Results 1 to 12 of 12
Like Tree2Likes
  • 1 Post By Anonymous
At a loss, dont want to swap one vice for another
  1. #1
    dreamingathena is offline New Member
    Join Date
    Jun 2017
    Posts
    3

    Default At a loss, dont want to swap one vice for another

    7 years ago I lost all the skin on my hands, feet and joints, plus had this radiating pain. Every specialist I saw had a diagnosis. After a year of tons of medication trials. I final started having normal skin again but the back and joint pain was still so bad it was hard to think or move which sent me to pain manager. From there my story goes like most I guess. At the point I knew I couldn't continue to live like this I was at 180mg slow release morphine, flexiril, ambien and 60mg of percs. Tapering has been a killer. Dropped flexiril cold turkey. The whole taper (5 months) plus 2 weeks getting off the morphine just about broke me. So lastly was the percs. I have tried so many times by 2 weeks of being so sick, crying day and night no sleep the doctors just tell me to go back to taking percs. At this point I only live not to be sick. Cant go anywhere. For months the doctors have been suggesting subs. I have a friend that did that and just switched from one problem to another. I final hit a really dark place since I knew I could be sick again like the last try. Even the 24 hours needed to be opioid free to start sub was almost to much this time so please understand I did not come upon this decision lightly. I am terrified to get hooked to something new.

    So at 34 hours final 10 mg of percocet I was prescribed 8mg daily for 7 days of suboxone. I had little faith this time in doctors plus I felt like death and holding onto sanity by thread so I put a hand out to a friend. Thank heaven. He too didnt want me to start the sub but has seen me try over and over to get off and I think heard my desperation I never ask for help. He saved me on many levels yesterday. I know I have no more than 2 months at the very worst to taper off suboxone. 8mg is to much daily so it's been 17 hours since my initial 4mg dose. I have a headache some nausea very light w/d symptoms for the last 3 hours but after yesterday this is nothing. Going to NA meeting in hour. I am not sure when I should take next dose. As I write I am feeling my sore teeth from grinding and sucking at my teeth. Ugh. I planned on it being only 2mg in am and 2 in PM for 4 days. Or since the w/d isnt to bad at the moment should I just wait till PM does. If so should I do 4mg again or try 2mg. Maybe this is nit picking but my life has been on pause for years I am always sick. I have read so many posts which makes me more indecisive. Any suggestions support welcome.

  2. #2
    Wavision is offline Member
    Join Date
    Jan 2018
    Posts
    496

    Default

    What opiates and how much were you taking most recently?

    You say your last 10mg of percs. Did you taper down to 10mg?

    How long have you been there?

    The sub taper plan is stickied at the top of the suboxone sub forum. Read through that. It is the taper plan many of us have used to get off subs with minimal issues.

    It shows you how to induct so you are on the smallest dose possible to start with.

    It calls for a max 25% drop in dose every 4-7 days or whenever you are stable(little to no symptoms at all).

    I was able to drop every 4 days until I got down .25mg and below. Partly due to catching the flu.

    After each drop, I would usually run into some minor symptoms at the end of day 2/beginning of day 3, but then stabilized to drop after 4 days.

    How many total strips do you have? Can you get more?

  3. #3
    dreamingathena is offline New Member
    Join Date
    Jun 2017
    Posts
    3

    Default

    Recently I was on 60mg of percs daily 7 days ago did a couple 40 mg days then day of 30mg 2 days of 20 and 1 days of 10mg followed by 30 hours of nothing Tuesday 630p I started 4 mg suboxone and 2mg in an and PM today.

    I read a bunch of post but not on message boards often so I will look and read all the suggestions in your post. Rough couple days first NA meeting I tried today is no longer there about to hit 730. Really need support no failure anymore. Hate saying to everyone I am sick. I want to live. Not sure how I feel on this dose. Mind also so worried about getting off 2 things now but couldn't get off the percs without this extra help.

    Thanks i will check all resources you provides

  4. #4
    Anonymous Guest

    Default

    Do you still have pain issues unrelated to withdrawal? How do you plan to manage that if you do? Mind me asking what your diagnosis is?

  5. #5
    dreamingathena is offline New Member
    Join Date
    Jun 2017
    Posts
    3

    Default

    Yes I am in pain most of the day but it's hard to say how much do to withdrawals aggravating everything. Plus when my body is under stress my immune system acts up and it's like having a horrible flu.

    I have psoriasis arthritis and being the lucky gal that I am I suffer from all listed side effects and some. Since my immune system start attacking skin and joint tissue over 9 years ago I have tried everything which is why I turned to pain management. I didnt want to start a life time of surgeries, then in my early 30.

