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11 months opiate free yet still feel unwell every single day
  1. #1
    Randomanon is offline New Member
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    Default 11 months opiate free yet still feel unwell every single day

    Last March I quit opiates after 10 years of poppy pod abuse. I weaned down using dihydrocodiene. It's been 11 months and I still physically don't feel well. Fatiqued, anxious, yawning etc.

    I had a blood test but everything is fine. I feel like I'm coming down with the flu 247. A few weeks ago I took a few dihydrocodiene to see if it is paws or something else. It eliminated how I was feeling for 6 to 12 hours and then it was back again. And even then I'm thinking if it is something serious the pain killers could be masking the uncomfortable flu symptoms, which makes it seem these symptoms are paws when they are not.

    Taking those pain killers were a one off. But I'm at the end 9f my tether. I feel unwell all day everyday. I keep thinking I have Lyme disease or something like that because how can I not be getting better.. The Dr doesn't know I'm an addict so I'm in a rock n a hard place. Ut even if they did know, what would they do.

    Is this normal. At this stage. It's >>>>ing rediculous.
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  2. #2
    extremetm is offline Junior Member
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    I quit norco almost 11 months ago after 10 or so years of pain killer use. Tapered off over a few month period. I had what you describe during the taper but it was very minimal and only occurred during the first 1 to 3 weeks. Then came the psychological part for about 6 months which decreased monthly.

    Oddly on my 8 month mark I really craved opiates again. I called it the 8 month itch but again it was psychological not physical. I've read about a lot of people relapsing during that period but to feel like you have the flu all the time and being anxious is something I've never heard of at even 1 to 2 months, much less 11 months.

    Today I have no symptoms and feel normal except for the occasional thought of norco, usually after a great dinner out which was a trigger for my 'after dinner pill.'

    I'm no doctor but it seems like what you're experiencing is something else and not opiate related.
    Last edited by Anonymous; 02-19-2019 at 12:21 PM.

  3. #3
    Lvg nghtmare is offline Platinum Member
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    Quote Originally Posted by Randomanon View Post
    Last March I quit opiates after 10 years of poppy pod abuse. I weaned down using dihydrocodiene. It's been 11 months and I still physically don't feel well. Fatiqued, anxious, yawning etc.

    I had a blood test but everything is fine. I feel like I'm coming down with the flu 247. A few weeks ago I took a few dihydrocodiene to see if it is paws or something else. It eliminated how I was feeling for 6 to 12 hours and then it was back again. And even then I'm thinking if it is something serious the pain killers could be masking the uncomfortable flu symptoms, which makes it seem these symptoms are paws when they are not.

    Taking those pain killers were a one off. But I'm at the end 9f my tether. I feel unwell all day everyday. I keep thinking I have Lyme disease or something like that because how can I not be getting better.. The Dr doesn't know I'm an addict so I'm in a rock n a hard place. Ut even if they did know, what would they do.

    Is this normal. At this stage. It's >>>>ing rediculous.
    Hello welcome to the forum...
    I have to say I'm no doctor I can only share my experience. We all recover at different rates. What works for one person may not for another no cookie cutter answer sorry. What have you done for your recovery the last 11 months. Diet, exercise are you getting support from other addicts going threw all you are... Face to face support?? Keep posting we are all here to support you... Again welcome...
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  4. #4
    Randomanon is offline New Member
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    After reading around on the Internet I'm now worried I have chronic fatigue syndrome. Panicked acually. But would that mean taking an opiate would subside my symptoms. It doesn't make any sense does it.

