. Docs don't know.

    BUT! Let me tell you what helps with the pain:

    1) get compression socks. OR if those are not tight enough for you, (weren't for me), get ace bandage and wrap your leg when you feel that flare up that makes you want to cut your leg off.

    I'm not a medical doctor, I'm not giving you remedies, I'm ONLY telling you what I do and it alleviates some of the pain and throbbing.

    I used to use compression socks but they would not squeeze my leg tight enough. I needed to put massive pressure on my leg to reduce the level of pain. For me, I use ace bandages and I wrap that thing up very tightly. If you do this, you do NOT do this as an all day or all night remedy. If you wrap it really tightly, you have to monitor because you can't have it on that long...as you're essentially cutting off blood flow...or not completely but you're cutting off supply.

    Nonetheless, by adding that amount of pressure to your legs, it actually alleviates much of the pain.

    How I learned this is that I used to beg a co-worker, male, who was pretty big, to come over and squeeze my shin as hard as he could when I would be on breaks and he would also be on breaks. It looked ridiculous, but let me tell you, having that pressure squeezed on the leg felt like heaven. It was instant relief. Since I cannot carry this co-worker around in my bag until I need him to squeeze my legs as hard as he can, I use ace bandages. But if you have someone who can squeeze your leg really hard, use that, instead...it feels better.

    2) TENS equipment. If you don't have this, you must get it. Make sure that you read the directions thoroughly. TENS will send electric signals to wherever you place the pads. Mine comes with 4 pads so I put 2 on each shin area of my legs when the pain gets really bad.

    YOU MUST read the instructions for the TENS equipment or you'll cause yourself pain.

    I slowly up the amount of current to where it's definitely sending strong signals, but it's not giving me sharp pains with each current.

    Mine also has a timer so I can set it for like a half an hour and it will automatically shut off. If you use this method, you can get all set up in your bed or on the couch, lie down, put the pads on where the pain is worse in the leg, get the settings right for your comfort and relief, lie back, set the timer, turn it on, relax. You can even just go to sleep because the unit will shut off.

    3) I learned this when someone gifted me 30 minutes of a massage bed while on vacation. Some spas have these massage tables where the whole table can massage you. You can set to massage your upper body or your lower body while you lie down, all relaxed.

    I set it up to massage my shins area on my legs. I lied down on my stomach, set the bed, set the area, got settled in, and clicked "start". For 30 minutes that massage bed massaged the front of my legs. I can tell you that for 10 minutes, it felt really, really, really good. It felt so good I wanted to cry.

    After that, I have no idea how it felt because I fell asleep, that's how good it felt.

    I will tell you that when I woke up when the 30 minute timer was going off, I got up, groggily, (I slept deeply in that time that's how good the massage table was), stood up, and took a few steps. I noticed something.

    For the first time in 7 years (meaning I did this 7 years after the pain had started in my legs), I felt normal again. My legs felt like they felt before this mysterious long term pain started. I felt like a normal human being again. I was so happy. I was so thrilled. I wanted to take that massage bed home. If I was wealthy, that would be the very first thing that I would buy to put in my new house. I'm not kidding. It will make you feel normal again. It's worth the cost every so often.

    Still don't know what it is or what is causing it, but at least I hope that some of you can find relief through some of the temporary remedies above...because we know, Ibuprofen or other pain killers don't do it.

  30. #60
    kawaii17 is offline New Member
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    Hi there.. it has been 11 years since this thread started. I am experiencing the same problem. I remember growing up even as young as 5 or 6 y/o, i couldnt sleep at night and used to scream. My parents would tie a hand towel/scarf around my calves and for some reason it helped me sleep. I grew up in Southeast Asia and the pain just happens with whatever weather. the pain however occurs only at night. I cant really describe it maybe a throbbing pain all throughout the lower legs and knees and ankles? Fast forward 15 or so years and im living down under. I would go on months not feeling it. Today I was at work ( a desk job) all day.it was colder today than normal (as it is winter here in Australia) and for some reason when i got home i felt the pain. having a hot shower or standing in front of the dryer and wearing fleece pants and thick socks help however when going to bed i cannot sleep. i would then tie a scarf on each calf and it helps me sleep (with some pain killers of course). My GP thinks it is weird. I am glad to have found this forum so as a proof that it is not all in my head. Tonight i was cranky and sluggish due to the pain and it greatly affect my kids and husband. I am only 23 and is afraid of the pain worsening and getting more frequent as i grow older.

    one thing i find as well is i could be running on a treadmill at the gym or do jumping jacks in a class and it wouldnt hurt at night. but i find that walking for a long period of time + cold breeze = that terrible pain on my legs.
    Last edited by Anonymous; 08-02-2017 at 07:03 AM.

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