    Honestly I dont know how I will manage my pain. In the days before diagnosis they thought it was fibromyalgia. Tried 3 different medications they caused such extreme depression I almost made a horrible mistake. It's been a long road. So little support. When you body is unbalanced it causes issues in every organ system.

    So I am looking for forums on diet, and supplements. If anyone has a link to where I can find that on forum I would be grateful

  6. #6
    Anonymous Guest

    Default

    I'm probably going to accused of having an agenda with this post, but I promise it's genuine and a coincidence. I am very familiar with psoriatic arthritis and it being an autoimmune disease. My ex has it. I have to ask you if you've tried LDN. I've been trying to share it here as it has helped me so much with depression and paws, but no one wants to discuss it.

    Why it's relevant to you is it is especially helpful for auto immune. Much of the MS and Fibro community use it extensively. If you have exhausted all other options, and haven't tried it, you really should research it. My ex was reluctant to try it at my recommendation, but he has recently told me how great he feels on it. He's been on it for about 3 months now I think. I just bumped a thread today with some videos, but there is tons more on out there too. Just google it, or feel free to ask me more about it, and try to find the thread I bumped.

    And a response would be so appreciated. I feel like I'm talking to walls of late. People get set in their ways I think and don't think outside the box. Oh well, if I can maybe help you, it would be all worth it.

    Of course, not everything works for everyone.

  7. #7
    Anonymous Guest

    Default

    I found some quotes for you from around the net. I realize these are just anecdotal ones, but there are also plenty of studies. I'm actually going to send these to my ex too to validate his feeling and make sure he sticks with it.


    "I have psoriasis too & psoriatic arthritis. I've been taking LDN for over 2 years as I didn't want Methotrexate, the drug of choice. I take about 3mls a night & noticed a dramatic improvement immediately."

    "Psoriatic arthritis is a painful autoimmune arthritis which occurs in patients with psoriasis. My patient, a middle aged woman, had a complete resolution of her chronic joint pain within weeks of starting LDN. Her skin psoriasis also resolved. This patient had also started a gluten free diet and had taken some supplements that also had helped prior to starting LDN, but it was the LDN that dramatically improved her condition"

    "When I saw her recently after a long lapse, she was ecstatic about trying me on 2 exciting options. The less expensive and least invasive of the 2 options was LDN. AND I could take in on Enbrel. And since they started you at an almost homeopathic dose, there were few side effects. So I did.
    And I am 70% clearer than I was in July with virtually no sun. I saw my derm last week after 3 months between visits. She was going to start me on a methotrexate tincture, but was so impressed with my improvement she said to continue what I am doing.
    This morning I sat down and wrote my Thanksgiving letter to my naturopath for getting me on LDN. "

  8. #8
    Anonymous Guest

    Default

    Checking back in. I was hoping my posts might've given you some hope.

    Maybe you already tried LDN? Which three meds have you tried that caused extreme depression?

  9. #9
    ForMe30 is offline Member
    Join Date
    Jun 2017
    Posts
    193

    Default

    What is LDN and how does it work? Is it a natural supplement?

  10. #10
    Anonymous Guest

    Default

    Quote Originally Posted by ForMe30 View Post
    What is LDN and how does it work? Is it a natural supplement?
    You know how a vaccine has your body make antibodies against a virus. LDN prompts your own body to produce more endorphins. Endorphins not only make you feel good, they are also key to our immune defenses.

    Google "LDN" for tons of info.

    "Low dose" naltrexone is not advertised by big Pharma because it's already off patent. Be sure not to confuse low dose with the regular dose. This is a whole different conversation and used at only Low dose. Again, similar in concept to giving the body a minuscule dose of virus in a vaccine to trick the body to heal itself.

    Endorphin production is often lacking after opiate usage. I'm using LDN personally for that to get them bumped up.

  11. #11
    ForMe30 is offline Member
    Join Date
    Jun 2017
    Posts
    193

    Default

    Ok thank you. It sounds like what another poster on this forums uses but it’s called DLPA. I need something for the depression with fatigue that always hits around week 3. I have to do something different this time. Also I have seasonal psoriasis and I get it really bad (patches and pain)at the end of April every year like clockwork on my knees and elbows. Maybe I’ll try that instead of steroids and Clobex.

  12. #12
    Anonymous Guest

    Default

    It's proven very safe, so I see no harm in trying it. It's recommended that you build up to your optimal dose. If you start googling about it and read or watch videos, you'll get the gist.

    Google both DLPA and LDN together if you want. There are some reports that DLPA potentiates LDN.

    Seasonal psoriasis sounds like an immune response due to high histamine or tryptase. Not to overload you with information, but look up MCAS - mast cell activation syndrome. It's another fascinating subject just coming to light in the medical community. My issue is extreme fatigue in March/April. During pollen season, you might want to avoid high histamine foods to help lighten your load.
    ForMe30 likes this.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22