  5. #5
    Lvg nghtmare is offline Platinum Member
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    Quote Originally Posted by Randomanon View Post
    After reading around on the Internet I'm now worried I have chronic fatigue syndrome. Panicked acually. But would that mean taking an opiate would subside my symptoms. It doesn't make any sense does it.
    Hey randomanon...
    I really get what you are feeling and going through. I think a lot of us here do we really just dont talk about it to much. I know in my experience I to thought something was just off still do tbh... I have awesome insurance so I have had and still do have every test imaginable... Not kidding. Chronic fatigue syndrome will show up in your blood work. I think for me that I abused drugs so long that now I'm clean no drugs to mask feelings that I didn't grow naturally into myself it happened quickly like I aged my whole life in the two+years I'm clean, not gradually if that makes sense... I believe in staying active, positive mindset, being part of your community, being of service, having a good support team in place helps our brain and our bodies heal. Remember we didnt get here in one day so it takes time to heal... Imo stop searching for that magical pill that cure because I promise you I would have found it I searched the entire internet lol... Live in the moment... All we are promised is today... Worry about tomorrow Tomorrow...
    Keep posting and reading this place is an awesome form of support...
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  6. #6
    UncleLeo is offline Advanced Member
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    Rando - you're just healing still...so no need to panic. If it was something more serious it would have shown up on your blood panels.

    I know a few of us healed really slowly and it was SUPER frustrating. I def had that flu like feeling until about the 12-14 month mark Like Lvg said, the more you can do those other things that faster you will heal though.

    I found that forcing out into nature was and still is the best medicine for getting your brain to rebuild those pathways. Even if it's just a short walk every day in nature, maybe give that shot and tell us how you feel after?
    Lvg nghtmare likes this.

  7. #7
    Randomanon is offline New Member
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    Thanks uncle Leo. I exercise when I can but most of the time it feels the same. It used to work but it's like ur brain figures it out n stops working.

  8. #8
    UncleLeo is offline Advanced Member
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    Yeah I know that feeling Rando. So what does that mean - you exercise when you can? You have kids? Sorry I don't think I know much about your story.

    Exercise - it's 5am here in NorCal. At 6am I do spin class, then go to work. At 12 noon I'll do Crossfit, then work. At 4:30pm I have a yoga class I go to.

    If I don't do that stuff - yes, my brain figures it out. Meet me halfway? What can you do at this point? Exercise wise? Do you have a good therapist too that you can talk to?

  9. #9
    UncleLeo is offline Advanced Member
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    What's the word Random?? How was your day?

  10. #10
    Randomanon is offline New Member
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    When I started exercising a month into paws it helped but now I don't find it helps as much. Like my body has built up a tolerance to it.

    If I take a painkiller once every 48 72 hours to help me function at work. Will this prolong paws. I know ppl will say NO. But I had painkillers sitting in my room for a whole year with no temptation to even open the box. Its just I need to go to work. I haven't worked in a year. I need to function. I could be waiting years for this to be bearable to go to work. So if it means I cycle and it leads to a more productive life. As long as I avoid physical dependence, this should not prolong paws will it.this is my reasoning. I'm not doing it to get high and if the paws are not bad I refuse to take anything.

    It's a marathon not a sprint. I was stubborn for a year but as long as I don't get dependant and NEVER Ever take two days in a row will I be fine.

    On the exercise thing, I would push myself so hard thinking that I would heal my brain at a faster rate. I kept it up for 9 months and that's when my enthusiasm drained. When you put all effort into something and get nothing back its tough. I still exercise but not as regularly.
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  11. #11
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    u don't know how lucky u are to be clean. ever hear the saying-- something like /100 pills is never enough but 1 is too many. If you were addicted to opiates, taking a pill is going to send you down a bad path you don't want to be on. My advice, be honest with your doc. Also, you should be working the steps and going to therapy. Look up what a "dry drunk" is. You can physicially not be taking anything, but if your not living a sober life mentally, you wont get or feel better. Again, be honest with your doc. See if he has checked your Thyroid. I ended up with hypothyroid and had almost every symptom which can mimake chronic fatigue. Now I'm on thyroid meds and the fog has cleared. Flush those pills. remember what acute withdrawal was like. Taking a pill to get a 3 hour high, that youll be chasing, is no way to live. They are NOT worth it. Have you tried vitamins like B and D? THey help with energy
    Last edited by Anonymous; 02-23-2019 at 04:25 PM.
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  12. #12
    Ricky71 is offline Platinum Member
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    Quote Originally Posted by Randomanon View Post
    When I started exercising a month into paws it helped but now I don't find it helps as much. Like my body has built up a tolerance to it.

    If I take a painkiller once every 48 72 hours to help me function at work. Will this prolong paws. I know ppl will say NO. But I had painkillers sitting in my room for a whole year with no temptation to even open the box. Its just I need to go to work. I haven't worked in a year. I need to function. I could be waiting years for this to be bearable to go to work. So if it means I cycle and it leads to a more productive life. As long as I avoid physical dependence, this should not prolong paws will it.this is my reasoning. I'm not doing it to get high and if the paws are not bad I refuse to take anything.

    It's a marathon not a sprint. I was stubborn for a year but as long as I don't get dependant and NEVER Ever take two days in a row will I be fine.

    On the exercise thing, I would push myself so hard thinking that I would heal my brain at a faster rate. I kept it up for 9 months and that's when my enthusiasm drained. When you put all effort into something and get nothing back its tough. I still exercise but not as regularly.

    Do not take a pain pill, that's how full blown relapse happens! That one pill every 48-72 hours will eventually turn into multiple pills every day and that's a fact!

    I'm going to leave you with some homework! I want you to research what PAWS is? I'm quite certain that you do not know what it is because what you're experiencing is not PAWS! I'll be on the lookout for an update? Take care... God bless us all!
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  13. #13
    UncleLeo is offline Advanced Member
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    Sorry you're struggling so much Rando. Can tell you're at the end of your rope. Have you read my thread? It's over on the Suboxone page.

    It's pretty long...but you can prob skip to me whining like mad at the 12 month mark how miserable I was. I didn't think it would ever ease up. But eventually it will ease a bit. Your receptors and pathways are still healing. If you put any opiates back in there it will reverse the healing. Trust the process. Keep posting. Complain away here...it's good for that. People do care.
    Lvg nghtmare likes this.

  14. #14
    Randomanon is offline New Member
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    Some ppl are saying this isn't paws. Who do I believe. Most ppl don't say they still feel unwell this far into absistence.

  15. #15
    extremetm is offline Junior Member
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    Like I said earlier, I've never heard of anyone experiencing flu like symptoms after 11 months but I did find a few things about PAWS on drugabuse.com. It states:

    "Symptoms of PAWS will manifest themselves after the end of acute withdrawal, but can appear anytime within several weeks to several months after drug cessation. The drug classes discussed above (opioids is in the list) have different long-term effects on the brain, and the symptoms of PAWS will be different, depending on which substance, or combination of substances, was used.

    Effects of this syndrome may then continue for anywhere from 2-3 months to several years. There are anecdotal reports of individuals who continue experiencing prolonged withdrawal for the rest of their lives, though this appears to be extremely rare."

    I found this on another Optiate related site:

    "How Long Does Opiate Withdrawal Last?
    Opiate withdrawals can start as little as 12 hours after the last dose. Acute withdrawals typically last one to four weeks, but post-acute withdrawal symptoms (PAWS) can last years as a patient’s brain chemistry equalizes. Post-acute withdrawal symptoms typically include anxiety, mood swings, and other mental health effects."

    Unfortunately, you're not going to find your answer on an internet discussion board.

    If it were me, I'd find a doctor and run more tests until I found an answer or at least ruled out the common things that can appear like the flu. I do know that taking more opiates will only lead you back to a full-on addiction as others have said.

  16. #16
    Ricky71 is offline Platinum Member
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    Quote Originally Posted by Randomanon View Post
    Some ppl are saying this isn't paws. Who do I believe. Most ppl don't say they still feel unwell this far into absistence.

    PAWS (Post Acute Withdrawal Syndrome) in general is very rare. PAWS happens weeks or months after the acute withdrawal stage is over! PAWS only lasts for a couple of days and then goes away! PAWS symptoms are usually less physical and more emotional and psychological.

    The following is a direct quote from an addiction and recovery web page-

    "Each post-acute withdrawal episode usually last for a few days. Once you've been in recovery for a while, you will find that each post-acute withdrawal episode usually lasts for a few days. There is no obvious trigger for most episodes. You will wake up one day feeling irritable and have low energy. If you hang on for just a few days, it will lift just as quickly as it started. After a while you'll develop confidence that you can get through post-acute withdrawal, because you'll know that each episode is time limited.

    Post-acute withdrawal usually lasts for 2 years. This is one of the most important things you need to remember. If you're up for the challenge you can get though this. But if you think that post-acute withdrawal will only last for a few months, then you'll get caught off guard, and when you're disappointed you're more likely to relapse."

    Like some of the other posters recommend, continue to seek answers through the doctor/doctors/specialists/labs, etc...? Exhaust all the testing that you can? Try eating a clean diet with mostly plant based foods? Eliminate refined sugar! Stay hydrated by drinking plenty of water! I hope you feel better soon! And remember, opiates are not the answer! Take care... God bless us all!

  17. #17
    UncleLeo is offline Advanced Member
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    My symptoms lasted over a year...a million doctors tests wasted. So didn't Ming's. So did Lvg. Those are just 3 people off the top of my head who took longer to feel better. But of course get things all checked out. Just don't give up hope and give in.

    Can read my thread or Lvg's or Ming's all detail the issue. Not sure why people who never experienced it want to tell you you're not experiencing something real that others have gone through. We have. It's all well documented.

  18. #18
    Ricky71 is offline Platinum Member
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    Quote Originally Posted by UncleLeo View Post
    My symptoms lasted over a year...a million doctors tests wasted. So didn't Ming's. So did Lvg. Those are just 3 people off the top of my head who took longer to feel better. But of course get things all checked out. Just don't give up hope and give in.

    Can read my thread or Lvg's or Ming's all detail the issue. Not sure why people who never experienced it want to tell you you're not experiencing something real that others have gone through. We have. It's all well documented.

    I'm not sure if UncleLeo is referring to me, but if he is, he is completely right in saying that I've never experienced what you are going through! I'm not saying that what you are experiencing is not somehow related to the 10+ years of opiate use, what I am saying is that this is not PAWS. Please look up the definition of PAWS, I tried to explain it earlier in the best detail I can? I really hope you feel better soon! Take care... God bless us all!
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  19. #19
    UncleLeo is offline Advanced Member
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    Not referring to you at all Ricky - you were there through all of my journey and Mingy's. You remember what we went through. I just don't want him to give up hope or think he's dying.

    I mean don't get me wrong - I went and did overnight sleep studies, joined a sleep therapy group even cause I was so so exhausted awful feeling every day. None of it worked. Got tested for thyroid and testosterone and vitamin deficiencies...you name it.

    In the end it was just continuing to eat well, exercise a lot, and get therapy and community. Re-building those destroyed pathways of neuroplasticity that had been so knocked down. I'll prob suffer the consequences my whole life. But it's still a whole lot better than it was. So don't give up hope.

  20. #20
    Randomanon is offline New Member
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    Thanks uncleleo and Ricky. Your the only thing giving me hope right now. Where can I read about ming lvg threads...

  21. #21
    Ricky71 is offline Platinum Member
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    Quote Originally Posted by Randomanon View Post
    Thanks uncleleo and Ricky. Your the only thing giving me hope right now. Where can I read about ming lvg threads...

    Mings Thread - https://forum.drugs.com/suboxone-tre...ugh-69417.html

    Lvgs Thread - https://forum.drugs.com/suboxone-tre...one-72381.html

    UncleLeos Thread - https://forum.drugs.com/suboxone-tre...wer-69249.html
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  22. #22
    UncleLeo is offline Advanced Member
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    Rando - I feel your pain...I'm too afraid to go back and read my thread cause I was sooooo soooo dark...but if you ever feel like no one gets it...sometimes misery needs some company. Check out my thread on Ricky's link

  23. #23
    Randomanon is offline New Member
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    On one of the 3 links I was reading about the gates with dopamine but can't now find it. Any help please.

  24. #24
    Randomanon is offline New Member
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    Found it on Google. Ignore previous.

  25. #25
    Ricky71 is offline Platinum Member
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    Quote Originally Posted by Randomanon View Post
    Found it on Google. Ignore previous.

    So you found it? Here's the link in case you found something different -
    https://forum.drugs.com/need-talk/ou...ain-65986.html

    The 3rd post down is the most interesting!
    Last edited by Anonymous; 03-01-2019 at 08:38 PM.

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